Arthritis Care & Research

Copyright © 2012 Wiley-Liss, Inc., A Wiley Company

Cover image for Vol. 63 Issue S11

Supplement: Special Outcomes

November 2011

Volume 63, Issue S11

Pages S1–S490

  1. Editorial

    1. Top of page
    2. Editorial
    3. Measures of Pathology and Symptoms
    4. Measures of Function
    5. Measures of Health Status and Quality of Life
    6. Psychological Measures
    7. Commentary
    1. Introduction to special issue: Patient outcomes in rheumatology, 2011 (pages S1–S3)

      Patricia P. Katz

      Article first published online: 7 NOV 2011 | DOI: 10.1002/acr.20585

  2. Measures of Pathology and Symptoms

    1. Top of page
    2. Editorial
    3. Measures of Pathology and Symptoms
    4. Measures of Function
    5. Measures of Health Status and Quality of Life
    6. Psychological Measures
    7. Commentary
    1. Measures of functional status and quality of life in rheumatoid arthritis: Health Assessment Questionnaire Disability Index (HAQ), Modified Health Assessment Questionnaire (MHAQ), Multidimensional Health Assessment Questionnaire (MDHAQ), Health Assessment Questionnaire II (HAQ-II), Improved Health Assessment Questionnaire (Improved HAQ), and Rheumatoid Arthritis Quality of Life (RAQoL) (pages S4–S13)

      Leann Maska, Jaclyn Anderson and Kaleb Michaud

      Article first published online: 7 NOV 2011 | DOI: 10.1002/acr.20620

    2. Measures of rheumatoid arthritis disease activity: Patient (PtGA) and Provider (PrGA) Global Assessment of Disease Activity, Disease Activity Score (DAS) and Disease Activity Score With 28-Joint Counts (DAS28), Simplified Disease Activity Index (SDAI), Clinical Disease Activity Index (CDAI), Patient Activity Score (PAS) and Patient Activity Score-II (PASII), Routine Assessment of Patient Index Data (RAPID), Rheumatoid Arthritis Disease Activity Index (RADAI) and Rheumatoid Arthritis Disease Activity Index-5 (RADAI-5), Chronic Arthritis Systemic Index (CASI), Patient-Based Disease Activity Score With ESR (PDAS1) and Patient-Based Disease Activity Score Without ESR (PDAS2), and Mean Overall Index for Rheumatoid Arthritis (MOI-RA) (pages S14–S36)

      Jaclyn K. Anderson, Lani Zimmerman, Liron Caplan and Kaleb Michaud

      Article first published online: 7 NOV 2011 | DOI: 10.1002/acr.20621

    3. Measures of adult systemic lupus erythematosus: Updated Version of British Isles Lupus Assessment Group (BILAG 2004), European Consensus Lupus Activity Measurements (ECLAM), Systemic Lupus Activity Measure, Revised (SLAM-R), Systemic Lupus Activity Questionnaire for Population Studies (SLAQ), Systemic Lupus Erythematosus Disease Activity Index 2000 (SLEDAI-2K), and Systemic Lupus International Collaborating Clinics/American College of Rheumatology Damage Index (SDI) (pages S37–S46)

      Juanita Romero-Diaz, David Isenberg and Rosalind Ramsey-Goldman

      Article first published online: 7 NOV 2011 | DOI: 10.1002/acr.20572

    4. Measures of symptoms and disease status in ankylosing spondylitis: Ankylosing Spondylitis Disease Activity Score (ASDAS), Ankylosing Spondylitis Quality of Life Scale (ASQoL), Bath Ankylosing Spondylitis Disease Activity Index (BASDAI), Bath Ankylosing Spondylitis Functional Index (BASFI), Bath Ankylosing Spondylitis Global Score (BAS-G), Bath Ankylosing Spondylitis Metrology Index (BASMI), Dougados Functional Index (DFI), and Health Assessment Questionnaire for the Spondylarthropathies (HAQ-S) (pages S47–S58)

