Article

“You're one of us now”: Young people describe their experiences of predictive genetic testing for Huntington disease (HD) and familial adenomatous polyposis (FAP)†

  1. Rony E. Duncan‡,*,
  2. Lynn Gillam§,
  3. Julian Savulescu,
  4. Robert Williamson‖,
  5. John G. Rogers††,
  6. Martin B. Delatycki‡‡

Article first published online: 11 JAN 2008

DOI: 10.1002/ajmg.c.30158

Issue

American Journal of Medical Genetics Part C: Seminars in Medical Genetics

American Journal of Medical Genetics Part C: Seminars in Medical Genetics

Special Issue: Children and Genetics: Ethics and Policy

Volume 148C, Issue 1, pages 47–55, 15 February 2008

Additional Information

How to Cite

Duncan, R. E., Gillam, L., Savulescu, J., Williamson, R., Rogers, J. G. and Delatycki, M. B. (2008), “You're one of us now”: Young people describe their experiences of predictive genetic testing for Huntington disease (HD) and familial adenomatous polyposis (FAP). Am. J. Med. Genet., 148C: 47–55. doi: 10.1002/ajmg.c.30158

Author Information

  1. ‡

    Rony Duncan is a Postdoctoral Research Fellow at the Centre for Adolescent Health, Murdoch Childrens Research Institute in Melbourne and an Honorary Fellow of the Department of Paediatrics, University of Melbourne, Australia.

  2. §

    Lynn Gillam is Associate Professor in Health Ethics at the School of Population Health, University of Melbourne, and Clinical Ethicist at the Royal Children's Hospital in Melbourne, Australia.

  3. Julian Savulescu is Uehiro Chair in Practical Ethics and Director of the Oxford Uehiro Centre for Practical Ethics at the University of Oxford, UK.

  4. ‖

    Robert Williamson was Director of the Murdoch Childrens Research Institute until the end of 2004. He is Professor of Medical Genetics at the University of Melbourne and Chair of the National Committee for Medicine of the Australian Academy of Science.

  5. ††

    John Rogers is a consultant senior medical geneticist working at Genetic Health Services Victoria and a psychotherapist in private practice in Melbourne, Australia.

  6. ‡‡

    Martin Delatycki is Director of the Bruce Lefroy Centre for Genetic Health Research at the Murdoch Childrens Research Institute and a clinical geneticist at Genetic Health Services Victoria in Melbourne, Australia.

*Centre for Adolescent Health, 2 Gatehouse St, Parkville, 3052 Victoria, Australia.

  1. †

    How to cite this article: Duncan RE, Gillam L, Savulescu J, Williamson R, Rogers JG, Delatycki MB. 2008. “You're one of us now”: Young people describe their experiences of predictive genetic testing for Huntington disease (HD) and familial adenomatous polyposis (FAP). Am J Med Genet Part C Semin Med Genet 148C:47–55.

Publication History

  1. Issue published online: 23 JAN 2008
  2. Article first published online: 11 JAN 2008

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