Intervention Review

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Interventions for supporting parents’ decisions about autopsy after stillbirth

  1. Dell Horey1,*,
  2. Vicki Flenady2,
  3. Alexander EP Heazell3,
  4. Teck Yee Khong4

Editorial Group: Cochrane Pregnancy and Childbirth Group

Published Online: 28 FEB 2013

DOI: 10.1002/14651858.CD009932.pub2


How to Cite

Horey D, Flenady V, Heazell AEP, Khong TY. Interventions for supporting parents’ decisions about autopsy after stillbirth. Cochrane Database of Systematic Reviews 2013, Issue 2. Art. No.: CD009932. DOI: 10.1002/14651858.CD009932.pub2.

Author Information

  1. 1

    La Trobe University, Faculty of Health Sciences, Bundoora, VIC, Australia

  2. 2

    Mater Health Services, Translating Research Into Practice (TRIP) Centre - Mater Medical Research Institute, Woolloongabba, Queensland, Australia

  3. 3

    University of Manchester, Maternal and Fetal Health Research Centre, Manchester, UK

  4. 4

    Women's and Children's Hospital, SA Pathology, Adelaide, South Australia, Australia

*Dell Horey, Faculty of Health Sciences, La Trobe University, Bundoora, VIC, 3086, Australia. d.horey@latrobe.edu.au.

Publication History

  1. Publication Status: New
  2. Published Online: 28 FEB 2013

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References

References to studies excluded from this review

  1. References to studies excluded from this review
  2. Additional references
  3. References to other published versions of this review
Breeze 2012 {published data only}
Rowland 2009 {published data only}
Stock 2010 {published data only}
  • Stock SJ,  Goldsmith L,  Evans MJ, Laing IA. Interventions to improve rates of post-mortem examination after stillbirth. European Journal of Obstetrics, Gynecology, & Reproductive Biology 2010;153(2):148-50.

