8. The Transition of Care for the Young Adult Hemophilia Patient

  1. Emérito-Carlos Rodríguez-Merchán MD, PHD2,3 and
  2. Leonard A. Valentino MD4
  1. Pia Petrini MD

Published Online: 12 MAY 2011

DOI: 10.1002/9781119979401.ch8

Current and Future Issues in Hemophilia Care

Current and Future Issues in Hemophilia Care

How to Cite

Petrini, P. (2011) The Transition of Care for the Young Adult Hemophilia Patient, in Current and Future Issues in Hemophilia Care (eds E.-C. Rodríguez-Merchán and L. A. Valentino), Wiley-Blackwell, Oxford, UK. doi: 10.1002/9781119979401.ch8

Editor Information

  1. 2

    Department of Orthopedic Surgery and Hemophilia Unit, La Paz University Hospital, Spain

  2. 3

    School of Medicine, Autonomous University, Madrid, Spain

  3. 4

    Hemophilia and Thrombophilia Center, Rush University Medical Center, Chicago, IL, USA

Author Information

  1. Karolinska University Hospital, Stockholm, Sweden

Publication History

  1. Published Online: 12 MAY 2011
  2. Published Print: 13 MAY 2011

ISBN Information

Print ISBN: 9780470670576

Online ISBN: 9781119979401



  • adolescent;
  • transition;
  • hemophilia;
  • puberty;
  • self-management;
  • compliance


Adolescence is a time of rapid physical, social and cognitive development that occurs during the transition from childhood to adulthood, usually between the ages of 10 and 24 years. This is a challenging time for any teenager and even more so for those with a chronic disease like hemophilia.

Arranging efficient and caring transfer for adolescents from pediatric to adult care is one of the great challenges facing pediatrics.

Young people should be helped to take responsibility for medications from as early an age as possible. Transition programs are necessary even when pediatric and adult services are in the same hospital, as geographical closeness often does not translate into a close professional relationship. There are several ways of effecting this transfer of care. None of them is proven to be better than any other, but the transfer should always be planned and expected by the patient and the parents. Future research in the field will help us continue high standard of care during adolescence.