1. Sharing Data with your Patient
Published Online: 8 MAR 2011
DOI: 10.1002/9781444323917.ch1
Copyright © 2011 Mohammad Al-Ubaydli
Book Title
Personal Health Records: A Guide for Clinicians
Additional Information
How to Cite
Al-Ubaydli, M. (2011) Sharing Data with your Patient, in Personal Health Records: A Guide for Clinicians, Wiley-Blackwell, Oxford, UK. doi: 10.1002/9781444323917.ch1
Publication History
- Published Online: 8 MAR 2011
- Published Print: 30 APR 2011
ISBN Information
Print ISBN: 9781444332520
Online ISBN: 9781444323917
- Summary
- Chapter
- References
Keywords:
- doctors, and sharing data with patients;
- UCL Medical School, teaching classes “Wiki Medicine” - students creation of a wiki of medical information, for patients to understand illness;
- Dr. Hannan's Houghton Thornley Medical Centre's website - giving patients access to all medical notes;
- Hannan, and importance - for recording access to clinical care;
- Vanderbilt University Medical Center - patient portal, Dr. Jim Jirjis, physician and VUMC's Chief Medical Information Officer;
- Jirjis, encouraging patients - to sign up, safest thing to do;
- Vanderbilt Medical Center, clinical teams - tests into three groups of “information toxicity”;
- patient-friendly health care encyclopedias - availability of tools designed for clinicians;
- sites, PatientsLikeMe, superimposing data entered by patients - about symptoms, test results and treatments;
- patients, possessing data - traditionally not captured
Summary
This chapter contains sections titled:
Nobody is as smart as everybody
Safety from numbers
Early sharing gives your patients time to do their homework
Patients can be very good at doing their homework
Patients have lots of data to share back with you
Patients have useful data that have not traditionally been captured
Shared data and shared control
References