      Jane Zochling

      Article first published online: 7 NOV 2011 | DOI: 10.1002/acr.20575

    5. Gout measures: Gout Assessment Questionnaire (GAQ, GAQ2.0), and physical measurement of tophi (pages S59–S63)

      William J. Taylor

      Article first published online: 7 NOV 2011 | DOI: 10.1002/acr.20622

    6. Measures of psoriatic arthritis: Tender and Swollen Joint Assessment, Psoriasis Area and Severity Index (PASI), Nail Psoriasis Severity Index (NAPSI), Modified Nail Psoriasis Severity Index (mNAPSI), Mander/Newcastle Enthesitis Index (MEI), Leeds Enthesitis Index (LEI), Spondyloarthritis Research Consortium of Canada (SPARCC), Maastricht Ankylosing Spondylitis Enthesis Score (MASES), Leeds Dactylitis Index (LDI), Patient Global for Psoriatic Arthritis, Dermatology Life Quality Index (DLQI), Psoriatic Arthritis Quality of Life (PsAQOL), Functional Assessment of Chronic Illness Therapy–Fatigue (FACIT-F), Psoriatic Arthritis Response Criteria (PsARC), Psoriatic Arthritis Joint Activity Index (PsAJAI), Disease Activity in Psoriatic Arthritis (DAPSA), and Composite Psoriatic Disease Activity Index (CPDAI) (pages S64–S85)

      Philip J. Mease

      Article first published online: 7 NOV 2011 | DOI: 10.1002/acr.20577

    7. Measures of fibromyalgia: Fibromyalgia Impact Questionnaire (FIQ), Brief Pain Inventory (BPI), Multidimensional Fatigue Inventory (MFI-20), Medical Outcomes Study (MOS) Sleep Scale, and Multiple Ability Self-Report Questionnaire (MASQ) (pages S86–S97)

      David A. Williams and Lesley M. Arnold

      Article first published online: 7 NOV 2011 | DOI: 10.1002/acr.20531

    8. Measures of systemic sclerosis (scleroderma): Health Assessment Questionnaire (HAQ) and Scleroderma HAQ (SHAQ), Physician- and Patient-Rated Global Assessments, Symptom Burden Index (SBI), University of California, Los Angeles, Scleroderma Clinical Trials Consortium Gastrointestinal Scale (UCLA SCTC GIT) 2.0, Baseline Dyspnea Index (BDI) and Transition Dyspnea Index (TDI) (Mahler's Index), Cambridge Pulmonary Hypertension Outcome Review (CAMPHOR), and Raynaud's Condition Score (RCS) (pages S98–S111)

      Janet Pope

      Article first published online: 7 NOV 2011 | DOI: 10.1002/acr.20598

    9. Measures of disease activity and damage in pediatric systemic lupus erythematosus: British Isles Lupus Assessment Group (BILAG), European Consensus Lupus Activity Measurement (ECLAM), Systemic Lupus Activity Measure (SLAM), Systemic Lupus Erythematosus Disease Activity Index (SLEDAI), Physician's Global Assessment of Disease Activity (MD Global), and Systemic Lupus International Collaborating Clinics/American College of Rheumatology Damage Index (SLICC/ACR DI; SDI) (pages S112–S117)

      Bianca Lattanzi, Alessandro Consolaro, Nicoletta Solari, Nicolino Ruperto, Alberto Martini and Angelo Ravelli

      Article first published online: 7 NOV 2011 | DOI: 10.1002/acr.20623

    10. Measures of adult and juvenile dermatomyositis, polymyositis, and inclusion body myositis: Physician and Patient/Parent Global Activity, Manual Muscle Testing (MMT), Health Assessment Questionnaire (HAQ)/Childhood Health Assessment Questionnaire (C-HAQ), Childhood Myositis Assessment Scale (CMAS), Myositis Disease Activity Assessment Tool (MDAAT), Disease Activity Score (DAS), Short Form 36 (SF-36), Child Health Questionnaire (CHQ), Physician Global Damage, Myositis Damage Index (MDI), Quantitative Muscle Testing (QMT), Myositis Functional Index-2 (FI-2), Myositis Activities Profile (MAP), Inclusion Body Myositis Functional Rating Scale (IBMFRS), Cutaneous Dermatomyositis Disease Area and Severity Index (CDASI), Cutaneous Assessment Tool (CAT), Dermatomyositis Skin Severity Index (DSSI), Skindex, and Dermatology Life Quality Index (DLQI) (pages S118–S157)

