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There are 7316119 results for: content related to: The AJMG SEQUENCE: Decoding news and trends for the medical genetics community

  1. Ethics, Evidence, and Cost in Newborn Screening

    Hastings Center Report

    Volume 38, Issue 3, May-June 2008, Pages: 23–31, MARY ANN BAILY and THOMAS H. MURRAY

    Version of Record online : 8 FEB 2012, DOI: 10.1353/hcr.0.0009

  2. Every Child Is Priceless: Debating Effective Newborn Screening Policy

    Hastings Center Report

    Volume 39, Issue 1, January-February 2009, Pages: 4–8,

    Version of Record online : 8 FEB 2012, DOI: 10.1353/hcr.0.0093

  3. Ethical and policy issues in pediatric genetics

    American Journal of Medical Genetics Part C: Seminars in Medical Genetics

    Volume 148C, Issue 1, 15 February 2008, Pages: 1–7, Lainie Friedman Ross

    Version of Record online : 15 JAN 2008, DOI: 10.1002/ajmg.c.30162

  4. Changing perspectives on the benefits of newborn screening

    Mental Retardation and Developmental Disabilities Research Reviews

    Volume 12, Issue 4, 2006, Pages: 270–279, Donald B. Bailey Jr., Laura M. Beskow, Arlene M. Davis and Debra Skinner

    Version of Record online : 20 DEC 2006, DOI: 10.1002/mrdd.20119

  5. ISSUES FOR CONSIDERATION

    Nursing for Women's Health

    Volume 14, Issue 3, June/July 2010, Pages: 198–211, Emily Drake and Mary E. Gibson

    Version of Record online : 2 JUN 2010, DOI: 10.1111/j.1751-486X.2010.01541.x

  6. Expanding Newborn Screening: Process, Policy, and Priorities

    Hastings Center Report

    Volume 38, Issue 3, May-June 2008, Pages: 32–39, VIRGINIA A. MOYER, NED CALONGE, STEVEN M. TEUTSCH, JEFFREY R. BOTKIN and United States Preventive Services Task Force

    Version of Record online : 8 FEB 2012, DOI: 10.1353/hcr.0.0011

  7. Attitudes and beliefs of pediatricians and genetic counselors regarding testing and screening for CF and G6PD: Implications for policy

    American Journal of Medical Genetics Part A

    Volume 140A, Issue 21, 1 November 2006, Pages: 2305–2311, Joy Koopmans, Susan Hiraki and Lainie Friedman Ross

    Version of Record online : 4 OCT 2006, DOI: 10.1002/ajmg.a.31463

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    Long-term follow-up of newborn screening often falls short

    American Journal of Medical Genetics Part A

    Volume 158A, Issue 9, September 2012, Pages: viii–ix,

    Version of Record online : 24 AUG 2012, DOI: 10.1002/ajmg.a.35646

  9. Patient advocacy in newborn screening: Continuities and discontinuities

    American Journal of Medical Genetics Part C: Seminars in Medical Genetics

    Volume 148C, Issue 1, 15 February 2008, Pages: 8–14, Diane B. Paul

    Version of Record online : 15 JAN 2008, DOI: 10.1002/ajmg.c.30166

  10. Return of Results from Research Using Newborn Screening Dried Blood Samples

    The Journal of Law, Medicine & Ethics

    Volume 43, Issue 3, Fall 2015, Pages: 559–568, Michelle Huckaby Lewis and Aaron J. Goldenberg

    Version of Record online : 19 OCT 2015, DOI: 10.1111/jlme.12299

  11. Current status of newborn screening: Decision-making about the conditions to include in screening programs

    Mental Retardation and Developmental Disabilities Research Reviews

    Volume 12, Issue 4, 2006, Pages: 230–235, Michael S. Watson

    Version of Record online : 20 DEC 2006, DOI: 10.1002/mrdd.20127

  12. Screening for conditions that do not meet the Wilson and Jungner criteria: The case of Duchenne muscular dystrophy

    American Journal of Medical Genetics Part A

    Volume 140A, Issue 8, 15 April 2006, Pages: 914–922, Lainie Friedman Ross

    Version of Record online : 9 MAR 2006, DOI: 10.1002/ajmg.a.31165

  13. A Primer on Economic Evaluations Related to Expansion of Newborn Screening for Genetic and Metabolic Disorders

    Journal of Obstetric, Gynecologic, & Neonatal Nursing

    Volume 35, Issue 6, November/December 2006, Pages: 692–699, Heddy Bishop Hubbard

    Version of Record online : 10 NOV 2006, DOI: 10.1111/j.1552-6909.2006.00098.x

  14. Parental attitudes regarding newborn screening of PKU and DMD

    American Journal of Medical Genetics Part A

    Volume 120A, Issue 2, 15 July 2003, Pages: 209–214, Elizabeth Campbell and Lainie Friedman Ross

    Version of Record online : 11 APR 2003, DOI: 10.1002/ajmg.a.20031

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    References

    Genetic Testing: Care, Consent, and Liability

    Neil F. Sharpe, Ronald F. Carter, Pages: 453–566, 2006

    Published Online : 4 JAN 2006, DOI: 10.1002/0471748897.refs

  16. Newborn screening for lysosomal storage disorders

    Acta Paediatrica

    Volume 97, Issue s457, April 2008, Pages: 33–37, Dietrich Matern

    Version of Record online : 13 MAR 2008, DOI: 10.1111/j.1651-2227.2008.00652.x

  17. Advisory Committee on Heritable Disorders and Genetic Diseases in Newborns and Children

    Mental Retardation and Developmental Disabilities Research Reviews

    Volume 12, Issue 4, 2006, Pages: 313–315, R. Rodney Howell

    Version of Record online : 20 DEC 2006, DOI: 10.1002/mrdd.20126

  18. Critical role of the March of Dimes in the expansion of newborn screening

    Mental Retardation and Developmental Disabilities Research Reviews

    Volume 12, Issue 4, 2006, Pages: 280–287, Jennifer L. Howse, Marina Weiss and Nancy S. Green

    Version of Record online : 20 DEC 2006, DOI: 10.1002/mrdd.20129

  19. National evaluation of US newborn screening system components

    Mental Retardation and Developmental Disabilities Research Reviews

    Volume 12, Issue 4, 2006, Pages: 236–245, Bradford L. Therrell and W. Harry Hannon

    Version of Record online : 20 DEC 2006, DOI: 10.1002/mrdd.20124

  20. Attitudes of genetic counselors towards expanding newborn screening and offering predictive genetic testing to children

    American Journal of Medical Genetics Part A

    Volume 140A, Issue 21, 1 November 2006, Pages: 2312–2319, Susan Hiraki, Kelly E. Ormond, Katherine Kim and Lainie Friedman Ross

    Version of Record online : 11 OCT 2006, DOI: 10.1002/ajmg.a.31485