Intervention Review

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Information provision for people with multiple sclerosis

  1. Sascha Köpke1,*,
  2. Alessandra Solari2,
  3. Fary Khan3,
  4. Christoph Heesen4,
  5. Andrea Giordano2

Editorial Group: Cochrane Multiple Sclerosis and Rare Diseases of the CNS Group

Published Online: 21 APR 2014

Assessed as up-to-date: 10 DEC 2013

DOI: 10.1002/14651858.CD008757.pub2


How to Cite

Köpke S, Solari A, Khan F, Heesen C, Giordano A. Information provision for people with multiple sclerosis. Cochrane Database of Systematic Reviews 2014, Issue 4. Art. No.: CD008757. DOI: 10.1002/14651858.CD008757.pub2.

Author Information

  1. 1

    University of Lübeck, Nursing Research Unit, Institute of Social Medicine, Lübeck, Germany

  2. 2

    Fondazione I.R.C.C.S. - Neurological Institute Carlo Besta, Neuroepidemiology Unit, Milan, Italy

  3. 3

    Royal Melbourne Hospital, Royal Park Campus, Department of Rehabilitation Medicine, Melbourne, Victoria, Australia

  4. 4

    University Medical Center, Institute of Neuroimmunology and Clinical MS Research, Hamburg, Germany

*Sascha Köpke, Nursing Research Unit, Institute of Social Medicine, University of Lübeck, Ratzeburger Allee 160, Lübeck, D-23538, Germany. sascha.koepke@uksh.de.

Publication History

  1. Publication Status: New
  2. Published Online: 21 APR 2014

SEARCH

References

References to studies included in this review

  1. References to studies included in this review
  2. References to studies excluded from this review
  3. References to studies awaiting assessment
  4. Additional references
Ennis 2006 {published data only}
  • Ennis M, Thain J, Boggild M, Baker G, Young C. A randomized controlled trial of a health promotion education programme for people with multiple sclerosis. Clinical Rehabilitation 2006;20(9):783-92.
Kasper 2008 {published data only}
Köpke 2009 {published data only}
  • Köpke S, Kasper J, Mühlhauser I, Nübling M, Heesen C. Patient education program to enhance decision autonomy in multiple sclerosis relapse management: a randomized-controlled trial. Multiple Sclerosis 2009;15(1):96-104.
Köpke 2013 {published data only}
  • Köpke S, Kern S, Ziemssen T, Berghoff M, Kleiter I, Marziniak M, et al. Evidence-based patient information programme in early multiple sclerosis: a randomised controlled trial. Journal of Neurology, Neurosurgery, and Psychiatry 2013 Oct 8 [Epub ahead of print].
Kos 2007 {published data only}
  • Kos D, Duportail M, D'hooghe M, Nagels G, Kerckhofs E. Multidisciplinary fatigue management programme in multiple sclerosis: a randomized clinical trial. Multiple Sclerosis 2007;13(8):996-1003.
O´Hara 2002 {published data only}
  • O'Hara L, Cadbury H, De Souza L, Ide L. Evaluation of the effectiveness of professionally guided self-care for people with multiple sclerosis living in the community: a randomized controlled trial. Clinical Rehabilitation 2002;16(2):119-28.
Prunty 2008 {published data only}
Shinto 2008 {published data only}
  • Shinto L, Calabrese C, Morris C, Yadav V, Griffith D, Frank R, et al. A randomized pilot study of naturopathic medicine in multiple sclerosis. Journal of Alternative and Complementary Medicine 2008;14(5):489-96.
Solari 2010 {published data only}
  • Solari A, Martinelli V, Trojano M, Lugaresi A, Granella F, Giordano A, et al. An information aid for newly diagnosed multiple sclerosis patients improves disease knowledge and satisfaction with care. Multiple Sclerosis 2010;16(11):1393-405.
Young 1986 {published data only}
  • Young FK, Brooks BR. Patient teaching manuals improve retention of treatment information--a controlled clinical trial in multiple sclerosis. Journal of Neuroscience Nursing 1986;18(1):26-8.

