Genetic susceptibility testing for beryllium: Worker knowledge, beliefs, and attitudes
Version of Record online: 6 MAY 2011
Copyright © 2011 Wiley-Liss, Inc.
American Journal of Industrial Medicine
Volume 54, Issue 7, pages 521–532, July 2011
How to Cite
Silver, K., Kukulka, G., Gorniewicz, J., Rayman, K. and Sharp, R. (2011), Genetic susceptibility testing for beryllium: Worker knowledge, beliefs, and attitudes. Am. J. Ind. Med., 54: 521–532. doi: 10.1002/ajim.20962
- Issue online: 31 MAY 2011
- Version of Record online: 6 MAY 2011
- Manuscript Accepted: 7 APR 2011
- Center to Protect Workers' Rights. Grant Number: 06-3-PS
- CPWR Cooperative Agreement. Grant Number: U54-OH008307
- genetic testing;
- Department of Energy;
- Los Alamos;
- Oak Ridge
We sought to gain insight into workers' knowledge, beliefs, and attitudes on the subject of testing for genetic susceptibility to beryllium.
Five focus groups were held with 30 current and former beryllium workers and nine family members. Audio recordings were transcribed and assessed by hierarchical coding using an inductive approach.
Some workers were unclear about the distinction between genotoxicity and heritability. A key finding is that they perceived the benefits of a positive test result to be related to enhanced autonomous decision-making. The major concern cited by participants was potential abuse of genetic information by employers. Complete financial separation of a prospective testing entity from the employer was seen as crucial.
A window of opportunity exists to create regional partnerships for translational research on genetic susceptibility testing. Such partnerships would involve labor, management, public health scientists, primary care professionals, and other stakeholders. They would be critical to identifying testing strategies that maximize worker autonomy along with the public health advantages of genetic testing. Am. J. Ind. Med. 54:521–532, 2011. © 2011 Wiley-Liss, Inc.