Down Syndrome: Visions for the 21st Century

Copyright © 2002 by Wiley-Liss, Inc.

Down Syndrome: Visions for the 21st Century

Editor(s): William I. Cohen, Lynn Nadel, Myra E. Madnick

Published Online: 21 MAR 2003

Print ISBN: 9780471418153

Online ISBN: 9780471227571

DOI: 10.1002/0471227579

About this Book

Product Information

About The Product

Providing a comprehensive survey of the clinical, educational, developmental, psychosocial, and transitional issues relevant to people with Down syndrome, this book addresses the needs of family members, caregivers, and professionals alike. Edited in association with the National Down Syndrome Society, this up-to-date treatment incorporates the newest developments concerning sexuality, inclusion, transition into adulthood, and legislation, as well as a discussion of the Human Genome Project and the sequencing of chromosome 21.

Table of contents

    1. You have free access to this content
      Frontmatter (pages i–xvii)

  2. Part I: Self-Determination

    1. Chapter 1

      Understanding Self-Determination (pages 1–15)

      Thomas Nerney

    2. Chapter 2

      Economic Independence and Inclusion (pages 17–81)

      Michael Morris

    3. Chapter 3

      Playing the Housing “Game”: People with Down Syndrome and Their Families Can Have More Control When It Comes to Housing (pages 83–103)

      Kathleen H. McGinley

  3. Part II: Self-Advocacy

    1. Chapter 4

      Having a Life (pages 105–111)

      John Peter Illarramendi, Jeffery Mattson and Mia Peterson

    2. Chapter 5

      Follow Your Dreams (pages 113–114)

      Chris Burke

    3. Chapter 6

      Life After High School (pages 115–116)

      Joshua G. O'Neill

  4. Part III: Advocacy

    1. Chapter 7

      A Vision for the Twenty-First Century: A Blueprint for Change (pages 117–133)

      Stephanie Smith Lee

  5. Part IV: Role of the Family

    1. Chapter 8

      The Gifts of Down Syndrome: Some Thoughts for New Parents (pages 135–147)

      Martha Beck

    2. Chapter 9

      A Personal Account (pages 149–154)

      Siegfried M. Pueschel

    3. Chapter 10

      Being a Dad—As I Know It (pages 155–161)

      Thomas J. O'Neill

    4. Chapter 11

      The Sibling Relationship: Attending to the Needs of the Other Children in the Family (pages 163–172)

      Susan P. Levine

    5. Chapter 12

      The Special Needs Program: Estate Planning for Families with Children with Disabilities (pages 173–183)

      David A. Weingarten

  6. Part V: Health and Clinical Care

    1. Chapter 13

      Pediatric Health Update on Down Syndrome (pages 185–201)

      Len Leshin

    2. Chapter 14

      The Goal and Opportunity of Physical Therapy for Children with Down Syndrome (pages 203–214)

      Patricia C. Winders

    3. Chapter 15

      Behavior Concerns in Persons with Down Syndrome (pages 215–219)

      Bonnie Patterson

    4. Chapter 16

      Life Issues of Adolescents and Adults with Down Syndrome (pages 221–236)

      Dennis E. McGuire and Brian A. Chicoine

    5. Chapter 17

      Health Care Guidelines for Individuals with Down Syndrome—1999 Revision (pages 237–245)

      William I. Cohen

  7. Part VI: Research

    1. Chapter 18

      Sequencing of Chromosome 21/The Human Genome Project (pages 247–258)

      David Patterson

    2. Chapter 19

      Nonconventional Therapies for Down Syndrome: A Review and Framework for Decision Making (pages 259–273)

      W. Carl Cooley

    3. Chapter 20

      The Genetic Origins of Cognition and Heart Disease in Down Syndrome (pages 275–294)

      Julie R. Korenberg, Gillian Barlow, Lora S. Salandanan, Pranay Bhattacharyya, Xiao-Ning Chen and Gary E. Lyons

    4. Chapter 21

      The Origin and Etiology of Trisomy 21 (pages 295–301)

      Terry Hassold and Stephanie Sherman

  8. Part VII: Psycho-Social Issues

    1. Chapter 22

      Building Relationships/Social and Sexual Development (pages 303–315)

      Leslie Walker-Hirsch

    2. Chapter 23

      Food, Feeding, and Family: On the Road to Healthy Lifestyles (pages 317–325)

      Joan E. Medlen

    3. Chapter 24

      Down Syndrome and Autistic Spectrum Disorders (pages 327–336)

      George T. Capone

  9. Part VIII: Education/Inclusion

    1. Chapter 25

      Inclusion: Welcoming, Valuing and Supporting the Diverse Learning Needs of All Students in Shared General Education Environments (pages 337–356)

      Richard A. Villa and Jacqueline Thousand

    2. Chapter 26

      Positive Behavioral Supports: Creating Supportive Environments at Home, in Schools, and in the Community (pages 357–375)

      Hank Edmonson and Ann Turnbull

    3. Chapter 27

      Postsecondary Education (pages 377–380)

      Phyllis Jacks

    4. Chapter 28

      Assistive Technology and Developmental Disabilities (pages 381–391)

      Joseph F. Wallace

  10. Part IX: Communication, Math, and Language Skills

    1. Chapter 29

      Starting Out: Speech and Language Intervention for Infants and Toddlers with Down Syndrome (pages 393–406)

      Libby Kumin

    2. Chapter 30

      Maximizing Speech and Language in Children and Adolescents with Down Syndrome (pages 407–419)

      Libby Kumin

    3. Chapter 31

      Liberation from Traditional Reading and Math Teaching Methods and Measurements (pages 421–436)

      Patricia Logan Oelwein

  11. Part X: Turning the Vision into Reality

    1. Chapter 32

      Turning the Vision into Reality (pages 437–446)

      Andrea Lack

    1. You have free access to this content
      Index (pages 447–473)

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