Additional references

  1. References to studies excluded from this review
  2. Additional references
  3. References to other published versions of this review
Adappa 2007
AHMAC 2002
  • AHMAC Subcommittee on Autopsy Practice. The National Code of Ethical Autopsy Practice. Adelaide: South Australia Department of Human Services, 5 April 2002.
Bekker 1999
  • Bekker H,  Thornton J,  Airey M, Connelly JB, Hewison J, Robinson MB, et al. Informed decision-making: an annotated bibliography and systematic review. Health Technology Assessment 1999;3(1):1-156.
Bekker 2010
  • Bekker HL. The loss of reason in patient decision aid research: Do checklists damage the quality of informed choice interventions?. Patient Education and Counseling 2010;78(3):357-64.
Bhutta 2011
Brabin 1995
  • Brabin PJ, Berah EF. Dredging up past traumas: harmful or helpful?. Psychiatry, Psychology and Law 1995;2(2):165-71.
Brodlie 2002
Cacciatore 2007
  • Cacciatore J, Bushfield S. Stillbirth: the mother's experience and implications for improving care. Journal of Social Work in End-Of-Life & Palliative Care 2007;3(3):59-79.
Cacciatore 2009
Cartlidge 1995
Davis 1996
Dickinson 2011
Durand 2008
  • Durand MA,  Stiel M,  Boivin J,  Elwyn G. Where is the theory? Evaluating the theoretical frameworks described in decision support technologies. Patient Education and Counseling 2008;71(1):125-35.
Egger 1997
Elwyn 2009
Elwyn 2010
Elwyn 2011
Flenady 2009
  • Flenady V, Silver RM, Incerpi M, Fretts RC, Pattinson R, Jaap Erwich J, et al. Essential diagnostic workup of stillbirths. In: Facchinetti F, et al. editor(s). Stillbirth: Understanding and Management. London: Informa Healthcare, 2009.
Flenady 2011a
Flenady 2011b
  • Flenady V, Koopmans L, Middleton P, Frøen JF, Smith GC, Gibbons K, et al. Major risk factors for stillbirth in high-income countries: a systematic review and meta-analysis. Lancet 2011;377(9774):1331-40.
Frøen 2011
Gold 2007
Goldenberg 2011
Gordijin 2002
Gordijin 2007
  • Gordijn SJ, Erwich JJHM, Khong TY. The perinatal autopsy: pertinent issues in multicultural Western Europe. European Journal of Obstetrics, Gynecology, and Reproductive Biology 2007;32(1):3-7.
Harbord 2006
Heazell 2012
  • Heazell A, McLaughlin, MJ, Schmidt EB, Cox P, Flenady V, Khong T, et al. A difficult conversation? The views and experiences of parents and professionals on the consent process for perinatal postmortem after stillbirth. BJOG: an international journal of obstetrics & gynaecology 2012;119(8):987–97.
Higgins 2011
  • Higgins JPT, Green S, editors. Cochrane Handbook for Systematic Reviews of Interventions Version 5.1.0 [updated March 2011]. The Cochrane Collaboration, 2011. Available from www.cochrane-handbook.org. Available from www.cochrane-handbook.org.
Hull 2007
Hunt 2009
  • Hunt K,  France E,  Ziebland S, Field K, Wyke S. ‘My brain couldn’t move from planning a birth to planning a funeral’: A qualitative study of parents’ experiences of decisions after ending a pregnancy for fetal abnormality. International Journal of Nursing Studies 2009;46(8):1111-21.
Khong 1997
Khong 2002
Khong 2006
Lawn 2009
  • Lawn JE, Kinney M, Lee ACC, Chopra M, Donnay F, Paul VK, et al. Reducing intrapartum-related deaths and disability: Can the health system deliver?. International Journal of Gynecology and Obstetrics 2009;107:S123–S142.
Lawn 2011
Lishimpi 2001
  • Lishimpi K, Chintu C, Lucas S, Mudenda V, Kaluwaji J, Story A, et al. Necropsies in African children: consent dilemmas for parents and guardians. Archives of Disease in Childhood 2001;84(6):463–7.
McHaffie 2001
Michalski 2002
O'Connor 1995
Oluwasola 2009
  • Oluwasola OA, Fawole OI, Otegbayo AJ, Ogun GO, Adebamowo CA, Bamigboye AE. The autopsy: knowledge, attitude, and perceptions of doctors and relatives of the deceased. Archives of Pathology and Laboratory Medicine 2009;133(1):78-82.
Oppewal 2001
Pattinson 2011
Rankin 2002
RCPAAWP 2004
  • Royal College of Pathologists of Australasia Autopsy Working Party. The decline of the hospital autopsy: a safety and quality issue for healthcare in Australia. Medical Journal of Australia 2004;180(6):281-5.
Revman 2011 [Computer program]
  • The Nordic Cochrane Centre, The Cochrane Collaboration. Review Manager (RevMan). Version 5.1. Copenhagen: The Nordic Cochrane Centre, The Cochrane Collaboration, 2011.
Rose 2006
  • Rose C, Evans M, Tooley J. Falling rates of perinatal postmortem examination: are we to blame?. Archives of Disease in Childhood Fetal and Neonatal Edition 2006;91:F465.
Samuelsson 2001
Smith 2007
Stacey 2009
  • Stacey D, Bennett CL, Barry MJ, Col NF, Eden KB, Holmes-RovnerM, et al. Decision aids for people facing health treatment or screening decisions. Cochrane Database of Systematic Reviews 2009, Issue 3. [DOI: 10.1002/14651858.CD001431.pub2]
Säflund 2004
Wagner 2005
  • Wagner CL, Goldstein M, Conradi SE. Changing a diagnosis: the importance of neonatal autopsy. Journal of Perinatology 2005;25(1):69-71.

References to other published versions of this review

  1. References to studies excluded from this review
  2. Additional references
  3. References to other published versions of this review
Horey 2012
  • Horey D, Flenady V, Heazell AEP, Khong TY. Interventions for supporting parents' decisions about autopsy after stillbirth. Cochrane Database of Systematic Reviews 2012, Issue 6. [DOI: 10.1002/14651858.CD009932]