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Personal assistance for children and adolescents (0-18) with both physical and intellectual impairments

  • Review
  • Intervention

Authors


Abstract

Background

There is a high and increasing prevalence of impairments among children and adolescents in the West. Many countries offer personal assistance in the form of individualised support for people living in the community by a paid assistant other than a healthcare professional for at least 20 hours per week.

Objectives

To assess the effectiveness of personal assistance for children and adolescents with both physical and intellectual impairments, and the impacts of personal assistance on others, compared to other interventions.

Search methods

Electronic databases including CENTRAL, MEDLINE, EMBASE, CINAHL, PsycINFO, ERIC, Dissertation Abstracts International and a variety of specialist Swedish databases were searched from 1980 to June 2005; reference lists were checked; 345 experts, organisations, government bodies and charities were contacted in an attempt to locate relevant research.

Selection criteria

Children and adolescents with both physical and intellectual impairments (0-18 years) living in the community who require assistance to perform tasks of daily living (e.g., bathing and eating) and participate in normal activities due to permanent impairments. Controlled studies of personal assistance in which participants were prospectively assigned to study groups and in which control group outcomes were measured concurrently with intervention group outcomes were included.

Data collection and analysis

Titles and abstracts were examined by two reviewers. 130 full papers were examined. None met the inclusion criteria.

Main results

No eligible studies were found.

Authors' conclusions

Research in this field is limited, though one related review provides some evidence of the effectiveness of personal assistance for children and adolescents with intellectual impairments. When implementing new programmes, recipients could be randomly assigned to different forms of assistance. While advocates may support personal assistance for myriad reasons, this review demonstrates that further studies are required to determine which models of personal assistance are most effective and efficient for particular people.

摘要

背景

提供個人助理給有身體和智力損傷的兒童和青少年 (0 – 18歲)

西方兒童和青少年的損傷盛行率很高且盛行率持續增加中,許多國家提供個人助理,個人助理形式為:病人住在社區,但每週有20小時以上的個人化協助,這些個人助理是領有薪水的非醫療專業人員。

目標

評估提供個人助理給身體和智力損傷兒童和青少年的療效,還有個人助理對其他人的影響。

搜尋策略

搜尋以下電子資料庫:CENTRAL, MEDLINE, EMBASE, CINAHL, PsycINFO, ERIC, Dissertation Abstracts International and a variety of specialist Swedish databases from 1980 to June 2005。也檢查參考文獻;連絡345位專家,組織,政府和慈善單位以取得相關研究。

選擇標準

有永久性身體和智力損傷的兒童和青少年 (0 – 18歲) ,繼續住在社區裡,但需要協助以完成日常生活活動(洗澡和吃飯)和一般活動的參與。對照組試驗且受試者分配至不同試驗組別,對照組和試驗組在相同時間進行的結果測量。

資料收集與分析

兩個獨立檢閱者檢閱試驗標題和摘要。共檢閱130篇試驗全文。沒有任何一篇符合納入標準。

主要結論

沒有符合條件的試驗.

作者結論

本領域的研究很有限.一個相關的回顧整理提供一些關於個人助理對智力損傷兒童和青少年的療效證據.實行新方案時,受試者隨機分配接受不同形式的協助.提倡者有很多原因支持個人助理,但本回顧顯示:需要進一步的研究,以確定哪種個人助理適合哪種病人且有最大療效.

翻譯人

本摘要由成功大學附設醫院尹子真翻譯。

此翻譯計畫由臺灣國家衛生研究院 (National Health Research Institutes, Taiwan) 統籌。

總結

急需試驗以評估:是否提供個人助理給身體和智力損傷的兒童/青少年是有效的.個人助理需要提供有損傷的病人,每週20小時以上的付費協助.本回顧試驗想要比較個人助理和任何其他形式照護,對身體和智能損傷兒童/青少年的療效.文獻回顧發現沒有符合納入條件的試驗.本回顧是系列回顧的一部份.回顧不同族群的相關研究可能會對研究人員和醫療從業人員有一些助益.

Plain language summary

Studies urgently needed to assess effects of Personal Assistance for children and teens with both physical and intellectual impairments

Personal assistance is here defined as paid support of at least 20 hours per week for people with impairments. This review investigated the effectiveness of personal assistance versus any other form of care for children and adolescents with both physical and intellectual impairments. A literature search identified no studies that met the inclusion criteria. This review is part of a series of reviews; evidence from related reviews about different populations might be informative to researchers and practitioners.

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