• 1
    LeRoy EC, Black C, Fleischmajer R, Jablonska S, Krieg T, Medsger TA Jr, et al. Scleroderma (systemic sclerosis): classification, subsets and pathogenesis. J Rheumatol 1988; 15: 2025.
  • 2
    Medsger TA Jr. Natural history of systemic sclerosis and the assessment of disease activity, severity, functional status, and psychologic well-being. Rheum Dis Clin North Am 2003; 29: 25573.
  • 3
    Denton CP, Black CM. Scleroderma: clinical and pathological advances. Best Pract Res Clin Rheumatol 2004; 18: 27190.
  • 4
    Hudson M, Thombs BD, Steele R, Panopalis P, Newton E, Baron M. Quality of life in patients with systemic sclerosis compared to the general population and patients with other chronic conditions. J Rheumatol 2009; 36: 76872.
  • 5
    Pope JE. Musculoskeletal involvement in scleroderma. Rheum Dis Clin North Am 2003; 29: 391408.
  • 6
    Thombs BD, Hudson M, Taillefer SS, Baron M, and the Canadian Scleroderma Research Group. Prevalence and clinical correlates of symptoms of depression in patients with systemic sclerosis. Arthritis Rheum 2008; 59: 5049.
  • 7
    Vliet Vlieland TP. Multidisciplinary team care and outcomes in rheumatoid arthritis. Curr Opin Rheumatol 2004; 16: 1536.
  • 8
    Poole JL. Musculoskeletal rehabilitation in the person with scleroderma. Curr Opin Rheumatol 2010; 22: 20512.
  • 9
    Antonioli CM, Bua G, Frige A, Prandini K, Radici S, Scarsi M, et al. An individualized rehabilitation program in patients with systemic sclerosis may improve quality of life and hand mobility. Clin Rheumatol 2009; 28: 15965.
  • 10
    Maddali Bongi S, Del Rosso A, Galluccio F, Tai G, Sigismondi F, Passalacqua M, et al. Efficacy of a tailored rehabilitation program for systemic sclerosis. Clin Exp Rheumatol 2009; 27 Suppl 54: 4450.
  • 11
    Maddali-Bongi S, Landi G, Galluccio F, Del Rosso A, Miniati I, Conforti ML, et al. The rehabilitation of facial involvement in systemic sclerosis: efficacy of the combination of connective tissue massage, Kabat's technique and kinesitherapy: a randomized controlled trial. Rheumatol Int 2010. E-pub ahead of print.
  • 12
    Brown SJ, Somerset ME, McCabe CS, McHugh NJ. The impact of group education on participants' management of their disease in lupus and scleroderma. Musculoskeletal Care 2004; 2: 20717.
  • 13
    Samuelson UK, Ahlmen EM. Development and evaluation of a patient education program for persons with systemic sclerosis (scleroderma). Arthritis Care Res 2000; 13: 1418.
  • 14
    Oliveira NC, Dos Santos Sabbag LM, de Sa Pinto AL, Borges CL, Lima FR. Aerobic exercise is safe and effective in systemic sclerosis. Int J Sports Med 2009; 30: 72832.
  • 15
    Mugii N, Hasegawa M, Matsushita T, Kondo M, Orito H, Yanaba K, et al. The efficacy of self-administered stretching for finger joint motion in Japanese patients with systemic sclerosis. J Rheumatol 2006; 33: 158692.
  • 16
    Pizzo G, Scardina GA, Messina P. Effects of a nonsurgical exercise program on the decreased mouth opening in patients with systemic scleroderma. Clin Oral Investig 2003; 7: 1758.
  • 17
    Maddali-Bongi SM, Del Rosso A, Galluccio F, Sigismondi F, Miniati I, Conforti ML, et al. Efficacy of connective tissue massage and Mc Mennell joint manipulation in the rehabilitative treatment of the hands in systemic sclerosis. Clin Rheumatol 2009; 28: 116773.
  • 18
    Clements P, Lachenbruch P, Siebold J, White B, Weiner S, Martin R, et al. Inter and intraobserver variability of total skin thickness score (modified Rodnan TSS) in systemic sclerosis. J Rheumatol 1995; 22: 12815.
  • 19
    Sandqvist G, Eklund M. Hand Mobility in Scleroderma (HAMIS) test: the reliability of a novel hand function test. Arthritis Care Res 2000; 13: 36974.
  • 20
    Sandqvist G, Hesselstrand R, Eberhardt K. A longitudinal follow-up of hand involvement and activities of daily living in early systemic sclerosis. Scand J Rheumatol 2009; 38: 30410.
  • 21
    Schmidt RT, Toews JV. Grip strength as measured by the Jamar dynamometer. Arch Phys Med Rehabil 1970; 51: 3217.
  • 22
    Naylor WP, Douglass CW, Mix E. The nonsurgical treatment of microstomia in scleroderma: a pilot study. Oral Surg Oral Med Oral Pathol 1984; 57: 50811.
  • 23
    ATS Committee on Proficiency Standards for Clinical Pulmonary Function Laboratories. ATS statement: guidelines for the six-minute walk test. Am J Respir Crit Care Med 2002; 166: 1117.
  • 24
    American Thoracic Society, American College of Chest Physicians. ATS/ACCP statement on cardiopulmonary exercise testing. Am J Respir Crit Care Med 2003; 167: 21177.
  • 25
    Vercoulen JH, Swanink CM, Fennis JF, Galama JM, van der Meer JW, Bleijenberg G. Dimensional assessment of chronic fatigue syndrome. J Psychosom Res 1994; 38: 38392.
