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‘What did you think about that?’ Researching children's perceptions of participation in a longitudinal genetic epidemiological study

  1. Trudy Goodenough1,*,
  2. Emma Williamson1,
  3. Julie Kent2,
  4. Richard Ashcroft3

Article first published online: 10 MAR 2006

DOI: 10.1002/CHI.739

Issue

Children & Society

Children & Society

Volume 17, Issue 2, pages 113–125, April 2003

Additional Information

How to Cite

Goodenough, T., Williamson, E., Kent, J. and Ashcroft, R. (2003), ‘What did you think about that?’ Researching children's perceptions of participation in a longitudinal genetic epidemiological study. Children & Society, 17: 113–125. doi: 10.1002/CHI.739

Author Information

  1. 1

    Centre For Ethics in Medicine, University of Bristol

  2. 2

    University of the West of England, Bristol

  3. 3

    Imperial College, University of London

* *Centre for Ethics in Medicine, University of Bristol, 73 St Michael's Hill, Bristol BS2 8BH, UK. E-mail: Trudy.Goodenough@Bristol.ac.uk

Publication History

  1. Issue published online: 10 MAR 2006
  2. Article first published online: 10 MAR 2006

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This paper examines how empirical study of children's involvement in non-therapeutic health research can contribute to our understanding of the significance of the research to the children themselves. This raises issues that are pertinent to, and which will guide policy relating to ethical protection in research. The paper begins with a brief review of the literature considering how children perceive research in general, and non-therapeutic health research in particular. The empirical study is then described, outlining the approach to sampling, recruitment and the focus group method used. This is followed by consideration of several key issues relating to research with children, with particular reference to ethical protection. Copyright © 2002 John Wiley & Sons, Ltd.

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