      Lisa G. Rider, Victoria P. Werth, Adam M. Huber, Helene Alexanderson, Anand Prahalad Rao, Nicolino Ruperto, Laura Herbelin, Richard Barohn, David Isenberg and Frederick W. Miller

      Article first published online: 7 NOV 2011 | DOI: 10.1002/acr.20532

    11. Measures of function in low back pain/disorders: Low Back Pain Rating Scale (LBPRS), Oswestry Disability Index (ODI), Progressive Isoinertial Lifting Evaluation (PILE), Quebec Back Pain Disability Scale (QBPDS), and Roland-Morris Disability Questionnaire (RDQ) (pages S158–S173)

      Rob Smeets, Albere Köke, Chung-Wei Lin, Manuela Ferreira and Christophe Demoulin

      Article first published online: 7 NOV 2011 | DOI: 10.1002/acr.20542

    12. Measures of adult shoulder function: Disabilities of the Arm, Shoulder, and Hand Questionnaire (DASH) and Its Short Version (QuickDASH), Shoulder Pain and Disability Index (SPADI), American Shoulder and Elbow Surgeons (ASES) Society Standardized Shoulder Assessment Form, Constant (Murley) Score (CS), Simple Shoulder Test (SST), Oxford Shoulder Score (OSS), Shoulder Disability Questionnaire (SDQ), and Western Ontario Shoulder Instability Index (WOSI) (pages S174–S188)

      Felix Angst, Hans-Kaspar Schwyzer, André Aeschlimann, Beat R. Simmen and Jörg Goldhahn

      Article first published online: 7 NOV 2011 | DOI: 10.1002/acr.20630

    13. Measures of hand function: Arthritis Hand Function Test (AHFT), Australian Canadian Osteoarthritis Hand Index (AUSCAN), Cochin Hand Function Scale, Functional Index for Hand Osteoarthritis (FIHOA), Grip Ability Test (GAT), Jebsen Hand Function Test (JHFT), and Michigan Hand Outcomes Questionnaire (MHQ) (pages S189–S199)

      Janet L. Poole

      Article first published online: 7 NOV 2011 | DOI: 10.1002/acr.20631

    14. Measures of hip function and symptoms: Harris Hip Score (HHS), Hip Disability and Osteoarthritis Outcome Score (HOOS), Oxford Hip Score (OHS), Lequesne Index of Severity for Osteoarthritis of the Hip (LISOH), and American Academy of Orthopedic Surgeons (AAOS) Hip and Knee Questionnaire (pages S200–S207)

      Anna Nilsdotter and Ann Bremander

      Article first published online: 7 NOV 2011 | DOI: 10.1002/acr.20549

    15. Measures of knee function: International Knee Documentation Committee (IKDC) Subjective Knee Evaluation Form, Knee Injury and Osteoarthritis Outcome Score (KOOS), Knee Injury and Osteoarthritis Outcome Score Physical Function Short Form (KOOS-PS), Knee Outcome Survey Activities of Daily Living Scale (KOS-ADL), Lysholm Knee Scoring Scale, Oxford Knee Score (OKS), Western Ontario and McMaster Universities Osteoarthritis Index (WOMAC), Activity Rating Scale (ARS), and Tegner Activity Score (TAS) (pages S208–S228)

      Natalie J. Collins, Devyani Misra, David T. Felson, Kay M. Crossley and Ewa M. Roos

      Article first published online: 7 NOV 2011 | DOI: 10.1002/acr.20632

    16. Measures of foot function, foot health, and foot pain: American Academy of Orthopedic Surgeons Lower Limb Outcomes Assessment: Foot and Ankle Module (AAOS-FAM), Bristol Foot Score (BFS), Revised Foot Function Index (FFI-R), Foot Health Status Questionnaire (FHSQ), Manchester Foot Pain and Disability Index (MFPDI), Podiatric Health Questionnaire (PHQ), and Rowan Foot Pain Assessment (ROFPAQ) (pages S229–S239)

