Chapter 2. Background to the Study on Children with SCID and Their Families

  1. Peter S. Vickers Cert.Ed., Dip C.D., SRN, RSCN, BA, PhD, FHEA Visiting Fellow in Child Health and Immunology

Published Online: 4 MAR 2009

DOI: 10.1002/9780470745571.ch2

Severe Combined Immune Deficiency: Early Hospitalisation and Isolation

Severe Combined Immune Deficiency: Early Hospitalisation and Isolation

How to Cite

Vickers, P. S. (2008) Background to the Study on Children with SCID and Their Families, in Severe Combined Immune Deficiency: Early Hospitalisation and Isolation, Wiley-Blackwell, Oxford, UK. doi: 10.1002/9780470745571.ch2

Author Information

  1. School of Nursing and Midwifery, The University of Hertfordshire, UK

Publication History

  1. Published Online: 4 MAR 2009
  2. Published Print: 12 DEC 2008

ISBN Information

Print ISBN: 9780470319864

Online ISBN: 9780470745571

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Keywords:

  • severe combined immunodeficiency syndrome (SCID);
  • ‘Quality of life - subjective global characterisation;
  • elements of individual growth and development;
  • measuring quality of life;
  • SCID (Vickers 1999b) study;
  • quantitative quality of life tools;
  • parameters of quality of life;
  • reference groups;
  • data collection strategies

Summary

This chapter contains sections titled:

  • Introduction

  • Quality of Life Issues: Previous and Present Considerations

  • Elements Involved in Quality of Life

  • Measuring Quality of Life

  • Quantitative Quality of Life Tools

  • Qualitative Quality of Life Data Collection Tools

  • The SCID (Vickers 1999b) Study

  • Methods of Investigation

  • Quantitative and Qualitative Research: Reasons for the Use of Both Methods in This Study

  • Parameters of Quality of Life Used in This Study

  • The Children Involved in the Study

  • Reference Groups

  • Methods of Data Collection

  • Hospitals Involved in the Study

  • Results from the Study

  • Conclusion