9. Enhancing Quality of Life for Children with Special Healthcare Needs

  1. Linda L. Eddy
  1. Linda L. Eddy

Published Online: 20 SEP 2013

DOI: 10.1002/9781118783290.ch9

Caring for Children with Special Healthcare Needs and their Families

Caring for Children with Special Healthcare Needs and their Families

How to Cite

Eddy, L. L. (2013) Enhancing Quality of Life for Children with Special Healthcare Needs, in Caring for Children with Special Healthcare Needs and their Families (ed L. L. Eddy), John Wiley & Sons, Inc., West Sussex, UK. doi: 10.1002/9781118783290.ch9

Publication History

  1. Published Online: 20 SEP 2013
  2. Published Print: 12 APR 2013

ISBN Information

Print ISBN: 9780813820828

Online ISBN: 9781118783290

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Keywords:

  • disabled children;
  • Fatigue;
  • pain assessment;
  • quality of life (QOL);
  • special healthcare needs

Summary

This chapter incorporates current research to identify issues of health-related quality of life in children with disabilities and to offer suggestions to overcome some of the negative impacts of chronic health problems on children and adolescents. It examines both pain and fatigue as examples of symptoms that are related to decreased quality of life (QOL) generally, and how they relate to children with special healthcare needs specifically. It is important to consider cultural factors in pain assessment and management. Culture influences how pain is expressed, how much complaining is okay, and who is responsible for pain relief. The resources section at the end of the chapter offers ideas and examples of appropriate pain assessment tools.