Chapter 15. Confidentiality and Recall

  1. Neil F. Sharpe6,
  2. Prof. Dr. Ronald F. Carter PhD., FCCMG., FACMG Director7,8
  1. B′eatrice Godard PhD1,
  2. Bartha-Maria Knoppers PhD, LLD Professor2,
  3. Alasdair Hunter3,
  4. Neil F. Sharpe6,
  5. Michelle Mullen4,
  6. W. S. Meschino5

Published Online: 4 JAN 2006

DOI: 10.1002/0471748897.ch15

Book Title

Genetic Testing: Care, Consent, and Liability

Genetic Testing: Care, Consent, and Liability

Additional Information

How to Cite

Sharpe, N. F. and Carter, R. F. (2006) Confidentiality and Recall, in Genetic Testing: Care, Consent, and Liability, John Wiley & Sons, Inc., Hoboken, NJ, USA. doi: 10.1002/0471748897.ch15

Author Information

  1. 6

    Genetic Testing Research Group, 117 Inchbury Street, Hamilton, Ontario, Canada L8R 3B7; 1-905-529-2036; 1-905-577-6446 (fax)

  2. 7

    Department of Pathology and Molecular Medicine, McMaster University, HSC 3N15, 1200 Main Street West, Hamilton, Ontario, Canada; 1-905-521-5084; 1-905-521-2651 (fax)

  3. 8

    Genetic Services, Hamilton Health Sciences, Canada

Author Information

  1. 1

    Programmes de Bio′ethique, Universit′e de Montr′eal, Quebec, Canada

  2. 2

    Facult′e de droit, Universit′e de Montr′eal, Quebec, Canada

  3. 3

    Ottawa, Ontario, Canada K1N 5S4

  4. 4

    University of Ottawa, Ottawa Ontario, Children's Hospital of Eastern Ontario, Ontario, Canada K1H 8L1

  5. 5

    North York General Hospital, Department of Genetics, Toronto, Ontario, Canada M2K 1E1

  6. 6

    Genetic Testing Research Group, 117 Inchbury Street, Hamilton, Ontario, Canada L8R 3B7; 1-905-529-2036; 1-905-577-6446 (fax)

Publication History

  1. Published Online: 4 JAN 2006
  2. Published Print: 11 NOV 2005

ISBN Information

Print ISBN: 9780471649878

Online ISBN: 9780471748892

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Keywords:

  • autonomy;
  • beneficence;
  • confidentiality;
  • disclosure;
  • duty of care;
  • duty to warn;
  • ethics;
  • legal issues;
  • malpractice;
  • medical genetics;
  • non-maleficience;
  • privacy;
  • recontact;
  • resource limitations;
  • standard of care

Summary

Discussion involving patient and family confidentiality, a consent to disclose results, concepts of beneficence and harm, and the health care professional's duty to warn and/or recontact family members generate concern and discussion. Principles and the practical implications arising from medical, legal, and ethical viewpoints are described.

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