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There are 21043 results for: content related to: Maternal perspectives on the return of genetic results: Context matters

  1. You have free access to this content
    Reporting genetic results in research studies: Summary and recommendations of an NHLBI working group

    American Journal of Medical Genetics Part A

    Volume 140A, Issue 10, 15 May 2006, Pages: 1033–1040, Ebony B. Bookman, Aleisha A. Langehorne, John H. Eckfeldt, Kathleen C. Glass, Gail P. Jarvik, Michael Klag, Greg Koski, Arno Motulsky, Benjamin Wilfond, Teri A. Manolio, Richard R. Fabsitz and Russell V. Luepker

    Version of Record online : 30 MAR 2006, DOI: 10.1002/ajmg.a.31195

  2. Return of Genetic Research Results to Participants and Families: IRB Perspectives and Roles

    The Journal of Law, Medicine & Ethics

    Volume 43, Issue 3, Fall 2015, Pages: 502–513, Laura M. Beskow and P. Pearl O'Rourke

    Version of Record online : 19 OCT 2015, DOI: 10.1111/jlme.12292

  3. A Framework for Analyzing the Ethics of Disclosing Genetic Research Findings

    The Journal of Law, Medicine & Ethics

    Volume 42, Issue 2, Summer 2014, Pages: 190–207, Lisa Eckstein, Jeremy R. Garrett and Benjamin E. Berkman

    Version of Record online : 16 JUL 2014, DOI: 10.1111/jlme.12135

  4. You have free access to this content
    Managing Incidental Findings in Human Subjects Research: Analysis and Recommendations

    The Journal of Law, Medicine & Ethics

    Volume 36, Issue 2, Summer 2008, Pages: 219–248, Susan M. Wolf, Frances P. Lawrenz, Charles A. Nelson, Jeffrey P. Kahn, Mildred K. Cho, Ellen Wright Clayton, Joel G. Fletcher, Michael K. Georgieff, Dale Hammerschmidt, Kathy Hudson, Judy Illes, Vivek Kapur, Moira A. Keane, Barbara A. Koenig, Bonnie S. LeRoy, Elizabeth G. McFarland, Jordan Paradise, Lisa S. Parker, Sharon F. Terry, Brian Van Ness and Benjamin S. Wilfond

    Version of Record online : 2 JUN 2008, DOI: 10.1111/j.1748-720X.2008.00266.x

  5. You have full text access to this OnlineOpen article
    Feedback of individual genetic results to research participants: in favor of a qualified disclosure policy

    Human Mutation

    Volume 32, Issue 8, August 2011, Pages: 861–867, Annelien L. Bredenoord, N. Charlotte Onland-Moret and Johannes J.M. Van Delden

    Version of Record online : 30 JUN 2011, DOI: 10.1002/humu.21518

  6. Qualitative assessment of study materials and communication strategies used in studies that include DNA collection

    American Journal of Medical Genetics Part A

    Volume 155, Issue 11, November 2011, Pages: 2721–2731, Mary M. Jenkins, Erika Reed-Gross, Wanda D. Barfield, Christine E. Prue, Margaret L. Gallagher, Sonja A. Rasmussen and Margaret A. Honein

    Version of Record online : 4 OCT 2011, DOI: 10.1002/ajmg.a.34263

  7. Return of Research Results: General Principles and International Perspectives

    The Journal of Law, Medicine & Ethics

    Volume 39, Issue 4, Winter 2011, Pages: 583–592, Emmanuelle Lévesque, Yann Joly and Jacques Simard

    Version of Record online : 15 NOV 2011, DOI: 10.1111/j.1748-720X.2011.00625.x

  8. Return of results: Ethical and legal distinctions between research and clinical care

    American Journal of Medical Genetics Part C: Seminars in Medical Genetics

    Volume 166, Issue 1, March 2014, Pages: 105–111, Wylie Burke, Barbara J Evans and Gail P Jarvik

    Version of Record online : 10 MAR 2014, DOI: 10.1002/ajmg.c.31393

  9. Views of female breast cancer patients who donated biologic samples regarding storage and use of samples for genetic research

    Clinical Genetics

    Volume 69, Issue 5, May 2006, Pages: 393–398, KA Kaphingst, JM Janoff, LN Harris and KM Emmons

    Version of Record online : 6 APR 2006, DOI: 10.1111/j.1399-0004.2006.00614.x

  10. Attitudes of non-African American focus group participants toward return of results from exome and whole genome sequencing