      Jody L. Riskowski, Thomas J. Hagedorn and Marian T. Hannan

      Article first published online: 7 NOV 2011 | DOI: 10.1002/acr.20554

    17. Measures of adult pain: Visual Analog Scale for Pain (VAS Pain), Numeric Rating Scale for Pain (NRS Pain), McGill Pain Questionnaire (MPQ), Short-Form McGill Pain Questionnaire (SF-MPQ), Chronic Pain Grade Scale (CPGS), Short Form-36 Bodily Pain Scale (SF-36 BPS), and Measure of Intermittent and Constant Osteoarthritis Pain (ICOAP) (pages S240–S252)

      Gillian A. Hawker, Samra Mian, Tetyana Kendzerska and Melissa French

      Article first published online: 7 NOV 2011 | DOI: 10.1002/acr.20543

    18. Measures of pediatric pain: 21–Numbered Circle Visual Analog Scale (VAS), E-Ouch Electronic Pain Diary, Oucher, Pain Behavior Observation Method, Pediatric Pain Assessment Tool (PPAT), and Pediatric Pain Questionnaire (PPQ) (pages S253–S262)

      Catrina C. Lootens and Michael A. Rapoff

      Article first published online: 7 NOV 2011 | DOI: 10.1002/acr.20634

    19. Measures of fatigue: Bristol Rheumatoid Arthritis Fatigue Multi-Dimensional Questionnaire (BRAF MDQ), Bristol Rheumatoid Arthritis Fatigue Numerical Rating Scales (BRAF NRS) for Severity, Effect, and Coping, Chalder Fatigue Questionnaire (CFQ), Checklist Individual Strength (CIS20R and CIS8R), Fatigue Severity Scale (FSS), Functional Assessment Chronic Illness Therapy (Fatigue) (FACIT-F), Multi-Dimensional Assessment of Fatigue (MAF), Multi-Dimensional Fatigue Inventory (MFI), Pediatric Quality Of Life (PedsQL) Multi-Dimensional Fatigue Scale, Profile of Fatigue (ProF), Short Form 36 Vitality Subscale (SF-36 VT), and Visual Analog Scales (VAS) (pages S263–S286)

      Sarah Hewlett, Emma Dures and Celia Almeida

      Article first published online: 7 NOV 2011 | DOI: 10.1002/acr.20579

    20. Measures of sleep in rheumatologic diseases: Epworth Sleepiness Scale (ESS), Functional Outcome of Sleep Questionnaire (FOSQ), Insomnia Severity Index (ISI), and Pittsburgh Sleep Quality Index (PSQI) (pages S287–S296)

      Theodore A. Omachi

      Article first published online: 7 NOV 2011 | DOI: 10.1002/acr.20544

  3. Measures of Function

    1. Top of page
    2. Editorial
    3. Measures of Pathology and Symptoms
    4. Measures of Function
    5. Measures of Health Status and Quality of Life
    6. Psychological Measures
    7. Commentary
    1. Measures of adult general functional status: SF-36 Physical Functioning Subscale (PF-10), Health Assessment Questionnaire (HAQ), Modified Health Assessment Questionnaire (MHAQ), Katz Index of Independence in Activities of Daily Living, Functional Independence Measure (FIM), and Osteoarthritis-Function-Computer Adaptive Test (OA-Function-CAT) (pages S297–S307)

      Daniel K. White, Jessica C. Wilson and Julie J. Keysor

      Article first published online: 7 NOV 2011 | DOI: 10.1002/acr.20638

    2. Measures of disability: Arthritis Impact Measurement Scales 2 (AIMS2), Arthritis Impact Measurement Scales 2-Short Form (AIMS2-SF), The Organization for Economic Cooperation and Development (OECD) Long-Term Disability (LTD) Questionnaire, EQ-5D, World Health Organization Disability Assessment Schedule II (WHODASII), Late-Life Function and Disability Instrument (LLFDI), and Late-Life Function and Disability Instrument-Abbreviated Version (LLFDI-Abbreviated) (pages S308–S324)

