12. End-of-Life Care for Children with Special Needs and their Families

  1. Linda L. Eddy
  1. Janet A. Lohan

Published Online: 20 SEP 2013

DOI: 10.1002/9781118783290.ch12

Caring for Children with Special Healthcare Needs and their Families

Caring for Children with Special Healthcare Needs and their Families

How to Cite

Lohan, J. A. (2013) End-of-Life Care for Children with Special Needs and their Families, in Caring for Children with Special Healthcare Needs and their Families (ed L. L. Eddy), John Wiley & Sons, Inc., West Sussex, UK. doi: 10.1002/9781118783290.ch12

Publication History

  1. Published Online: 20 SEP 2013
  2. Published Print: 12 APR 2013

ISBN Information

Print ISBN: 9780813820828

Online ISBN: 9781118783290

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Keywords:

  • caregivers;
  • crisis intervention;
  • death;
  • end-of-life care;
  • families;
  • children

Summary

Children are actively engaged in making sense of who they are and how the world works from birth. This is true of all children, though children with special needs may have additional challenges as they cope with sensory deficits, mobility difficulties, communication problems, or developmental delays as they learn to relate to the world. In order to understand how children may comprehend the idea that living things (including people) die, it is necessary to understand developmental concepts about children's cognition and the way that young children make sense of the world in general. The caregiver of a child with special needs has multiple roles in caring and supporting the family and surviving children after a death. The caregiver must care for him- or herself first, so that he or she has the emotional strength and resources to support the family and child during their grief.