Chapter 2. Quality of Life: People with Profound Intellectual and Multiple Disabilities
- Jillian Pawlyn BA (Hons), PGCE, RNLD Specialist Practitioner Lecturer2,3 and
- Steven Carnaby BSc. (Hons), MSc., Ph.D., D. Clin. Psy., C. Psychol., ILTM Consultant Lead Clinical Psychologist4
Published Online: 17 FEB 2009
Copyright © 2009 Blackwell Publishing Ltd
Profound Intellectual and Multiple Disabilities: Nursing Complex Needs
How to Cite
Petry, K. and Maes, B. (2009) Quality of Life: People with Profound Intellectual and Multiple Disabilities, in Profound Intellectual and Multiple Disabilities: Nursing Complex Needs (eds J. Pawlyn and S. Carnaby), Wiley-Blackwell, Oxford, UK. doi: 10.1002/9781444301526.ch2
Community Learning Disabilities Nursing, ENB 978, UK
Ridgeway Partnership NHS Trust, Slade, House, Horspath Driftway, Headington, Oxford OX3 7JH, UK
Westminster Learning Disability Partnership, 215 Lisson Grove, London, NW8 8LW, UK
- Published Online: 17 FEB 2009
- Published Print: 5 DEC 2008
Print ISBN: 9781405151702
Online ISBN: 9781444301526
- profound intellectual and multiple disabilities (PIMD) and quality of life (QOL) concept;
- understanding of measurement of QOL of people with PIMD;
- efforts to measure QOL - rapidly increasing;
- QOL measurement - as people are best understood within the context of their environment;
- Why QOL is measured;
- person-centred planning - acknowledged in supporting people with PIMD;
- measuring QOL of the target group – a difficult challenge;
- ‘what’ to measure - the need for specific operationalisation of QOL
This chapter contains sections titled:
What to measure?
How to measure?
Who should be involved?
Where to measure?
Why measure QOL?