  • 26
    Khanna D, Furst DE, Clements PJ, Park GS, Hays RD, Yoon J, et al. Responsiveness of the SF-36 and the Health Assessment Questionnaire Disability Index in a systemic sclerosis clinical trial. J Rheumatol 2005; 32: 83240.
  • 27
    Boers M, Jacobs JW, van Vliet Vlieland TP, van Riel PL. Consensus Dutch Health Assessment Questionnaire [letter]. Ann Rheum Dis 2007; 66: 1323.
  • 28
    Aaronson NK, Muller M, Cohen PD, Essink-Bot ML, Fekkes M, Sanderman R, et al. Translation, validation, and norming of the Dutch language version of the SF-36 Health Survey in community and chronic disease populations. J Clin Epidemiol 1998; 51: 105568.
  • 29
    Ware JE Jr, Snow KK, Kosinski M, Gandek B. SF-36 Health Survey: manual and interpretation guide. Boston: The Health Institute, New England Medical Center; 1993.
  • 30
    Merkel PA, Clements PJ, Reveille JD, Suarez-Almazor ME, Valentini G, Furst DE. Current status of outcome measure development for clinical trials in systemic sclerosis: report from OMERACT 6. J Rheumatol 2003; 30: 163047.
  • 31
    Hwang R, Marwick T. Efficacy of home-based exercise programmes for people with chronic heart failure: a meta-analysis. Eur J Cardiovasc Prev Rehabil 2009; 16: 52735.
  • 32
    Spencer LM, Alison JA, McKeough ZJ. Maintaining benefits following pulmonary rehabilitation: a randomised controlled trial. Eur Respir J 2009; 35: 5717.
  • 33
    Tijhuis GJ, Zwinderman AH, Hazes JM, Van Den Hout WB, Breedveld FC, Vliet Vlieland TP. A randomized comparison of care provided by a clinical nurse specialist, an inpatient team, and a day patient team in rheumatoid arthritis. Arthritis Rheum 2002; 47: 52531.
  • 34
    Holland A, Hill C. Physical training for interstitial lung disease. Cochrane Database Syst Rev 2008; 4: CD006322.
  • 35
    Alexanderson H, Stenstrom CH, Lundberg I. Safety of a home exercise programme in patients with polymyositis and dermatomyositis: a pilot study. Rheumatology (Oxford) 1999; 38: 60811.
  • 36
    Boutron I, Moher D, Altman DG, Schulz KF, Ravaud P, and the CONSORT Group. Extending the CONSORT statement to randomized trials of nonpharmacologic treatment: explanation and elaboration. Ann Intern Med 2008; 148: 295309.
  • 37
    O'Donnell S, Li LC, King J, Lauzon C, Finn H, Vliet Vlieland TP. Development of a framework for reporting health service models for managing rheumatoid arthritis. Clin Rheumatol 2010; 29: 15165.
  • 38
    Khanna D, Clements PJ, Postlethwaite AE, Furst DE. Does incorporation of aids and devices make a difference in the score of the Health Assessment Questionnaire-Disability Index? Analysis from a scleroderma clinical trial. J Rheumatol 2008; 35: 4668.
  • 39
    Blom-Bulow B, Jonson B, Bauer K. Factors limiting exercise performance in progressive systemic sclerosis. Semin Arthritis Rheum 1983; 13: 17481.
  • 40
    Holland AE, Hill CJ, Conron M, Munro P, McDonald CF. Short term improvement in exercise capacity and symptoms following exercise training in interstitial lung disease. Thorax 2008; 63: 54954.
  • 41
    Alexanderson H, Dastmalchi M, Esbjornsson-Liljedahl M, Opava CH, Lundberg IE. Benefits of intensive resistance training in patients with chronic polymyositis or dermatomyositis. Arthritis Rheum 2007; 57: 76877.
  • 42
    De Carvalho MR, Sato EI, Tebexreni AS, Heidecher RT, Schenkman S, Neto TL. Effects of supervised cardiovascular training program on exercise tolerance, aerobic capacity, and quality of life in patients with systemic lupus erythematosus. Arthritis Rheum 2005; 53: 83844.
  • 43
    Hurkmans E, van der Giesen FJ, Vliet Vlieland TP, Schoones J, Van den Ende EC. Dynamic exercise programs (aerobic capacity and/or muscle strength training) in patients with rheumatoid arthritis. Cochrane Database Syst Rev 2009; 4: CD006853.
  • 44
    Hargardottir H, van Helvoort HA, Vonk MC, van den Hoogen FH, Dekhuijzen PN, Heijdra YF. Exercise in systemic sclerosis intensifies systemic inflammation and oxidative stress. Scand J Rheumatol 2010; 39: 6370.
  • 45
    King DE, Carek P, Mainous AG 3rd, Pearson WS. Inflammatory markers and exercise: differences related to exercise type. Med Sci Sports Exerc 2003; 35: 57581.
  • 46
    Rall LC, Roubenoff R, Cannon JG, Abad LW, Dinarello CA, Meydani SN. Effects of progressive resistance training on immune response in aging and chronic inflammation. Med Sci Sports Exerc 1996; 28: 135665.
  • 47
    Benrud-Larson LM, Haythornthwaite JA, Heinberg LJ, Boling C, Reed J, White B, et al. The impact of pain and symptoms of depression in scleroderma. Pain 2002; 95: 26775.
  • 48
    Benrud-Larson LM, Heinberg LJ, Boling C, Reed J, White B, Wigley FM, et al. Body image dissatisfaction among women with scleroderma: extent and relationship to psychosocial function. Health Psychol 2003; 22: 1309.
  • 49
    Evers AW, Kraaimaat FW, van Riel PL, de Jong AJ. Tailored cognitive-behavioral therapy in early rheumatoid arthritis for patients at risk: a randomized controlled trial. Pain 2002; 100: 14153.