3. Services for People with Young Onset Dementia

  1. Hugo de Waal MD, FRCPsych, FHEA2,
  2. Constantine Lyketsos MD, MHS3,
  3. David Ames BA, MD, FRCPsych, FRANZCP4 and
  4. John O'Brien BA, BM BCh, MA, FRCPsych, MD5
  1. Raymond T.C.M. Koopmans and
  2. Denise Thompson

Published Online: 7 JUL 2013

DOI: 10.1002/9781118378663.ch3

Designing and Delivering Dementia Services

Designing and Delivering Dementia Services

How to Cite

Koopmans, R. T.C.M. and Thompson, D. (2013) Services for People with Young Onset Dementia, in Designing and Delivering Dementia Services (eds H. de Waal, C. Lyketsos, D. Ames and J. O'Brien), John Wiley & Sons, Ltd, Oxford, UK. doi: 10.1002/9781118378663.ch3

Editor Information

  1. 2

    Lead Consultant, Norfolk Dementia Care Academy, Norwich, UK

  2. 3

    Associate Postgraduate Dean, East of England Deanery, Cambridge, UK

  3. 4

    Elizabeth Plank Althouse Professor, Director of the Johns Hopkins Memory and Alzheimer's Treatment Center, Johns Hopkins Medicine, Maryland, USA

  4. 5

    Director, National Ageing Research Institute, University of Melbourne Professor of Ageing and Health, Victoria, Australia

Author Information

  1. Department of Primary and Community Care, Centre for Family Medicine, Geriatric Care and Public Health, Radboud University Nijmegen, Medical Centre, The Netherlands

Publication History

  1. Published Online: 7 JUL 2013

ISBN Information

Print ISBN: 9781119953494

Online ISBN: 9781118378663



  • Young Onset dementia;
  • early onset dementia;
  • presenile dementia;
  • integrated services for younger people with dementia;
  • international overview of services;
  • specialised services for younger people with dementia


Young Onset Dementia (YOD) refers to the onset of dementia before the age of 65. A recent WHO report estimates that the proportion of YOD of all people with dementia may be as high as 6–9%. Because YOD can differ strongly from late onset dementia in aetiology and course of disease, people with YOD and their caregivers have specific needs and therefore need different services, specifically tailored to their preferences and changing cognitive, psychological and social abilities. This chapter gives an overview of what is necessary for good service delivery for people with YOD and addresses issues like timely diagnosis, the need for information, the specific issues regarding (young) children, employment, the role of informal carers, the need for integrated multidisciplinary collaborative care and services like respite care. The chapter ends with international perspectives from seven countries and how these developed specialised services for people with YOD.