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REFERENCES

  • 1
    Brunner HI, Higgins GC, Wiers K, Lapidus SK, Olson JC, Onel K, et al. Health-related quality of life and its relationship to patient disease course in childhood-onset systemic lupus erythematosus. J Rheumatol 2009; 36: 153645.
  • 2
    Gutierrez-Suarez R, Pistorio A, Cespedes Cruz A, Norambuena X, Flato B, Rumba I, et al. Health-related quality of life of patients with juvenile idiopathic arthritis coming from 3 different geographic areas: the PRINTO multinational quality of life cohort study. Rheumatology (Oxford) 2007; 46: 31420.
  • 3
    Oliveira S, Ravelli A, Pistorio A, Castell E, Malattia C, Prieur AM, et al. for the Pediatric Rheumatology International Trials Organization. Proxy-reported health-related quality of life of patients with juvenile idiopathic arthritis: the Pediatric Rheumatology International Trials Organization multinational quality of life cohort study. Arthritis Rheum 2007; 57: 3543.
  • 4
    Selvaag AM, Flato B, Lien G, Sorskaar D, Vinje O, Forre O. Measuring health status in early juvenile idiopathic arthritis: determinants and responsiveness of the Child Health Questionnaire. J Rheumatol 2003; 30: 160210.
  • 5
    Raat H, Botterweck AM, Landgraf JM, Hoogeveen WC, Essink-Bot M. Reliability and validity of the short form of the Child Health Questionnaire for parents (CHQ-PF28) in large random school based and general population samples. J Epidemiol Community Health 2005; 59: 7582.
  • 6
    Asmussen L, Olson LM, Grant EN, Landgraf JM, Fagan J, Weiss KB. Use of the Child Health Questionnaire in a sample of moderate and low-income inner-city children with asthma. Am J Respir Crit Care Med 2000; 162: 121521.
  • 7
    Raat H, Bonsel GJ, Essink-Bot M, Landgraf JM, Gemke RJ. Reliability and validity of comprehensive health status measures in children: the Child Health Questionnaire in relation to the Health Utilities Index. J Clin Epidemiol 2002; 55: 6776.
  • 8
    Raat H, Mangunkusumo RT, Landgraf JM, Kloek G, Brug J. Feasibility, reliability, and validity of adolescent health status measurement by the Child Health Questionnaire Child Form (CHQ-CF): internet administration compared with standard administration. Qual Life Res 2007; 16: 67585.
  • 9
    Landgraf JL, Abetz L, Ware JE. The CHQ user's manual. Boston: The Health Institute, New England Medical Center; 1996.
  • 10
    Drotar D, Schwartz L, Palermo TM, Burant C. Factor structure of the Child Health Questionnaire-Parent Form in pediatric populations. J Ped Psychol 2006; 31: 12738.
  • 11
    Moretti C, Viola S, Pistorio A, Magni-Manzoni S, Ruperto N, Martini A, et al. Relative responsiveness of condition specific and generic health status measures in juvenile idiopathic arthritis. Ann Rheum Dis 2005; 64: 25761.
  • 12
    Simeoni MC, Schmidt S, Muehlan H, Debensason D, Bullinger M, and the DISABKIDS Group. Field testing of a European quality of life instrument for children and adolescents with chronic conditions: the 37-item DISABKIDS Chronic Generic Module. Qual Life Res 2007; 16: 88193.
  • 13
    Sandeberg MA, Johansson EM, Hagell P, Wettergren L. Psychometric properties of the DISABKIDS Chronic Generic Module (DCGM-37) when used in children undergoing treatment for cancer. Health Qual Life Outcomes 2010; 8: 10926.
  • 14
    Petersen C, Schmidt S, Power M, Bullinger M, and the DISABKIDS Group. Development and pilot-testing of a health-related quality of life chronic generic module for children and adolescents with chronic health conditions: a European perspective. Qual Life Res 2005; 14: 106577.
  • 15
    Ravens-Sieberer U, Bullinger M. Assessing the health related quality of life in chronically ill children with the German KINDL: first psychometric and content-analytical results. Qual Life Res 1998; 7: 399407.
  • 16
    Eser E, Yuksel H, Baydur H, Erhart M, Saatli G, Cengiz-Ozyurt B, et al. The psychometric properties of the new Turkish generic health-related quality of life questionnaire for children (Kid-KINDL). Turkish J Psychiatry 2008; 19: 40917.
  • 17
    Fernandez-Lopez J, Fernandez Fidalgo M, Cieza A, Ravens-Sieberer U. Measuring health-related quality of life in children and adolescents: preliminary validation and reliability of the Spanish version of the KINDL questionnaire. Aten Primaria 2004; 33: 43442.
  • 18
    Wee H, Lee W, Ravens-Sieberer U, Erhart M, Li S. Validation of the English version of the KINDL generic children's health-related quality of life instrument for an Asian population: results from a pilot test. Qual Life Res 2005; 14: 1193200.
  • 19
    Ravens-Sieberer U, Redegeld M, Bullinger M. Lebensqualitat chronisch kranker KINDER im verlauf der statioaren rehabilitation. In: Neuser J, de Bruin JT, editors. Verbindung und veränderung im fokus der medizinischen psychologie. Lengerich (Germany): Pabst Science Publishers; 2000. p. 8991.
  • 20
    Erhart M, Ellert U, Kurth B, Ravens-Sieberer U. Measuring adolescents' HRQOL via self reports and parent proxy reports: an evaluation of the psychometric properties of both versions of the KINDL-R instrument. Health Qual Life Outcomes 2009; 7: 7788.
  • 21
    Varni JW, Burwinkle TM, Seid M, Skarr D. PedsQL 4.0 as a pediatric population health measure: feasibility, reliability, and validity. Ambul Pediatr 2003; 3: 32941.
  • 22
    Varni JW, Seid M, Knight TS, Burwinkle TM, Brown J, Szer IS. The PedsQL in pediatric rheumatology: reliability, validity, and responsiveness of the Pediatric Quality of Life Inventory Generic Core Scales and Rheumatology Module. Arthritis Rheum 2002; 46: 71425.
  • 23
    Varni JW, Seid M, Kurtin PS. PedsQL 4.0: reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations. Med Care 2001; 39: 80012.
  • 24
    Gong GW, Young NL, Dempster H, Porepa M, Feldman BM. The Quality of My Life questionnaire: the minimal clinically important difference for pediatric rheumatology patients. J Rheumatol 2007; 34: 5817.
  • 25
    Feldman BM, Grundland B, McCullough L, Wright V. Distinction of quality of life, health-related quality of life, and health status in children referred for rheumatologic care. J Rheumatol 2003; 27: 22633.