Ethics and Evidence
Published Online: 15 SEP 2006
Copyright © 2001 John Wiley & Sons, Ltd. All rights reserved.
How to Cite
Hallowell, N. 2006. Ethics and Evidence. eLS. .
- Published Online: 15 SEP 2006
This is not the most recent version of the article. View current version (15 MAR 2013)
The familial nature of genetic information raises issues about patient confidentiality and the legitimacy of disclosure to biological kin. Ethical arguments center on the right to privacy versus the right to obtain knowledge about oneself. Empirical research suggests that, although the need for disclosure within the family is not contested, the practice of disclosing information to particular relatives is experienced as being ethically contentious.
- BRCA1/BRCA2 testing;