Chapter 10. Building a Culture of Participation: Young People's Involvement in Research

  1. Dr Daniel Kelly1 and
  2. Dr Faith Gibson2
  1. Faith Gibson

Published Online: 16 APR 2008

DOI: 10.1002/9780470697740.ch10

Cancer Care for Adolescents and Young Adults

Cancer Care for Adolescents and Young Adults

How to Cite

Gibson, F. (2008) Building a Culture of Participation: Young People's Involvement in Research, in Cancer Care for Adolescents and Young Adults (eds D. Kelly and F. Gibson), Blackwell Publishing Ltd, Oxford, UK. doi: 10.1002/9780470697740.ch10

Editor Information

  1. 1

    Reader in Cancer and Palliative Care, School of Health and Social Science, Middlesex University, London

  2. 2

    Senior Lecturer in Children's Cancer Nursing Research, UCL Institute of Child Healthand Great Ormond Street Hospital for Children NHS Trust, London

Publication History

  1. Published Online: 16 APR 2008
  2. Published Print: 1 JAN 2008

ISBN Information

Print ISBN: 9781405130943

Online ISBN: 9780470697740

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Keywords:

  • participation;
  • healthcare professionals;
  • organisations;
  • treatment decisions;
  • patient-centred care

Summary

This chapter contains section titled:

  • Setting the scene

  • Drivers towards increased participation of young people

  • Why participation is important

  • Levels of participation

  • Young people as partners in research

  • Methodologies used to facilitate participation in research

  • Evaluating participation

  • Conclusion

  • References