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Appendix 1: New Genetics and the Protection of Information

  1. Neil F. Sharpe2,
  2. Prof. Dr. Ronald F. Carter PhD., FCCMG., FACMG Director3,4
  1. David Weisbrot

Published Online: 4 JAN 2006

DOI: 10.1002/0471748897.app1

Book Title

Genetic Testing: Care, Consent, and Liability

Genetic Testing: Care, Consent, and Liability

Additional Information

How to Cite

Sharpe, N. F. and Carter, R. F. (2006) Appendix 1: New Genetics and the Protection of Information, in Genetic Testing: Care, Consent, and Liability, John Wiley & Sons, Inc., Hoboken, NJ, USA. doi: 10.1002/0471748897.app1

Author Information

  1. 2

    Genetic Testing Research Group, 117 Inchbury Street, Hamilton, Ontario, Canada L8R 3B7; 1-905-529-2036; 1-905-577-6446 (fax)

  2. 3

    Department of Pathology and Molecular Medicine, McMaster University, HSC 3N15, 1200 Main Street West, Hamilton, Ontario, Canada; 1-905-521-5084; 1-905-521-2651 (fax)

  3. 4

    Genetic Services, Hamilton Health Sciences, Canada

Author Information

  1. Australian Law Reform Commission, Sydney, Australia

Publication History

  1. Published Online: 4 JAN 2006
  2. Published Print: 11 NOV 2005

ISBN Information

Print ISBN: 9780471649878

Online ISBN: 9780471748892

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CHAPTER TOOLS

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Keywords:

  • community;
  • confidentiality;
  • discrimination;
  • ethical standards;
  • genetic exceptionalism;
  • government regulation;
  • insurance discrimination;
  • law enforcement;
  • law reform;
  • privacy;
  • protection;
  • society

Summary

The human genome product has resulted in markedly enhanced capacities for genetic testing and information storage. Use of this information has been advocated in a broad variety of societal situations beyond health care, including employment standards, sport, law enforcement, and aptitude testing. The Australian Law Reform Commission (ALRC) reviewed societal perspectives and issues arising from genetic testing. This appendix outlines the ALRC's findings and recommendations.

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