      Monique A. M. Gignac, Xingshan Cao, Jessica Mcalpine and Elizabeth M. Badley

      Article first published online: 7 NOV 2011 | DOI: 10.1002/acr.20640

    3. Measures of social function and participation in musculoskeletal populations: Impact on Participation and Autonomy (IPA), Keele Assessment of Participation (KAP), Participation Measure for Post-Acute Care (PM-PAC), Participation Objective, Participation Subjective (POPS), Rating of Perceived Participation (ROPP), and The Participation Scale (pages S325–S336)

      Ross Wilkie, Joanne L. Jordan, Sara Muller, Elaine Nicholls, Emma L. Healey and Danielle A. van der Windt

      Article first published online: 7 NOV 2011 | DOI: 10.1002/acr.20641

    4. Measures of work disability and productivity: Rheumatoid Arthritis Specific Work Productivity Survey (WPS-RA), Workplace Activity Limitations Scale (WALS), Work Instability Scale for Rheumatoid Arthritis (RA-WIS), Work Limitations Questionnaire (WLQ), and Work Productivity and Activity Impairment Questionnaire (WPAI) (pages S337–S349)

      Kenneth Tang, Dorcas E. Beaton, Annelies Boonen, Monique A. M. Gignac and Claire Bombardier

      Article first published online: 7 NOV 2011 | DOI: 10.1002/acr.20633

    5. Measures of physical performance assessments: Self-Paced Walk Test (SPWT), Stair Climb Test (SCT), Six-Minute Walk Test (6MWT), Chair Stand Test (CST), Timed Up & Go (TUG), Sock Test, Lift and Carry Test (LCT), and Car Task (pages S350–S370)

      Kim Bennell, Fiona Dobson and Rana Hinman

      Article first published online: 7 NOV 2011 | DOI: 10.1002/acr.20538

    6. Measures of pediatric function: Child Health Assessment Questionnaire (C-HAQ), Juvenile Arthritis Functional Assessment Scale (JAFAS), Pediatric Outcomes Data Collection Instrument (PODCI), and Activities Scale for Kids (ASK) (pages S371–S382)

      Susan E. Klepper

      Article first published online: 7 NOV 2011 | DOI: 10.1002/acr.20635

  4. Measures of Health Status and Quality of Life

    1. Top of page
    2. Editorial
    3. Measures of Pathology and Symptoms
    4. Measures of Function
    5. Measures of Health Status and Quality of Life
    6. Psychological Measures
    7. Commentary
    1. Adult measures of general health and health-related quality of life: Medical Outcomes Study Short Form 36-Item (SF-36) and Short Form 12-Item (SF-12) Health Surveys, Nottingham Health Profile (NHP), Sickness Impact Profile (SIP), Medical Outcomes Study Short Form 6D (SF-6D), Health Utilities Index Mark 3 (HUI3), Quality of Well-Being Scale (QWB), and Assessment of Quality of Life (AQOL) (pages S383–S412)

      Lucy Busija, Eva Pausenberger, Terry P. Haines, Sharon Haymes, Rachelle Buchbinder and Richard H. Osborne

      Article first published online: 7 NOV 2011 | DOI: 10.1002/acr.20541

    2. Health-related quality of life measurement in adult systemic lupus erythematosus: Lupus Quality of Life (LupusQoL), Systemic Lupus Erythematosus-Specific Quality of Life Questionnaire (SLEQOL), and Systemic Lupus Erythematosus Quality of Life Questionnaire (L-QoL) (pages S413–S419)

      Jinoos Yazdany

      Article first published online: 7 NOV 2011 | DOI: 10.1002/acr.20636

    3. Measures of general pediatric quality of life: Child Health Questionnaire (CHQ), DISABKIDS Chronic Generic Measure (DCGM), KINDL-R, Pediatric Quality of Life Inventory (PedsQL) 4.0 Generic Core Scales, and Quality of My Life Questionnaire (QoML) (pages S420–S430)

