• 1
    Ganz PA. What outcomes matter to patients: a physician-researcher point of view. Med Care 2002; 40 Suppl: III119.
  • 2
    Von Korff M, Gruman J, Schaefer J, Curry SJ, Wagner EH. Collaborative management of chronic illness. Ann Intern Med 1997; 127: 1097102.
  • 3
    Berrios-Rivera JP, Street RL Jr, Garcia Popa-Lisseanu MG, Kallen MA, Richardson MN, Janssen NM, et al. Trust in physicians and elements of the medical interaction in patients with rheumatoid arthritis and systemic lupus erythematosus. Arthritis Rheum 2006; 55: 38593.
  • 4
    Hibbard JH. Engaging health care consumers to improve the quality of care. Med Care 2003; 41: I6170.
  • 5
    Neville C, Clarke AE, Joseph L, Belisle P, Ferland D, Fortin PR. Learning from discordance in patient and physician global assessments of systemic lupus erythematosus disease activity. J Rheumatol 2000; 27: 6759.
  • 6
    Starfield B, Wray C, Hess K, Gross R, Birk PS, D'Lugoff BC. The influence of patient-practitioner agreement on outcome of care. Am J Public Health 1981; 71: 12731.
  • 7
    Wartman SA, Morlock LL, Malitz FE, Palm E. Impact of divergent evaluations by physicians and patients of patients' complaints. Public Health Rep 1983; 98: 1415.
  • 8
    Dobkin PL, Sita A, Sewitch MJ. Predictors of adherence to treatment in women with fibromyalgia. Clin J Pain 2006; 22: 28694.
  • 9
    Jackson CA, Clatworthy J, Robinson A, Horne R. Factors associated with non-adherence to oral medication for inflammatory bowel disease: a systematic review. Am J Gastroenterol 2010; 105: 52539.
  • 10
    Slevin ML, Plant H, Lynch D, Drinkwater J, Gregory WM. Who should measure quality of life, the doctor or the patient? Br J Cancer 1988; 57: 10912.
  • 11
    Hidding A, van Santen M, De Klerk E, Gielen X, Boers M, Geenen R, et al. Comparison between self-report measures and clinical observations of functional disability in ankylosing spondylitis, rheumatoid arthritis and fibromyalgia. J Rheumatol 1994; 21: 81823.
  • 12
    Suarez-Almazor ME, Conner-Spady B, Kendall CJ, Russell AS, Skeith K. Lack of congruence in the ratings of patients' health status by patients and their physicians. Med Decis Making 2001; 21: 11321.
  • 13
    Kwoh CK, O'Connor GT, Regan-Smith MG, Olmstead EM, Brown LA, Burnett JB, et al. Concordance between clinician and patient assessment of physical and mental health status. J Rheumatol 1992; 19: 10317.
  • 14
    Berkanovic E, Hurwicz ML, Lachenbruch PA. Concordant and discrepant views of patients' physical functioning. Arthritis Care Res 1995; 8: 94101.
  • 15
    Hewlett S, Smith AP, Kirwan JR. Values for function in rheumatoid arthritis: patients, professionals, and public. Ann Rheum Dis 2001; 60: 92833.
  • 16
    Leeb BF, Andel I, Leder S, Leeb BA, Rintelen B. The patient's perspective and rheumatoid arthritis disease activity indexes. Rheumatology (Oxford) 2005; 44: 3605.
  • 17
    Leeb BF, Sautner J, Leeb BA, Fassl C, Rintelen B. Lack of agreement between patients' and physicians' perspectives of rheumatoid arthritis disease activity changes. Scand J Rheumatol 2006; 35: 4416.
  • 18
    Nicolau G, Yogui MM, Vallochi TL, Gianini RJ, Laurindo IM, Novaes GS. Sources of discrepancy in patient and physician global assessments of rheumatoid arthritis disease activity. J Rheumatol 2004; 31: 12936.
  • 19
    Barton JL, Imboden J, Graf J, Glidden D, Yelin EH, Schillinger D. Patient-physician discordance in assessments of global disease severity in rheumatoid arthritis. Arthritis Care Res (Hoboken) 2010; 62: 85764.
  • 20
    Hirsh JM, Boyle DJ, Collier DH, Oxenfeld AJ, Caplan L. Health literacy predicts the discrepancy between patient and provider global assessments of rheumatoid arthritis activity at a public urban rheumatology clinic. J Rheumatol 2010; 37: 9616.
  • 21
    Lazarus RS, Folkman S. Stress, appraisal, and coping. New York: Springer; 1984.
  • 22
    Sokka T, Kautiainen H, Toloza S, Makinen H, Verstappen SM, Lund Hetland M, et al. QUEST-RA: quantitative clinical assessment of patients with rheumatoid arthritis seen in standard rheumatology care in 15 countries. Ann Rheum Dis 2007; 66: 14916.
  • 23
    Pincus T, Brooks RH, Callahan LF. A proposed 30-45 minute 4 page standard protocol to evaluate rheumatoid arthritis (SPERA) that includes measures of inflammatory activity, joint damage, and longterm outcomes. J Rheumatol 1999; 26: 47380.
  • 24
    Stucki G, Liang MH, Stucki S, Bruhlmann P, Michel BA. A self-administered Rheumatoid Arthritis Disease Activity Index (RADAI) for epidemiologic research: psychometric properties and correlation with parameters of disease activity. Arthritis Rheum 1995; 38: 7958.
  • 25
    Fransen J, Langenegger T, Michel BA, Stucki G. Feasibility and validity of the RADAI, a self-administered rheumatoid arthritis disease activity index. Rheumatology (Oxford) 2000; 39: 3217.
