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There are 56822 results for: content related to: The AJMG SEQUENCE: Decoding news and trends for the medical genetics community

  1. Ethics, Evidence, and Cost in Newborn Screening

    Hastings Center Report

    Volume 38, Issue 3, May-June 2008, Pages: 23–31, MARY ANN BAILY and THOMAS H. MURRAY

    Article first published online : 8 FEB 2012, DOI: 10.1353/hcr.0.0009

  2. Expanding Newborn Screening: Process, Policy, and Priorities

    Hastings Center Report

    Volume 38, Issue 3, May-June 2008, Pages: 32–39, VIRGINIA A. MOYER, NED CALONGE, STEVEN M. TEUTSCH, JEFFREY R. BOTKIN and United States Preventive Services Task Force

    Article first published online : 8 FEB 2012, DOI: 10.1353/hcr.0.0011

  3. Changing perspectives on the benefits of newborn screening

    Mental Retardation and Developmental Disabilities Research Reviews

    Volume 12, Issue 4, 2006, Pages: 270–279, Donald B. Bailey Jr., Laura M. Beskow, Arlene M. Davis and Debra Skinner

    Article first published online : 20 DEC 2006, DOI: 10.1002/mrdd.20119

  4. ISSUES FOR CONSIDERATION

    Nursing for Women's Health

    Volume 14, Issue 3, June/July 2010, Pages: 198–211, Emily Drake and Mary E. Gibson

    Article first published online : 2 JUN 2010, DOI: 10.1111/j.1751-486X.2010.01541.x

  5. Every Child Is Priceless: Debating Effective Newborn Screening Policy

    Hastings Center Report

    Volume 39, Issue 1, January-February 2009, Pages: 4–8,

    Article first published online : 8 FEB 2012, DOI: 10.1353/hcr.0.0093

  6. Ethical and policy issues in pediatric genetics

    American Journal of Medical Genetics Part C: Seminars in Medical Genetics

    Volume 148C, Issue 1, 15 February 2008, Pages: 1–7, Lainie Friedman Ross

    Article first published online : 15 JAN 2008, DOI: 10.1002/ajmg.c.30162

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    Long-term follow-up of newborn screening often falls short

    American Journal of Medical Genetics Part A

    Volume 158A, Issue 9, September 2012, Pages: viii–ix,

    Article first published online : 24 AUG 2012, DOI: 10.1002/ajmg.a.35646

  8. Attitudes and beliefs of pediatricians and genetic counselors regarding testing and screening for CF and G6PD: Implications for policy

    American Journal of Medical Genetics Part A

    Volume 140A, Issue 21, 1 November 2006, Pages: 2305–2311, Joy Koopmans, Susan Hiraki and Lainie Friedman Ross

    Article first published online : 4 OCT 2006, DOI: 10.1002/ajmg.a.31463

  9. Current status of newborn screening: Decision-making about the conditions to include in screening programs

    Mental Retardation and Developmental Disabilities Research Reviews

    Volume 12, Issue 4, 2006, Pages: 230–235, Michael S. Watson

    Article first published online : 20 DEC 2006, DOI: 10.1002/mrdd.20127

  10. Patient advocacy in newborn screening: Continuities and discontinuities

    American Journal of Medical Genetics Part C: Seminars in Medical Genetics

    Volume 148C, Issue 1, 15 February 2008, Pages: 8–14, Diane B. Paul

    Article first published online : 15 JAN 2008, DOI: 10.1002/ajmg.c.30166

  11. National evaluation of US newborn screening system components

    Mental Retardation and Developmental Disabilities Research Reviews

    Volume 12, Issue 4, 2006, Pages: 236–245, Bradford L. Therrell and W. Harry Hannon

    Article first published online : 20 DEC 2006, DOI: 10.1002/mrdd.20124

  12. A Primer on Economic Evaluations Related to Expansion of Newborn Screening for Genetic and Metabolic Disorders

    Journal of Obstetric, Gynecologic, & Neonatal Nursing

    Volume 35, Issue 6, November/December 2006, Pages: 692–699, Heddy Bishop Hubbard

    Article first published online : 10 NOV 2006, DOI: 10.1111/j.1552-6909.2006.00098.x

  13. Newborn screening for lysosomal storage disorders

    Acta Paediatrica

    Volume 97, Issue s457, April 2008, Pages: 33–37, Dietrich Matern

    Article first published online : 13 MAR 2008, DOI: 10.1111/j.1651-2227.2008.00652.x

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    Implications of Newborn Screening for Nurses

    Journal of Nursing Scholarship

    Volume 45, Issue 1, March 2013, Pages: 25–33, Jane DeLuca, Karen L. Zanni, Natasha Bonhomme and Alex R. Kemper

    Article first published online : 31 JAN 2013, DOI: 10.1111/jnu.12005

  15. Newborn Screening Policy and Practice Issues for Nurses

    Journal of Obstetric, Gynecologic, & Neonatal Nursing

    Volume 42, Issue 6, November/December 2013, Pages: 718–729, Audrey Tluczek and Jane M. De Luca

    Article first published online : 15 OCT 2013, DOI: 10.1111/1552-6909.12252

  16. Parental attitudes regarding newborn screening of PKU and DMD

    American Journal of Medical Genetics Part A

    Volume 120A, Issue 2, 15 July 2003, Pages: 209–214, Elizabeth Campbell and Lainie Friedman Ross

    Article first published online : 11 APR 2003, DOI: 10.1002/ajmg.a.20031

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    The AJMG SEQUENCE: Decoding news and trends for the medical genetics community

    American Journal of Medical Genetics Part A

    Volume 149A, Issue 6, June 2009, Pages: fm vii–fm x, Deborah Levenson

    Article first published online : 27 MAY 2009, DOI: 10.1002/ajmg.a.32971

  18. Critical role of the March of Dimes in the expansion of newborn screening

    Mental Retardation and Developmental Disabilities Research Reviews

    Volume 12, Issue 4, 2006, Pages: 280–287, Jennifer L. Howse, Marina Weiss and Nancy S. Green

    Article first published online : 20 DEC 2006, DOI: 10.1002/mrdd.20129

  19. Expanded newborn screening: articulating the ontology of diseases with bridging work in the clinic

    Sociology of Health & Illness

    Volume 34, Issue 2, February 2012, Pages: 208–220, Stefan Timmermans and Mara Buchbinder

    Article first published online : 19 SEP 2011, DOI: 10.1111/j.1467-9566.2011.01398.x

  20. Screening for conditions that do not meet the Wilson and Jungner criteria: The case of Duchenne muscular dystrophy

    American Journal of Medical Genetics Part A

    Volume 140A, Issue 8, 15 April 2006, Pages: 914–922, Lainie Friedman Ross

    Article first published online : 9 MAR 2006, DOI: 10.1002/ajmg.a.31165