Version of Record online: 13 SEP 2011
Copyright © 2011 Wiley-Liss, Inc.
American Journal of Medical Genetics Part A
Volume 155, Issue 10, pages 2335–2347, October 2011
How to Cite
Skotko, B. G., Levine, S. P. and Goldstein, R. (2011), Having a son or daughter with Down syndrome: Perspectives from mothers and fathers. Am. J. Med. Genet., 155: 2335–2347. doi: 10.1002/ajmg.a.34293
Brian G. Skotko and Susan P. Levine are
How to Cite this Article: Skotko BG, Levine SP, Goldstein R. 2011. Having a son or daughter with Down syndrome: Perspectives from mothers and fathers. Am J Med Genet Part A 155:2335–2347.
- Issue online: 20 SEP 2011
- Version of Record online: 13 SEP 2011
- Manuscript Accepted: 29 JUL 2011
- Manuscript Received: 17 MAR 2011
- Tim White Foundation
- Fred Lovejoy House-Staff Research and Education Fund
- Joel and Barbara Alpert Endowment for the Children of the City
- Down syndrome;
- prenatal diagnosis;
- trisomy 21
This study asks parents who have children with Down syndrome (DS) how they feel about their lives so that such information could be shared with expectant couples during prenatal counseling sessions. A valid and reliable survey instrument was mailed to 4,924 households on the mailing lists of six non-profit DS organizations. Of the 2,044 respondents, 99% reported that they love their son or daughter; 97% were proud of them; 79% felt their outlook on life was more positive because of them; 5% felt embarrassed by them; and 4% regretted having them. The parents report that 95% of their sons or daughters without DS have good relationships with their siblings with DS. The overwhelming majority of parents surveyed report that they are happy with their decision to have their child with DS and indicate that their sons and daughters are great sources of love and pride. © 2011 Wiley-Liss, Inc.