3. Patient Communities

  1. Mohammad Al-Ubaydli MD

Published Online: 8 MAR 2011

DOI: 10.1002/9781444323917.ch3

Personal Health Records: A Guide for Clinicians

Personal Health Records: A Guide for Clinicians

How to Cite

Al-Ubaydli, M. (2011) Patient Communities, in Personal Health Records: A Guide for Clinicians, Wiley-Blackwell, Oxford, UK. doi: 10.1002/9781444323917.ch3

Author Information

  1. University College London, London, UK

Publication History

  1. Published Online: 8 MAR 2011
  2. Published Print: 30 APR 2011

ISBN Information

Print ISBN: 9781444332520

Online ISBN: 9781444323917



  • patient communities and personal health records (PHRs) - separate from patient communities;
  • PHR, patient's private set of records - and community, a public discussion;
  • patient communities, and participatory medicine - patients outnumbering clinicians;
  • scientists of National Institutes of Health (NIH) and Wikipedia, world's largest community - how two institutions respond to errors;
  • Wikipedia page - and editing about influenza;
  • monitoring and reversions, fast and frequent - Wikipedians, commitment to their site;
  • powerful change tracking software - powering the Wikipedia, and few using these;
  • clinical teams, getting involved - and online patient communities' discussions;
  • online discussions, efficient - patients and clinicians teachings, everyone learning as well;
  • communicating in communities – sites, like MedHelp and clinical discussions


This chapter contains sections titled:

  • Wikipedia: the world's largest community

  • The value of communities

  • Communicating in communities

  • References