10. Ethical, Legal, and Social Issues in Dementia

  1. Joseph F. Quinn MD
  1. Amy Y. Tsou1 and
  2. Jason Karlawish2

Published Online: 25 OCT 2013

DOI: 10.1002/9781118656082.ch10

Dementia

Dementia

How to Cite

Quinn, J. F. (2013) Ethical, Legal, and Social Issues in Dementia, in Dementia, John Wiley & Sons Ltd, Oxford. doi: 10.1002/9781118656082.ch10

Author Information

  1. Department of Neurology, Oregon Health and Science University, Portland VA Medical Center, Portland, OR, USA

Author Information

  1. 1

    Department of Neurology, Perelman School of Medicine at the University of Pennsylvania, USA

  2. 2

    Departments of Medicine and Medical Ethics, Perelman School of Medicine at the University of Pennsylvania, USA

Publication History

  1. Published Online: 25 OCT 2013
  2. Published Print: 13 NOV 2013

ISBN Information

Print ISBN: 9780470674246

Online ISBN: 9781118656082

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Keywords:

  • dementia;
  • ethics;
  • decision-making;
  • capacity;
  • surrogate decision making;
  • competence;
  • substituted judgment;
  • research ethics;
  • advance directives;
  • driving;
  • elder abuse;
  • caregiver burden

Summary

We discuss distinctive ethical, legal, and social challenges for clinicians caring for patients with dementia. We review how to assess patient decision-making capacity and distinguish between various approaches to surrogate decision-making such as substituted judgment, the best interests standard and the substituted interests model. We offer guidance on several practical issues dementia clinicians may face including: participation in research, advance directives, driving, voting, screening for elder abuse and caring for caregivers.