Chapter 2. Quality of Life: People with Profound Intellectual and Multiple Disabilities

  1. Jillian Pawlyn BA (Hons), PGCE, RNLD Specialist Practitioner Lecturer2,3 and
  2. Steven Carnaby BSc. (Hons), MSc., Ph.D., D. Clin. Psy., C. Psychol., ILTM Consultant Lead Clinical Psychologist4
  1. Katja Petry and
  2. Bea Maes

Published Online: 17 FEB 2009

DOI: 10.1002/9781444301526.ch2

Profound Intellectual and Multiple Disabilities: Nursing Complex Needs

Profound Intellectual and Multiple Disabilities: Nursing Complex Needs

How to Cite

Petry, K. and Maes, B. (2009) Quality of Life: People with Profound Intellectual and Multiple Disabilities, in Profound Intellectual and Multiple Disabilities: Nursing Complex Needs (eds J. Pawlyn and S. Carnaby), Wiley-Blackwell, Oxford, UK. doi: 10.1002/9781444301526.ch2

Editor Information

  1. 2

    Community Learning Disabilities Nursing, ENB 978, UK

  2. 3

    Ridgeway Partnership NHS Trust, Slade, House, Horspath Driftway, Headington, Oxford OX3 7JH, UK

  3. 4

    Westminster Learning Disability Partnership, 215 Lisson Grove, London, NW8 8LW, UK

Author Information

  1. Centre for Disability, Special Needs Education and Child Care, K.U. Leuven, Vesaliusstraat 2, 3000 Leuven, Belgium, UK

Publication History

  1. Published Online: 17 FEB 2009
  2. Published Print: 5 DEC 2008

ISBN Information

Print ISBN: 9781405151702

Online ISBN: 9781444301526

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Keywords:

  • profound intellectual and multiple disabilities (PIMD) and quality of life (QOL) concept;
  • understanding of measurement of QOL of people with PIMD;
  • efforts to measure QOL - rapidly increasing;
  • QOL measurement - as people are best understood within the context of their environment;
  • Why QOL is measured;
  • person-centred planning - acknowledged in supporting people with PIMD;
  • measuring QOL of the target group – a difficult challenge;
  • ‘what’ to measure - the need for specific operationalisation of QOL

Summary

This chapter contains sections titled:

  • Introduction

  • Learning objectives

  • What to measure?

  • How to measure?

  • Who should be involved?

  • Where to measure?

  • Why measure QOL?

  • Conclusion

  • References