Having a brother or sister with Down syndrome: Perspectives from siblings†
Version of Record online: 9 SEP 2011
Copyright © 2011 Wiley-Liss, Inc.
American Journal of Medical Genetics Part A
Volume 155, Issue 10, pages 2348–2359, October 2011
How to Cite
Skotko, B. G., Levine, S. P. and Goldstein, R. (2011), Having a brother or sister with Down syndrome: Perspectives from siblings. Am. J. Med. Genet., 155: 2348–2359. doi: 10.1002/ajmg.a.34228
How to Cite this Article: Skotko BG, Levine SP, Goldstein R. 2011. Having a brother or sister with Down syndrome: Perspectives from siblings. Am J Med Genet Part A 155:2348–2359.
- Issue online: 20 SEP 2011
- Version of Record online: 9 SEP 2011
- Manuscript Accepted: 30 JUN 2011
- Manuscript Received: 17 MAR 2011
- Tim White Foundation
- Fred Lovejoy House-staff Research and Education Fund
- Joel and Barbara Alpert Endowment for the Children of the City
- Down syndrome;
- trisomy 21;
- prenatal diagnosis;
This study asks brothers and sisters about their feelings and perceptions toward their sibling with Down syndrome (DS). We analyzed valid and reliable surveys from 822 brothers and sisters whose families were on the mailing lists of six non-profit DS organizations around the country. More than 96% of brothers/sisters that responded to the survey indicated that they had affection toward their sibling with DS; and 94% of older siblings expressed feelings of pride. Less than 10% felt embarrassed, and less than 5% expressed a desire to trade their sibling in for another brother or sister without DS. Among older siblings, 88% felt that they were better people because of their siblings with DS, and more than 90% plan to remain involved in their sibling's lives as they become adults. The vast majority of brothers and sisters describe their relationship with their sibling with DS as positive and enhancing. © 2011 Wiley-Liss, Inc.