      Stephanie E. Hullmann, Jamie L. Ryan, Rachelle R. Ramsey, John M. Chaney and Larry L. Mullins

      Article first published online: 7 NOV 2011 | DOI: 10.1002/acr.20637

    4. Measures of juvenile fibromyalgia: Functional Disability Inventory (FDI), Modified Fibromyalgia Impact Questionnaire–Child Version (MFIQ-C), and Pediatric Quality of Life Inventory (PedsQL) 3.0 Rheumatology Module Pain and Hurt Scale (pages S431–S437)

      Stacy R. Flowers and Susmita Kashikar-Zuck

      Article first published online: 7 NOV 2011 | DOI: 10.1002/acr.20639

    5. Measures of health status and quality of life in juvenile rheumatoid arthritis: Pediatric Quality of Life Inventory (PedsQL) Rheumatology Module 3.0, Juvenile Arthritis Quality of Life Questionnaire (JAQQ), Paediatric Rheumatology Quality of Life Scale (PRQL), and Childhood Arthritis Health Profile (CAHP) (pages S438–S445)

      A. C. Carle, E. Morgan Dewitt and M. Seid

      Article first published online: 7 NOV 2011 | DOI: 10.1002/acr.20560

    6. Measures of health-related quality of life in pediatric systemic lupus erythematosus: Childhood Health Assessment Questionnaire (C-HAQ), Child Health Questionnaire (CHQ), Pediatric Quality of Life Inventory Generic Core Module (PedsQL-GC), Pediatric Quality of Life Inventory Rheumatology Module (PedsQL-RM), and Simple Measure of Impact of Lupus Erythematosus in Youngsters (SMILEY) (pages S446–S453)

      Aimee Hersh

      Article first published online: 7 NOV 2011 | DOI: 10.1002/acr.20559

  5. Psychological Measures

    1. Top of page
    2. Editorial
    3. Measures of Pathology and Symptoms
    4. Measures of Function
    5. Measures of Health Status and Quality of Life
    6. Psychological Measures
    7. Commentary
    1. Measures of depression and depressive symptoms: Beck Depression Inventory-II (BDI-II), Center for Epidemiologic Studies Depression Scale (CES-D), Geriatric Depression Scale (GDS), Hospital Anxiety and Depression Scale (HADS), and Patient Health Questionnaire-9 (PHQ-9) (pages S454–S466)

      Karen L. Smarr and Autumn L. Keefer

      Article first published online: 7 NOV 2011 | DOI: 10.1002/acr.20556

    2. Measures of anxiety: State-Trait Anxiety Inventory (STAI), Beck Anxiety Inventory (BAI), and Hospital Anxiety and Depression Scale-Anxiety (HADS-A) (pages S467–S472)

      Laura J. Julian

      Article first published online: 7 NOV 2011 | DOI: 10.1002/acr.20561

    3. Measures of self-efficacy: Arthritis Self-Efficacy Scale (ASES), Arthritis Self-Efficacy Scale-8 Item (ASES-8), Children's Arthritis Self-Efficacy Scale (CASE), Chronic Disease Self-Efficacy Scale (CDSES), Parent's Arthritis Self-Efficacy Scale (PASE), and Rheumatoid Arthritis Self-Efficacy Scale (RASE) (pages S473–S485)

      Teresa J. Brady

      Article first published online: 7 NOV 2011 | DOI: 10.1002/acr.20567

  6. Commentary

    1. Top of page
    2. Editorial
    3. Measures of Pathology and Symptoms
    4. Measures of Function
    5. Measures of Health Status and Quality of Life
    6. Psychological Measures
    7. Commentary
    1. The future of measuring patient-reported outcomes in rheumatology: Patient-Reported Outcomes Measurement Information System (PROMIS) (pages S486–S490)

      Dinesh Khanna, Eswar Krishnan, Esi Morgan Dewitt, Puja P. Khanna, Brennan Spiegel and Ron D. Hays

      Article first published online: 7 NOV 2011 | DOI: 10.1002/acr.20581

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