1. Sharing Data with your Patient

  1. Mohammad Al-Ubaydli MD

Published Online: 8 MAR 2011

DOI: 10.1002/9781444323917.ch1

Personal Health Records: A Guide for Clinicians

Personal Health Records: A Guide for Clinicians

How to Cite

Al-Ubaydli, M. (2011) Sharing Data with your Patient, in Personal Health Records: A Guide for Clinicians, Wiley-Blackwell, Oxford, UK. doi: 10.1002/9781444323917.ch1

Author Information

  1. University College London, London, UK

Publication History

  1. Published Online: 8 MAR 2011
  2. Published Print: 30 APR 2011

ISBN Information

Print ISBN: 9781444332520

Online ISBN: 9781444323917



  • doctors, and sharing data with patients;
  • UCL Medical School, teaching classes “Wiki Medicine” - students creation of a wiki of medical information, for patients to understand illness;
  • Dr. Hannan's Houghton Thornley Medical Centre's website - giving patients access to all medical notes;
  • Hannan, and importance - for recording access to clinical care;
  • Vanderbilt University Medical Center - patient portal, Dr. Jim Jirjis, physician and VUMC's Chief Medical Information Officer;
  • Jirjis, encouraging patients - to sign up, safest thing to do;
  • Vanderbilt Medical Center, clinical teams - tests into three groups of “information toxicity”;
  • patient-friendly health care encyclopedias - availability of tools designed for clinicians;
  • sites, PatientsLikeMe, superimposing data entered by patients - about symptoms, test results and treatments;
  • patients, possessing data - traditionally not captured


This chapter contains sections titled:

  • Nobody is as smart as everybody

  • Safety from numbers

  • Early sharing gives your patients time to do their homework

  • Patients can be very good at doing their homework

  • Patients have lots of data to share back with you

  • Patients have useful data that have not traditionally been captured

  • Shared data and shared control

  • References