The Role of Social Networking Sites in Medical Genetics Research
Article first published online: 29 MAR 2013
Copyright © 2013 Wiley Periodicals, Inc.
American Journal of Medical Genetics Part A
Volume 161, Issue 5, pages 951–957, May 2013
How to Cite
2013. The role of social networking sites in medical genetics research. Am J Med Genet Part A 161A:951–957., .
- Issue published online: 22 APR 2013
- Article first published online: 29 MAR 2013
- Manuscript Accepted: 25 JAN 2013
- Manuscript Received: 14 AUG 2012
- social network;
- medical genetics;
- human subjects
Social networking sites (SNS) have potential value in the field of medical genetics as a means of research subject recruitment and source of data. This article examines the current role of SNS in medical genetics research and potential applications for these sites in future studies. Facebook is the primary SNS considered, given the prevalence of its use in the United States and role in a small but growing number of studies. To date, utilization of SNS in medical genetics research has been primarily limited to three studies that recruited subjects from populations of Facebook users [McGuire et al. (2009); Am J Bioeth 9: 3–10; Janvier et al. (2012); Pediatrics 130: 293–298; Leighton et al. (2012); Public Health Genomics 15: 11–21]. These studies and a number of other medical and public health studies that have used Facebook as a context for recruiting research subjects are discussed. Approaches for Facebook-based subject recruitment are identified, including paid Facebook advertising, snowball sampling, targeted searching and posting. The use of these methods in medical genetics research has the potential to facilitate cost-effective research on both large, heterogeneous populations and small, hard-to-access sub-populations. © 2013 Wiley Periodicals, Inc.