How to cite this article: Richter MK. 2009. A need for classification agreement: Perspectives from an advocacy group. Am J Med Genet Part A 149A:1977–1979.
A need for classification agreement: Perspectives from an advocacy group†
Article first published online: 5 JUN 2009
Copyright © 2009 Wiley-Liss, Inc.
American Journal of Medical Genetics Part A
Special Issue: Ankyloblepharon-Ectodermal Defects-Cleft Lip and/or Palate Syndrome and Ectodermal Dysplasias
Volume 149A, Issue 9, pages 1977–1979, September 2009
How to Cite
Richter, M. K. (2009), A need for classification agreement: Perspectives from an advocacy group. Am. J. Med. Genet., 149A: 1977–1979. doi: 10.1002/ajmg.a.32784
- Issue published online: 20 AUG 2009
- Article first published online: 5 JUN 2009
- Manuscript Accepted: 4 FEB 2009
- Manuscript Received: 26 JAN 2009
- ectodermal dysplasias;
- advocacy groups
There is a need to focus on the classification of the ectodermal dysplasia syndromes to reach consensus on a classification that satisfies all interested parties. However, whatever scheme is developed, it will have far-reaching application for other groups of disorders for which classification is complicated by the number of interested parties and advances in diagnostic acumen. Consensus among interested parties is necessary for communication among the parties whether it be for equitable distribution of funds, correctness of diagnosis and treatment, or focusing research efforts. Classification of the ectodermal dysplasia syndromes will enable advocacy organizations like the National Foundation for Ectodermal Dysplasias to better serve constituents, to use limited resources more effectively, to move research forward, to find cures and to bring continued hope for the future to those we serve. Having international agreement on these issues will enable all of our organizations to move forward with confidence. © 2009 Wiley-Liss, Inc.