3. Comprehensive Care Model in Hemophilia

  1. Emérito-Carlos Rodríguez-Merchán MD, PHD2,3 and
  2. Leonard A. Valentino MD4
  1. Prasad Mathew MB, BS, DCH, FAAP

Published Online: 12 MAY 2011

DOI: 10.1002/9781119979401.ch3

Current and Future Issues in Hemophilia Care

Current and Future Issues in Hemophilia Care

How to Cite

Mathew, P. (2011) Comprehensive Care Model in Hemophilia, in Current and Future Issues in Hemophilia Care (eds E.-C. Rodríguez-Merchán and L. A. Valentino), Wiley-Blackwell, Oxford, UK. doi: 10.1002/9781119979401.ch3

Editor Information

  1. 2

    Department of Orthopedic Surgery and Hemophilia Unit, La Paz University Hospital, Spain

  2. 3

    School of Medicine, Autonomous University, Madrid, Spain

  3. 4

    Hemophilia and Thrombophilia Center, Rush University Medical Center, Chicago, IL, USA

Author Information

  1. University of New Mexico, Albuquerque, NM, USA

Publication History

  1. Published Online: 12 MAY 2011
  2. Published Print: 13 MAY 2011

ISBN Information

Print ISBN: 9780470670576

Online ISBN: 9781119979401

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Keywords:

  • hemophilia;
  • comprehensive care;
  • National Hemophilia Foundation;
  • CDC;
  • HTC;
  • bleeding disorders

Summary

The backbone of hemophilia management is comprehensive care, a goal that about 140 federally-supported treatment centers in the United States provide. An idea that originated in 1973, these centers strive to enhance the quality of life and longevity of patients with bleeding disorders in a way no other models of care can provide, meeting the medical and psychosocial aspects of these patients in a setting that encourages, empowers and advocates for the needs of each individual patient and their families, while providing state of the art care. Despite ongoing challenges and difficulties, the future of these patients remains bright for those cared for in comprehensive care centers.