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There are 28005 results for: content related to: Respecting Donors to Biobank Research

  1. You have free access to this content
    Towards norms for accreditation of biobanks for human health and medical research: compilation of existing guidelines into an ISO certification/accreditation norm-compatible format

    The Quality Assurance Journal

    Volume 11, Issue 3-4, September - December 2007, Pages: 221–294, F. Betsou, A. Luzergues, A. Carter, P. Geary, P. Riegman, B. Clark, M. Morente, J. Vaught, R. Dhirr and C. Druez-Vérité

    Article first published online : 1 OCT 2008, DOI: 10.1002/qaj.425

  2. What is a biobank? Differing definitions among biobank stakeholders

    Clinical Genetics

    Volume 85, Issue 3, March 2014, Pages: 223–227, D.M. Shaw, B.S. Elger and F. Colledge

    Article first published online : 16 OCT 2013, DOI: 10.1111/cge.12268

  3. You have free access to this content
    Empirical data about women's attitudes towards a hypothetical pediatric biobank

    American Journal of Medical Genetics Part A

    Volume 146A, Issue 3, 1 February 2008, Pages: 297–304, Alon B. Neidich, Josh W. Joseph, Carole Ober and Lainie Friedman Ross

    Article first published online : 17 JAN 2008, DOI: 10.1002/ajmg.a.32145

  4. RECONSIDERING THE VALUE OF CONSENT IN BIOBANK RESEARCH

    Bioethics

    Volume 25, Issue 3, March 2011, Pages: 155–166, JUDY ALLEN and BEVERLEY MCNAMARA

    Article first published online : 29 JUL 2009, DOI: 10.1111/j.1467-8519.2009.01749.x

  5. Biobank participation and returning research results: Perspectives from a deliberative engagement in South Side Chicago

    American Journal of Medical Genetics Part A

    Volume 158A, Issue 5, May 2012, Pages: 1029–1037, Amy A. Lemke, Colin Halverson and Lainie Friedman Ross

    Article first published online : 21 MAR 2012, DOI: 10.1002/ajmg.a.34414

  6. Genetic research on stored tissue samples from minors: A systematic review of the ethical literature

    American Journal of Medical Genetics Part A

    Volume 149A, Issue 10, October 2009, Pages: 2346–2358, Kristien Hens, Herman Nys, Jean-Jacques Cassiman and Kris Dierickx

    Article first published online : 16 SEP 2009, DOI: 10.1002/ajmg.a.33032

  7. You have free access to this content
    Biobanks and personalized medicine

    Clinical Genetics

    Volume 86, Issue 1, July 2014, Pages: 50–55, J.E. Olson, S.J. Bielinski, E. Ryu, E.M. Winkler, P.Y. Takahashi, J. Pathak and J.R. Cerhan

    Article first published online : 27 MAR 2014, DOI: 10.1111/cge.12370

  8. A biobank of primary teeth within the Norwegian Mother and Child Cohort Study (MoBa): a resource for the future

    Paediatric and Perinatal Epidemiology

    Volume 26, Issue 3, May 2012, Pages: 264–271, Helene Meyer Tvinnereim, Gunvor Bentung Lygre, Kjell Haug, Patricia Schreuder and Kristin Klock

    Article first published online : 7 FEB 2012, DOI: 10.1111/j.1365-3016.2012.01259.x

  9. Are UK genetic databases governed adequately? A comparative legal analysis

    Legal Studies

    Volume 27, Issue 2, June 2007, Pages: 312–342, Susan MC Gibbons

    Article first published online : 31 JAN 2007, DOI: 10.1111/j.1748-121X.2007.00045.x

  10. Enterprising or altruistic selves? Making up research subjects in genetics research

    Sociology of Health & Illness

    Volume 33, Issue 7, November 2011, Pages: 1081–1095, Richard Tutton and Barbara Prainsack

    Article first published online : 20 APR 2011, DOI: 10.1111/j.1467-9566.2011.01348.x

  11. Subject Positioning and Deliberative Democracy: Understanding Social Processes Underlying Deliberation

    Journal for the Theory of Social Behaviour

    Volume 40, Issue 2, June 2010, Pages: 224–245, KIERAN C. O'DOHERTY and HELEN J. DAVIDSON

    Article first published online : 3 FEB 2010, DOI: 10.1111/j.1468-5914.2009.00429.x

  12. You have free access to this content
    Securing our genetic health: engendering trust in UK Biobank

    Sociology of Health & Illness

    Volume 27, Issue 2, March 2005, Pages: 271–292, Alan Petersen

    Article first published online : 22 MAR 2005, DOI: 10.1111/j.1467-9566.2005.00442.x

  13. You have free access to this content
    Empirical data about women's attitudes toward a biobank focused on pregnancy outcomes

    American Journal of Medical Genetics Part A

    Volume 146A, Issue 3, 1 February 2008, Pages: 305–311, Josh W. Joseph, Alon B. Neidich, Carole Ober and Lainie Friedman Ross

    Article first published online : 17 JAN 2008, DOI: 10.1002/ajmg.a.32146

  14. Partnership in U.K. Biobank: A Third Way for Genomic Property?

    The Journal of Law, Medicine & Ethics

    Volume 35, Issue 3, Fall 2007, Pages: 440–456, David E. Winickoff

    Article first published online : 14 AUG 2007, DOI: 10.1111/j.1748-720X.2007.00166.x

  15. A Proposed Approach to Informed Consent for Biobanks in China

    Bioethics

    Volume 28, Issue 4, May 2014, Pages: 181–186, Min Liu and Qingli Hu

    Article first published online : 5 JUL 2012, DOI: 10.1111/j.1467-8519.2012.01985.x

  16. Paediatric biobanks: What makes them so unique?

    Journal of Paediatrics and Child Health

    Volume 48, Issue 2, February 2012, Pages: E1–E3, Julie Samuël, Bartha M Knoppers and Denise Avard

    Article first published online : 29 APR 2011, DOI: 10.1111/j.1440-1754.2011.02072.x

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    The power of ethics: a case study from Sweden on the social life of moral concerns in policy processes

    Sociology of Health & Illness

    Volume 28, Issue 6, September 2006, Pages: 785–801, Klaus Hoeyer

    Article first published online : 20 DEC 2006, DOI: 10.1111/j.1467-9566.2006.00542.x

  18. You have free access to this content
    Funding considerations for the disclosure of genetic incidental findings in biobank research

    Clinical Genetics

    Volume 84, Issue 5, November 2013, Pages: 397–406, L Black, D Avard, MH Zawati, BM Knoppers, J Hébert, G Sauvageau and on behalf of the Leucegene Project

    Article first published online : 10 JUN 2013, DOI: 10.1111/cge.12190

  19. Two large-scale surveys on community attitudes toward an opt-out biobank

    American Journal of Medical Genetics Part A

    Volume 155, Issue 12, December 2011, Pages: 2982–2990, Kyle B. Brothers, Daniel R. Morrison and Ellen W. Clayton

    Article first published online : 7 NOV 2011, DOI: 10.1002/ajmg.a.34304

  20. Factors That Influence Characteristics of Genetic Biobanks

    Journal of Nursing Scholarship

    Volume 39, Issue 1, March 2007, Pages: 25–29, Jennifer E. Sanner and Lorraine Frazier

    Article first published online : 26 FEB 2007, DOI: 10.1111/j.1547-5069.2007.00139.x