Domains of health-related quality of life important to patients with giant cell arteritis
Article first published online: 8 DEC 2003
Copyright © 2003 by the American College of Rheumatology
Arthritis Care & Research
Volume 49, Issue 6, pages 819–825, 15 December 2003
How to Cite
Hellmann, D. B., Uhlfelder, M. L., Stone, J. H., Jenckes, M. W., Cid, M. C., Guillevin, L., Moreland, L., Dellaripa, P. F., Hoffman, G. S., Merkel, P. A., Spiera, R., Brown, L., Hernández-Rodríguez, J. and Rubin, H. R. (2003), Domains of health-related quality of life important to patients with giant cell arteritis. Arthritis & Rheumatism, 49: 819–825. doi: 10.1002/art.11464
- Issue published online: 8 DEC 2003
- Article first published online: 8 DEC 2003
- Manuscript Accepted: 2 NOV 2002
- Manuscript Received: 21 JUN 2002
- Sacharuna Foundation
- Quality of life;
- Giant cell arteritis;
To determine aspects of quality of life (QOL) important to people with giant cell arteritis (GCA).
We explored the domains of QOL affected by GCA in audiotaped focus groups. We then created an Importance Rating Questionnaire (IRQ) by constructing questions related to the domains most frequently mentioned. Of 214 GCA patients to whom the IRQ was sent, 145 (68%) responded. We calculated frequencies of responses and then ranked items by the proportion selecting the top category of importance and also according to a mean item rank. We compared the domains of QOL covered by the IRQ with those in the Short Form 12 (SF-12).
The highest rated QOL item was “losing sight in both eyes permanently.” Of the top 20 items, 12 were in domains not covered directly by the SF-12.
We have identified aspects of QOL important to GCA patients. Assessment of QOL in GCA should include vision and other domains that are not included in standard QOL questionnaires.