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REFERENCES

  • 1
    McPherson KM, Brander P, Taylor WJ, McNaughton HK. Living with arthritis—what is important? Disabil Rehabil 2001; 23: 70621.
  • 2
    Carr A, Hewlett S, Hughes R, Mitchell H, Ryan S, Carr M, et al. Rheumatology outcomes: the patient's perspective. J Rheumatol 2003; 30: 8803.
  • 3
    Ahlmen M, Nordenskiold U, Archenholtz B, Thyberg I, Ronnqvist R, Linden L, et al. Rheumatology outcomes: the patient's perspective. A multicentre focus group interview study of Swedish rheumatoid arthritis patients. Rheumatology (Oxford) 2005; 44: 10510.
  • 4
    Marshall NJ, Wilson G, Lapworth K, Kay LJ. Patients' perceptions of treatment with anti-TNF therapy for rheumatoid arthritis: a qualitative study. Rheumatology (Oxford) 2004; 43: 10348.
  • 5
    Edwards J. An exploration of patients experiences of anti-TNF therapy. Musculoskeletal Care 2004; 2: 4050.
  • 6
    Kalyoncu U, Dougados M, Daures J, Gossec L. Reporting of patient-reported outcomes in recent trials in rheumatoid arthritis: a systematic literature review. Ann Rheum Dis 2009; 68: 18390.
  • 7
    Felson DT, Anderson JJ, Boers M, Bombardier C, Chernoff M, Fried B, et al. The American College of Rheumatology preliminary core set of disease activity measures for rheumatoid arthritis clinical trials. Arthritis Rheum 1993; 36: 72940.
  • 8
    Van der Heijde DM, van 't Hof M, van Riel PL, van de Putte LB. Development of a disease activity score based on judgment in clinical practice by rheumatologists. J Rheumatol 1993; 20: 57981.
  • 9
    Katz PP, Morris A, Yelin EH. Prevalence and predictors of disability in valued life activities among individuals with rheumatoid arthritis. Ann Rheum Dis 2006; 65: 7639.
  • 10
    Hewlett S, Smith AP, Kirwan JR. Measuring the meaning of disability in rheumatoid arthritis: the personal impact Health Assessment Questionnaire (PI HAQ). Ann Rheum Dis 2002; 61: 98693.
  • 11
    Hewlett S, Carr M, Ryan S, Kirwan J, Richards P, Carr A, et al. Outcomes generated by patients with rheumatoid arthritis: how important are they? Musculoskeletal Care 2005; 3: 13142.
  • 12
    Gossec L, Dougados M, Rincheval N, Balanescu A, Boumpas DT, Canadelo S, et al. The elaboration of the preliminary rheumatoid arthritis impact of disease (RAID) score: a EULAR initiative. Ann Rheum Dis 2009; 68: 16805.
  • 13
    Ten Klooster PM, Veehof MM, Taal E, van Riel PL, van de Laar MA. Changes in priorities for improvement in patients with rheumatoid arthritis during 1 year of anti-tumour necrosis factor treatment. Ann Rheum Dis 2007; 66: 148590.
  • 14
    Carr A, Gibson B, Robinson P. Is quality of life determined by expectations or experience? BMJ 2001; 322: 12403.
  • 15
    Carr A, Higginson I. Are quality of life measures patient centred? BMJ 2001; 322: 135760.
  • 16
    Sanderson T, Morris M, Calnan M, Richards P, Hewlett S. What outcomes from pharmacologic treatments are important to people with rheumatoid arthritis? Creating the basis of a patient core set. Arthritis Care Res 2010; 62: 6406.
  • 17
    Jones J, Hunter D. Qualitative research: consensus methods for medical and health services research. BMJ 1995; 311: 37680.
  • 18
    Arnett FC, Edworthy SM, Bloch DA, McShane DJ, Fries JF, Cooper NS, et al. The American Rheumatism Association 1987 revised criteria for the classification of rheumatoid arthritis. Arthritis Rheum 1988; 31: 31524.
  • 19
    Sanderson T, Morris M, Calnan M, Richards P, Hewlett S. Measuring well-being in rheumatoid arthritis (RA): the development of five well-being numerical rating scales (NRS) [abstract]. Rheumatology (Oxford) 2009; 48 Suppl 1: i156.
  • 20
    Yazici Y, Bergman M, Pincus T. Time to score quantitative rheumatoid arthritis measures: 28-joint count, Disease Activity Score, Health Assessment Questionnaire (HAQ), multidimensional HAQ (MHAQ), and routine assessment of patient index data (RAPID) scores. J Rheumatol 2008; 35: 6039.
  • 21
    Nicklin J, Cramp F, Kirwan J, Hewlett S. Standardising visual analogue scales to measure fatigue in rheumatoid arthritis [abstract]. Rheumatology (Oxford) 2008; 47 Suppl 1: ii154.
  • 22
    Hewlett S, Cockshott Z, Kirwan J, Barrett J, Stamp J, Haslock I. Development and validation of a self-efficacy scale for use in British patients with rheumatoid arthritis (RASE). Rheumatology (Oxford) 2001; 40: 122130.
  • 23
    Fries JF, Spitz P, Kraines RG, Holman HR. Measurement of patient outcome in arthritis. Arthritis Rheum 1980; 23: 13745.
  • 24
    Tabachnick LS, Fidell BG. Using multivariate statistics. New York: Harper Collins; 2001.
  • 25
    Stamm T, Wright J, Machold K. Occupational balance of women with rheumatoid arthritis: a qualitative study. Musculoskeletal Care 2004; 2: 10112.
  • 26
    Kirwan J, Minnock P, Adebajo A, Bresnihan B, Choy E, de Wit M, et al. Patient perspective: fatigue as a recommended patient centered outcome measure in rheumatoid arthritis. J Rheumatol 2007; 34: 11747.
  • 27
    Meenan RF, Gertman PM, Mason JH. Measuring health status in arthritis: the Arthritis Impact Measurement Scales. Arthritis Rheum 1980; 23: 14652.
  • 28
  • 29
    Stucki G, Cieza A, Geyh S, Battistella L, Lloyd J, Symmons D, et al. ICF core sets for rheumatoid arthritis. J Rehabil Med 2004; 44 Suppl: 8793.
  • 30
    Coenen M, Stamm T, Cieza A, Amann E, Kollerits B, Stucki G. Validation of the comprehensive ICF core set for rheumatoid arthritis from the patients' perspective using focus groups. Arthritis Res Ther 2006; 8: R84.
  • 31
    Archenholtz B, Bjelle A. Reliability, validity and sensitivity of a Swedish version of the revised and expanded Arthritis Impact Measurement Scales (AIMS2). J Rheumatol 1997; 24: 13707.
  • 32
    Kwoh CK, Ibrahim SA. Rheumatology patient and physician concordance with respect to important health and symptom status outcomes. Arthritis Rheum 2001; 45: 3727.
  • 33
    Heiberg T, Kvien TK. Preferences for improved health examined in 1,024 patients with rheumatoid arthritis: pain has highest priority. Arthritis Rheum 2002; 47: 3917.
  • 34
    NICE. Adalimumab, etanercept and infliximab for the treatment of rheumatoid arthritis. London: NICE; 2007.
  • 35
    Tugwell P, Boers M, Brooks P, Simon L, Strand V, Idzerda L. OMERACT: an international initiative to improve outcome measurement in rheumatology. Trials 2007; 8: 38.