An educational needs assessment of children with juvenile rheumatoid arthritis
Version of Record online: 8 DEC 2005
Copyright © 1994 American College of Rheumatology
Arthritis & Rheumatism
Volume 7, Issue 3, pages 136–143, September 1994
How to Cite
Bartholomew, L. K., Koenning, G., Dahlquist, L. and Barron, K. (1994), An educational needs assessment of children with juvenile rheumatoid arthritis. Arthritis & Rheumatism, 7: 136–143. doi: 10.1002/art.1790070307
- Issue online: 8 DEC 2005
- Version of Record online: 8 DEC 2005
- Manuscript Accepted: 28 APR 1994
- Manuscript Received: 26 APR 1994
- Maternal and Child Health Bureau, HRSA, DHHS. Grant Number: MCJ 485070
- Juvenile rheumatoid arthritis;
- PRECEDE model;
- Needs assessment data;
- Educational intervention
Objective. Our objective is to describe the use of the PRECEDE model (predisposing, reinforcing, and enabling causes in educational diagnosis and evaluation) to organize needs assessment data in order to define self-management behaviors and plan an educational intervention for children with juvenile rheumatoid arthritis (JRA) and their famihies.
Methods. Analysis was done of needs assessment data collected from several sources: 1) literature review, 2) survey of parents of 51 children with JRA, 3) group interview of seven parents of children with JRA, 4) results of pilot programs, and 5) clinical experience of an interdisciplinary pediatric rheumatology team.
Results. Two sets of interrelated behavioral factors were identified through the needs assessment: 1) those related to managing the school environment to facilitate optimal participation and to minimize schoolrelated disability, and 2) those related to treating pain and stiffness, intervening in the disease process, and preserving joint function.
Conclusion. Both of these sets of behavioral factors may be related to the optimization of children's mobility, joint function, and autonomy of activities of daily living and should be targets of an educational intervention.