References to studies excluded from this review

  1. References to studies included in this review
  2. References to studies excluded from this review
  3. References to studies awaiting assessment
  4. Additional references
Berger 2005 {published data only}
  • Berger BA, Liang H, Hudmon KS. Evaluation of software-based telephone counseling to enhance medication persistency among patients with multiple sclerosis. Journal of the American Pharmaceutical Association 2005;45(4):466-72.
Bombardier 2008 {published data only}
  • Bombardier CH, Cunniffe M, Wadhwani R, Gibbons LE, Blake KD, Kraft GH. The efficacy of telephone counseling for Health Promotion in people with Multiple Sclerosis: a randomized controlled trial. Archives of Physical Medicine and Rehabilitation 2008;89:1849-56.
Bombardier 2013 {published data only}
  • Bombardier CH, Ehde DM, Gibbons LE, Wadhwani R, Sullivan MD, Rosenberg DE, et al. Telephone-based physical activity counseling for major depression in people with multiple sclerosis. Journal of Consulting and Clinical Psychology 2013;81(1):89-99.
Burgess 2012 {published data only}
  • Burgess M, Andiappan M, Chalder T. Cognitive behaviour therapy for chronic fatigue syndrome in adults: face to face versus telephone treatment: a randomized controlled trial. Behavioural and Cognitive Psychotherapy 2012;40(2):175-91.
Christopherson 2006 {published data only}
Cosio 2011 {published data only}
  • Cosio D, Jin L, Siddique J, Mohr DC. The effect of telephone-administered cognitive-behavioral therapy on quality of life among patients with multiple sclerosis. Annals of Behavioral Medicine 2011;41(2):227-34.
Dlugonski 2012 {published data only}
  • Dlugonski D, Motl RW, Mohr DC, Sandroff BM. Internet-delivered behavioral intervention to increase physical activity in persons with multiple sclerosis: sustainability and secondary outcomes. Psychology, Health & Medicine 2012;17(6):636-51.
Finlayson 2011 {published data only}
  • Finlayson M, Preissner K, Cho C, Plow M. Randomized trial of a teleconference-delivered fatigue management program for people with multiple sclerosis. Multiple Sclerosis 2011;17(9):1130-40.
Forman 2010 {published data only}
  • Forman AC, Lincoln NB. Evaluation of an adjustment group for people with multiple sclerosis: a pilot randomized controlled trial. Clinical Rehabilitation 2010;24(3):211-21.
Garber 2002 {published data only}
  • Garber SL, Rintala DH, Holmes SA, Rodriguez GP, Friedman J. A structured educational model to improve pressure ulcer prevention knowledge in veterans with spinal cord dysfunction. Journal of Rehabilitation Research and Development 2002;39:575-88.
Ghahari 2010 {published data only}
  • Ghahari S, Leigh Packer T, Passmore AE. Effectiveness of an online fatigue self-management programme for people with chronic neurological conditions: a randomized controlled trial. Clinical Rehabilitation 2010;24(8):727-44.
Hill 2012 {published data only}
  • Hill S, Filippini G, Synnot A, Summers M, Beecher D, Colombo C, et al. Presenting evidence-based health information for people with multiple sclerosis: the IN-DEEP project protocol. BMC Medical Informatics and Decision Making 2012;12:1-8.
Mattioli 2012 {published data only}
  • Mattioli F, Stampatori C, Scarpazza C, Parrinello G, Capra R. Persistence of the effects of attention and executive functions intensive rehabilitation in relapsing remitting multiple sclerosis. Multiple Sclerosis and Related Disorders 2012;1(4):168-73.
McAuley 2007 {published data only}
  • McAuley E, Motl RW, Morris KS, Hu L, Doerksen SE, Elavsky S, et al. Enhancing physical activity adherence and well-being in multiple sclerosis: a randomised controlled trial. Multiple Sclerosis 2007;13(5):652-9.
McClurg 2011 {published data only}
  • McClurg D, Hagen S, Hawkins S, Lowe-Strong A. Abdominal massage for the alleviation of constipation symptoms in people with multiple sclerosis: a randomized controlled feasibility study. Multiple Sclerosis 2011;17(2):223-33.
Miller 2011 {published data only}
  • Miller DM, Moore SM, Fox RJ, Atreja A, Fu AZ, Lee JC, et al. Web-based self-management for patients with multiple sclerosis: a practical, randomized trial. Telemedicine Journal and e-Health 2011;17(1):5-13.
Möller 2010 {unpublished data only}
  • Möller H, Deppe R, Faiss J, Faiss JH, Hoffmann F, Klauer T, et al. [Psychoedukatives Bewältigungstraining für Patienten mit Multipler Sklerose (MS): Entwicklung und Evaluation]. Proceedings of the Deutsche Gesellschaft für Neurologie; 2010 Dec 10-12. Rostock-Warnemünde, 2010.
Moss-Morris 2012 {published data only}
  • Moss-Morris R, McCrone P, Yardley L, van Kessel K, Wills G, Dennison L. A pilot randomised controlled trial of an Internet-based cognitive behavioural therapy self-management programme (MS Invigor8) for multiple sclerosis fatigue. Behaviour Research and Therapy 2012;50(6):415-21.
Rigby 2008 {published data only}
Ward 2004 {published data only}
  • Ward CD, Turpin G, Dewey ME, Fleming S, Hurwitz B, Ratib S, et al. Education for people with progressive neurological conditions can have negative effects: evidence from a randomized controlled trial. Clinical Rehabilitation 2004;18:717-25.
Wassem 2003 {published data only}
  • Wassem R, Dudley W. Symptom management and adjustment of patients with multiple sclerosis: a 4-year longitudinal intervention study. Clinical Nursing Research 2003;12(1):102-17.

References to studies awaiting assessment

  1. References to studies included in this review
  2. References to studies excluded from this review
  3. References to studies awaiting assessment
  4. Additional references
Rotstein 2012 {published data only}
  • Rotstein D, Evans M, Hohol M, O'Connor P. A randomized, controlled trial of an educational intervention for MS patients concerning CCSVI. Neurology 2012;78(Meeting Abstracts 1):P05.128.

Additional references

  1. References to studies included in this review
  2. References to studies excluded from this review
  3. References to studies awaiting assessment
  4. Additional references
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