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Clinical Report
Professional opportunities and responsibilities in the provision of genetic information to children relinquished for adoption
Article first published online: 19 MAR 2003
DOI: 10.1002/ajmg.a.20071
Copyright © 2003 Wiley-Liss, Inc.
1552-4833/asset/cover.gif?v=1&s=9818ec8c89d0772bf0e752b15694c460afb83f9f "American Journal of Medical Genetics Part A")
Additional Information
How to Cite
Venne, V. L., Botkin, J. R. and Buys, S. S. (2003), Professional opportunities and responsibilities in the provision of genetic information to children relinquished for adoption. Am. J. Med. Genet., 119A: 41–46. doi: 10.1002/ajmg.a.20071
Publication History
- Issue published online: 14 APR 2003
- Article first published online: 19 MAR 2003
- Manuscript Accepted: 4 OCT 2002
- Manuscript Received: 5 APR 2002
Funded by
- The National Cancer Institute (UO1). Grant Number: #CA69446
- The National Center for Research Resources, and Huntsman Cancer Foundation (Public Health Service Research Grant). Grant Number: MO1-RR00064
- Abstract
- Article
- References
- Cited By
Keywords:
- disclosure;
- confidentiality;
- genetic privacy;
- adoption
Abstract
We report a case involving the disclosure of BRCA1 mutation results to a woman who had placed a child for adoption 30 years prior to learning her mutation status. The disclosure of the mother's genetic test result to the son resulted in unexpected subsequent communications. This article briefly describes the experience and discusses the unique issues that arise in counseling a parent who has relinquished a child who is subsequently at risk to inherit a mutation for an adult onset genetic condition. © 2003 Wiley-Liss, Inc.