Intervention Protocol

Methods for informing people with amyotrophic lateral sclerosis/motor neuron disease of their diagnosis

  1. Paolo Bongioanni1,*,
  2. Gian Domenico Borasio2,
  3. David Oliver3,
  4. Francesco Tramonti1,
  5. Andrea Romagnoli4,
  6. Karl P Kapitza5

Editorial Group: Cochrane Neuromuscular Disease Group

Published Online: 21 JAN 2009

DOI: 10.1002/14651858.CD007593

Database Title

Additional Information

How to Cite

Bongioanni P, Borasio GD, Oliver D, Tramonti F, Romagnoli A, Kapitza KP. Methods for informing people with amyotrophic lateral sclerosis/motor neuron disease of their diagnosis (Protocol). Cochrane Database of Systematic Reviews 2009, Issue 1. Art. No.: CD007593. DOI: 10.1002/14651858.CD007593.

Author Information

  1. 1

    University of Pisa, Neurorehabilitation Unit, Neuromuscular Disease Section, Department of Neuroscience, Pisa, Italy

  2. 2

    Munich University Hospital - Grosshadern, Head, Motor Neurone Disease Research Group, Department of Neurology, Munich, Germany

  3. 3

    Wisdom Hospice, Rochester, Kent, UK

  4. 4

    Cascina, Pisa, Italy

  5. 5

    Hannover Medical School, Department of Anaesthesiology, Pain Clinic, Hannover, Germany

*Paolo Bongioanni, Neurorehabilitation Unit, Neuromuscular Disease Section, Department of Neuroscience, University of Pisa, Via Paradisa, 2, Pisa, 56100, Italy. paolo.bongioanni@tin.it. p.bongioanni@ao-pisa.toscana.it.

Publication History

  1. Publication Status: New
  2. Published Online: 21 JAN 2009

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Abstract

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  2. Abstract

This is the protocol for a review and there is no abstract. The objectives are as follows:

The aim of this review is to examine the effects and effectiveness of different methods for informing people with ALS or MND of their diagnosis on their knowledge and understanding of their disease, its treatment and care.

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