    American Journal of Medical Genetics Part A

    Volume 164, Issue 9, September 2014, Pages: 2153–2160, Joon-Ho Yu, Julia Crouch, Seema M. Jamal, Michael J. Bamshad and Holly K. Tabor

    Version of Record online : 20 MAY 2014, DOI: 10.1002/ajmg.a.36610

  11. Pediatric Research and the Return of Individual Research Results

    The Journal of Law, Medicine & Ethics

    Volume 39, Issue 4, Winter 2011, Pages: 593–604, Denise Avard, Karine Sénécal, Parvaz Madadi and Daniel Sinnett

    Version of Record online : 15 NOV 2011, DOI: 10.1111/j.1748-720X.2011.00626.x

  12. Biobank participation and returning research results: Perspectives from a deliberative engagement in South Side Chicago

    American Journal of Medical Genetics Part A

    Volume 158A, Issue 5, May 2012, Pages: 1029–1037, Amy A. Lemke, Colin Halverson and Lainie Friedman Ross

    Version of Record online : 21 MAR 2012, DOI: 10.1002/ajmg.a.34414

  13. Ethical issues raised by incorporation of genetics into the National Birth Defects Prevention Study

    American Journal of Medical Genetics Part C: Seminars in Medical Genetics

    Volume 148C, Issue 1, 15 February 2008, Pages: 40–46, Mary M. Jenkins, Sonja A. Rasmussen, Cynthia A. Moore and Margaret A. Honein

    Version of Record online : 11 JAN 2008, DOI: 10.1002/ajmg.c.30157

  14. Canadian Research Ethics Board Leadership Attitudes to the Return of Genetic Research Results to Individuals and Their Families

    The Journal of Law, Medicine & Ethics

    Volume 43, Issue 3, Fall 2015, Pages: 514–522, Conrad V. Fernandez, P. Pearl O'Rourke and Laura M. Beskow

    Version of Record online : 19 OCT 2015, DOI: 10.1111/jlme.12293

  15. Attitudes of African Americans Toward Return of Results From Exome and Whole Genome Sequencing

    American Journal of Medical Genetics Part A

    Volume 161, Issue 5, May 2013, Pages: 1064–1072, Joon-Ho Yu, Julia Crouch, Seema M. Jamal, Holly K. Tabor and Michael J. Bamshad

    Version of Record online : 22 APR 2013, DOI: 10.1002/ajmg.a.35914

  16. The Needle in the Haystack: International Consortia and the Return of Individual Research Results

    The Journal of Law, Medicine & Ethics

    Volume 39, Issue 4, Winter 2011, Pages: 631–639, Susan E. Wallace

    Version of Record online : 15 NOV 2011, DOI: 10.1111/j.1748-720X.2011.00630.x

  17. Whole exome or genome sequencing: nurses need to prepare families for the possibilities

    Journal of Advanced Nursing

    Volume 70, Issue 12, December 2014, Pages: 2736–2745, Cynthia A. Prows, Grace Tran and Beverly Blosser

    Version of Record online : 1 SEP 2014, DOI: 10.1111/jan.12516

  18. You have free access to this content
    Genomic Research and Incidental Findings

    The Journal of Law, Medicine & Ethics

    Volume 36, Issue 2, Summer 2008, Pages: 292–297, Brian Van Ness

    Version of Record online : 2 JUN 2008, DOI: 10.1111/j.1748-720X.2008.00272.x

  19. Returning a Research Participant's Genomic Results to Relatives: Analysis and Recommendations

    The Journal of Law, Medicine & Ethics

    Volume 43, Issue 3, Fall 2015, Pages: 440–463, Susan M. Wolf, Rebecca Branum, Barbara A. Koenig, Gloria M. Petersen, Susan A. Berry, Laura M. Beskow, Mary B. Daly, Conrad V. Fernandez, Robert C. Green, Bonnie S. LeRoy, Noralane M. Lindor, P. Pearl O'Rourke, Carmen Radecki Breitkopf, Mark A. Rothstein, Brian Van Ness and Benjamin S. Wilfond

    Version of Record online : 19 OCT 2015, DOI: 10.1111/jlme.12288

  20. You have free access to this content
    Incidental Findings in Genetics Research Using Archived DNA

    The Journal of Law, Medicine & Ethics

    Volume 36, Issue 2, Summer 2008, Pages: 286–291, Ellen Wright Clayton

    Version of Record online : 2 JUN 2008, DOI: 10.1111/j.1748-720X.2008.00271.x