34. Caregivers of Long-Term Survivors

  1. Bipin N Savani MD
  1. Elizabeth Wulff-Burchfield

Published Online: 6 SEP 2013

DOI: 10.1002/9781118473306.ch34

Blood and Marrow Transplantation Long-Term Management: Prevention and Complications

Blood and Marrow Transplantation Long-Term Management: Prevention and Complications

How to Cite

Wulff-Burchfield, E. (2013) Caregivers of Long-Term Survivors, in Blood and Marrow Transplantation Long-Term Management: Prevention and Complications (ed B. N. Savani), John Wiley & Sons, Ltd, Oxford, UK. doi: 10.1002/9781118473306.ch34

Editor Information

  1. Professor of Medicine,Director, Long Term Transplant Clinic, Hematology and Stem Cell Transplantation Section, Vanderbilt University Medical Center, Nashville, TN, USA

Author Information

  1. Division of Hematology/Oncology, Department of Medicine, Vanderbilt University Hospital, Nashville, TN, USA

Publication History

  1. Published Online: 6 SEP 2013
  2. Published Print: 1 OCT 2013

ISBN Information

Print ISBN: 9781118473405

Online ISBN: 9781118473306

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Keywords:

  • allogeneic hematopoietic stem cell transplantation;
  • caregiver;
  • distress;
  • burden;
  • quality of life

Summary

Hematopoietic stem cell transplantation (HSCT) is a unique and demanding process with notable morbidity for both the transplant recipient and their caregiver. These caregivers frequently experience distress, as manifested in physical and mental symptoms, as well as strain to their marital relationships, family roles, and finances. Female caregivers experience more frequent and severe psychological symptoms, although the nature of this gender-based difference is unclear. There are multiple assessment tools that can gauge the mental state and health of these caregivers, and, while it has not been demonstrated to date, caregiver distress is strongly suspected to impact HSCT patient health and outcomes.