  • 26
    Fries JF, Hochberg MC, Medsger TA Jr, Hunder GG, Bombardier C, and the American College of Rheumatology Diagnostic and Therapeutic Criteria Committee. Criteria for rheumatic disease: different types and different functions. Arthritis Rheum 1994; 37: 45462.
  • 27
    Pincus T, Swearingen C, Wolfe F. Toward a multidimensional Health Assessment Questionnaire (MDHAQ): assessment of advanced activities of daily living and psychological status in the patient-friendly Health Assessment Questionnaire format. Arthritis Rheum 1999; 42: 222030.
  • 28
    Michaud K, Wolfe F. The development of a rheumatic disease research comorbidity index for use in outpatients patients with RA, OA, SLE and fibromyalgia (FMS) [abstract]. Arthritis Rheum 2007; 56: Suppl: S596.
  • 29
    Wolfe F, Michaud K. Predicting depression in rheumatoid arthritis: the signal importance of pain extent and fatigue, and comorbidity. Arthritis Rheum 2009; 61: 66773.
  • 30
    SAS Institute. SAS/STAT 9.2 user's guide. Cary (NC): SAS Institute; 2008.
  • 31
    Lin LI. A concordance correlation coefficient to evaluate reproducibility. Biometrics 1989; 45: 25568.
  • 32
    Tubach F, Ravaud P, Beaton D, Boers M, Bombardier C, Felson DT, et al. Minimal clinically important improvement and patient acceptable symptom state for subjective outcome measures in rheumatic disorders. J Rheumatol 2007; 34: 118893.
  • 33
    Kvamme MK, Kristiansen IS, Lie E, Kvien TK. Identification of cutpoints for acceptable health status and important improvement in patient-reported outcomes, in rheumatoid arthritis, psoriatic arthritis, and ankylosing spondylitis. J Rheumatol 2010; 37: 2631.
  • 34
    Van Buuren S, Oudshoorn K. Multivariate Imputation by Chained Equations: MICE V1.0 user's manual. Leiden: TNO Prevention and Health; 2000.
  • 35
    R Development Core Team, Development Core Team. R: a language and environment for statistical computing. Vienna: R Foundation for Statistical Computing; 2009.
  • 36
    Wolfe F, Michaud K, Pincus T, Furst D, Keystone E. The Disease Activity Score is not suitable as the sole criterion for initiation and evaluation of anti–tumor necrosis factor therapy in the clinic: discordance between assessment measures and limitations in questionnaire use for regulatory purposes. Arthritis Rheum 2005; 52: 38739.
  • 37
    Neville C, Clarke AE, Joseph L, Belisle P, Ferland D, Fortin PR. Learning from discordance in patient and physician global assessments of systemic lupus erythematosus disease activity. J Rheumatol 2000; 27: 6759.
  • 38
    Yen JC, Abrahamowicz M, Dobkin PL, Clarke AE, Battista RN, Fortin PR. Determinants of discordance between patients and physicians in their assessment of lupus disease activity. J Rheumatol 2003; 30: 196776.
  • 39
    Alarcon GS, McGwin G Jr, Brooks K, Roseman JM, Fessler BJ, Sanchez ML, et al. Systemic lupus erythematosus in three ethnic groups. XI. Sources of discrepancy in perception of disease activity: a comparison of physician and patient visual analog scale scores. Arthritis Rheum 2002; 47: 40813.
  • 40
    Wood PB. Enhanced pain perception in rheumatoid arthritis: novel considerations. Curr Pain Headache Rep 2009; 13: 4349.
  • 41
    Diatchenko L, Slade GD, Nackley AG, Bhalang K, Sigurdsson A, Belfer I, et al. Genetic basis for individual variations in pain perception and the development of a chronic pain condition. Hum Mol Genet 2005; 14: 13543.
  • 42
    Van Meurs JB, Uitterlinden AG, Stolk L, Kerkhof HJ, Hofman A, Pols HA, et al. A functional polymorphism in the catechol-O-methyltransferase gene is associated with osteoarthritis-related pain. Arthritis Rheum 2009; 60: 6289.
  • 43
    Rao JK, Weinberger M, Anderson LA, Kroenke K. Predicting reports of unmet expectations among rheumatology patients. Arthritis Rheum 2004; 51: 21521.
  • 44
    Zastrow A, Faude V, Seyboth F, Niehoff D, Herzog W, Lowe B. Risk factors of symptom underestimation by physicians. J Psychosom Res 2008; 64: 54351.
  • 45
    Emery P, Genovese MC, van Vollenhoven R, Sharp JT, Patra K, Sasso EH. Less radiographic progression with adalimumab plus methotrexate versus methotrexate monotherapy across the spectrum of clinical response in early rheumatoid arthritis. J Rheumatol 2009; 36: 142941.
  • 46
    Ward MM. Rheumatology care, patient expectations, and the limits of time [editorial]. Arthritis Rheum 2004; 51: 3078.
  • 47
    Aletaha D, Funovits J, Ward MM, Smolen JS, Kvien TK. Perception of improvement in patients with rheumatoid arthritis varies with disease activity levels at baseline. Arthritis Rheum 2009; 61: 31320.
  • 48
    Adebajo AO, Alegbeleye JA. Cross cultural aspects of rehabilitation in rheumatic diseases. Curr Opin Rheumatol 2007; 19: 1637.
  • 49
    Harwood A. Guidelines for culturally appropriate health care. In: Harwood A, editor. Ethnicity and medical care. Cambridge: Harvard University Press; 1981. p. 482508.