Professional opportunities and responsibilities in the provision of genetic information to children relinquished for adoption
Version of Record online: 19 MAR 2003
Copyright © 2003 Wiley-Liss, Inc.
American Journal of Medical Genetics Part A
Volume 119A, Issue 1, pages 41–46, 15 May 2003
How to Cite
Venne, V. L., Botkin, J. R. and Buys, S. S. (2003), Professional opportunities and responsibilities in the provision of genetic information to children relinquished for adoption. Am. J. Med. Genet., 119A: 41–46. doi: 10.1002/ajmg.a.20071
- Issue online: 14 APR 2003
- Version of Record online: 19 MAR 2003
- Manuscript Accepted: 4 OCT 2002
- Manuscript Received: 5 APR 2002
- The National Cancer Institute (UO1). Grant Number: #CA69446
- The National Center for Research Resources, and Huntsman Cancer Foundation (Public Health Service Research Grant). Grant Number: MO1-RR00064
- genetic privacy;
We report a case involving the disclosure of BRCA1 mutation results to a woman who had placed a child for adoption 30 years prior to learning her mutation status. The disclosure of the mother's genetic test result to the son resulted in unexpected subsequent communications. This article briefly describes the experience and discusses the unique issues that arise in counseling a parent who has relinquished a child who is subsequently at risk to inherit a mutation for an adult onset genetic condition. © 2003 Wiley-Liss, Inc.