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There are 46469 results for: content related to: Expanding Newborn Screening: Process, Policy, and Priorities

  1. Ethics, Evidence, and Cost in Newborn Screening

    Hastings Center Report

    Volume 38, Issue 3, May-June 2008, Pages: 23–31, MARY ANN BAILY and THOMAS H. MURRAY

    Article first published online : 8 FEB 2012, DOI: 10.1353/hcr.0.0009

  2. Implications of Newborn Screening for Nurses

    Journal of Nursing Scholarship

    Volume 45, Issue 1, March 2013, Pages: 25–33, Jane DeLuca, Karen L. Zanni, Natasha Bonhomme and Alex R. Kemper

    Article first published online : 31 JAN 2013, DOI: 10.1111/jnu.12005

  3. ISSUES FOR CONSIDERATION

    Nursing for Women's Health

    Volume 14, Issue 3, June/July 2010, Pages: 198–211, Emily Drake and Mary E. Gibson

    Article first published online : 2 JUN 2010, DOI: 10.1111/j.1751-486X.2010.01541.x

  4. Maintaining Trust in Newborn Screening

    Hastings Center Report

    Volume 42, Issue 5, September-October 2012, Pages: 41–47, Simone van der Burg and Marcel Verweij

    Article first published online : 13 SEP 2012, DOI: 10.1002/hast.66

  5. National evaluation of US newborn screening system components

    Mental Retardation and Developmental Disabilities Research Reviews

    Volume 12, Issue 4, 2006, Pages: 236–245, Bradford L. Therrell and W. Harry Hannon

    Article first published online : 20 DEC 2006, DOI: 10.1002/mrdd.20124

  6. A Primer on Economic Evaluations Related to Expansion of Newborn Screening for Genetic and Metabolic Disorders

    Journal of Obstetric, Gynecologic, & Neonatal Nursing

    Volume 35, Issue 6, November/December 2006, Pages: 692–699, Heddy Bishop Hubbard

    Article first published online : 10 NOV 2006, DOI: 10.1111/j.1552-6909.2006.00098.x

  7. Every Child Is Priceless: Debating Effective Newborn Screening Policy

    Hastings Center Report

    Volume 39, Issue 1, January-February 2009, Pages: 4–8,

    Article first published online : 8 FEB 2012, DOI: 10.1353/hcr.0.0093

  8. Ethical and policy issues in pediatric genetics

    American Journal of Medical Genetics Part C: Seminars in Medical Genetics

    Volume 148C, Issue 1, 15 February 2008, Pages: 1–7, Lainie Friedman Ross

    Article first published online : 15 JAN 2008, DOI: 10.1002/ajmg.c.30162

  9. Newborn screening for lysosomal storage disorders

    Acta Paediatrica

    Volume 97, Issue s457, April 2008, Pages: 33–37, Dietrich Matern

    Article first published online : 13 MAR 2008, DOI: 10.1111/j.1651-2227.2008.00652.x

  10. Changing perspectives on the benefits of newborn screening

    Mental Retardation and Developmental Disabilities Research Reviews

    Volume 12, Issue 4, 2006, Pages: 270–279, Donald B. Bailey Jr., Laura M. Beskow, Arlene M. Davis and Debra Skinner

    Article first published online : 20 DEC 2006, DOI: 10.1002/mrdd.20119

  11. Factors accounting for a missed diagnosis of cystic fibrosis after newborn screening

    Pediatric Pulmonology

    Volume 46, Issue 12, December 2011, Pages: 1166–1174, Michael J. Rock, Hara Levy, Christina Zaleski and Philip M. Farrell

    Article first published online : 24 AUG 2011, DOI: 10.1002/ppul.21509

  12. Newborn Screening Policy and Practice Issues for Nurses

    Journal of Obstetric, Gynecologic, & Neonatal Nursing

    Volume 42, Issue 6, November/December 2013, Pages: 718–729, Audrey Tluczek and Jane M. De Luca

    Article first published online : 15 OCT 2013, DOI: 10.1111/1552-6909.12252

  13. Implementation of written consent for newborn screening in Victoria, Australia

    Journal of Paediatrics and Child Health

    Volume 50, Issue 5, May 2014, Pages: 399–404, Taryn Charles, James Pitt, Jane Halliday and David J Amor

    Article first published online : 23 DEC 2013, DOI: 10.1111/jpc.12484

  14. The clinical aspects of newborn screening: Importance of newborn screening follow-up

    Mental Retardation and Developmental Disabilities Research Reviews

    Volume 12, Issue 4, 2006, Pages: 246–254, Philip M. James and Harvey L. Levy

    Article first published online : 20 DEC 2006, DOI: 10.1002/mrdd.20120

  15. Screening for conditions that do not meet the Wilson and Jungner criteria: The case of Duchenne muscular dystrophy

    American Journal of Medical Genetics Part A

    Volume 140A, Issue 8, 15 April 2006, Pages: 914–922, Lainie Friedman Ross

    Article first published online : 9 MAR 2006, DOI: 10.1002/ajmg.a.31165

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    Long-term follow-up of newborn screening often falls short

    American Journal of Medical Genetics Part A

    Volume 158A, Issue 9, September 2012, Pages: viii–ix,

    Article first published online : 24 AUG 2012, DOI: 10.1002/ajmg.a.35646

  17. Parental attitudes regarding newborn screening of PKU and DMD

    American Journal of Medical Genetics Part A

    Volume 120A, Issue 2, 15 July 2003, Pages: 209–214, Elizabeth Campbell and Lainie Friedman Ross

    Article first published online : 11 APR 2003, DOI: 10.1002/ajmg.a.20031

  18. Newborn Screening and Genetic Testing

    Journal of Obstetric, Gynecologic, & Neonatal Nursing

    Volume 31, Issue 2, March 2002, Pages: 200–207, Michele A. Lloyd-Puryear and Irene Forsman

    Article first published online : 9 MAR 2006, DOI: 10.1111/j.1552-6909.2002.tb00041.x

  19. Report of MDA muscle disease symposium on newborn screening for Duchenne muscular dystrophy

    Muscle & Nerve

    Volume 48, Issue 1, July 2013, Pages: 21–26, Jerry R. Mendell and Michele Lloyd-Puryear

    Article first published online : 28 MAY 2013, DOI: 10.1002/mus.23810

  20. The case for newborn screening for severe combined immunodeficiency and related disorders

    Annals of the New York Academy of Sciences

    Volume 1246, Issue 1, December 2011, Pages: 108–117, Jennifer M. Puck

    Article first published online : 3 JAN 2012, DOI: 10.1111/j.1749-6632.2011.06346.x