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Health-related quality of life in juvenile-onset systemic lupus erythematosus and its relationship to disease activity and damage

  1. Nicolino Ruperto1,
  2. Silvia Buratti1,
  3. Carolina Duarte-Salazar2,
  4. Angela Pistorio1,
  5. Andreas Reiff3,
  6. Bram Bernstein3,
  7. Maria Rocío Maldonado-Velázquez4,
  8. Rosalía Beristain-Manterola5,
  9. Nobuaki Maeno6,
  10. Syuji Takei6,
  11. Fernanda Falcini7,
  12. Loredana Lepore8,
  13. Charles H. Spencer9,
  14. Polixeni Pratsidou-Gertsi10,
  15. Alberto Martini1,
  16. Angelo Ravelli1,*

Article first published online: 3 JUN 2004

DOI: 10.1002/art.20412

Issue

Arthritis Care & Research

Arthritis Care & Research

Volume 51, Issue 3, pages 458–464, 15 June 2004

Additional Information

How to Cite

Ruperto, N., Buratti, S., Duarte-Salazar, C., Pistorio, A., Reiff, A., Bernstein, B., Maldonado-Velázquez, M. R., Beristain-Manterola, R., Maeno, N., Takei, S., Falcini, F., Lepore, L., Spencer, C. H., Pratsidou-Gertsi, P., Martini, A. and Ravelli, A. (2004), Health-related quality of life in juvenile-onset systemic lupus erythematosus and its relationship to disease activity and damage. Arthritis & Rheumatism, 51: 458–464. doi: 10.1002/art.20412

Author Information

  1. 1

    Università di Genova, Istituto di Ricovero e Cura a Carattere Scientifico G. Gaslini, Genova, Italy

  2. 2

    Centro Nacional de Rehabilitación, Mexico City, Mexico

  3. 3

    Childrens Hospital Los Angeles, Los Angeles, California

  4. 4

    Hospital Infantil de México Federico Gómez, Mexico City, Mexico

  5. 5

    Hospital General de México, Mexico City, Mexico

  6. 6

    Kagoshima University, Kagoshima, Japan

  7. 7

    Ospedale Meyer, Firenze, Italy

  8. 8

    Istituto di Ricovero e Cura a Carattere Scientifico G. Gaslini Burlo Garofalo, Trieste, Italy

  9. 9

    La Rabida Children's Hospital, Chicago, Illinois

  10. 10

    Aristotle University of Thessaloniki, Thessaloniki, Greece

*Pediatria II, IRCCS G. Gaslini, Largo G. Gaslini 5, 16147 Genova, Italy

Publication History

  1. Issue published online: 3 JUN 2004
  2. Article first published online: 3 JUN 2004
  3. Manuscript Accepted: 8 AUG 2003
  4. Manuscript Received: 22 FEB 2003

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REFERENCES

  • 1
    Petty RE, Cassidy JT. Systemic lupus erythematosus. In: CassidyJT, PettyRE, editors. Textbook of pediatric rheumatology, 4th ed. Philadelphia: WB Saunders; 2001. p. 396–449.
  • 2
    Brunner HI, Silverman ED, To T, Bombardier C, Feldman BM. Risk factors for damage in childhood-onset systemic lupus erythematosus: cumulative disease activity and medication use predict disease damage. Arthritis Rheum 2002; 46: 436–44.
    Direct Link:
  • 3
    Ravelli A, Duarte-Salazar C, Buratti S, Reiff A, Bernstein B, Maldonado-Velazquez MR, et al. Assessment of damage in juvenile-onset systemic lupus erythematosus: a multicenter cohort study. Arthritis Rheum 2003; 49: 501–7.
    Direct Link:
  • 4
    Gladman DD, Urowitz MB, Fortin P, Isenberg D, Goldsmith C, Gordon C, et al. Systemic Lupus International Collaborating Clinics conference on assessment of lupus flare and quality of life measures in SLE. J Rheumatol 1996; 23: 1953–5.
  • 5
    Smolen J, Strand V, Cardiel M, Edworthy S, Furst D, Gladman D, et al. Randomized clinical trials and longitudinal observational studies in systemic lupus erythematosus: consensus on a preliminary core set of outcome domains. J Rheumatol 1999; 26: 504–7.
  • 6
    Tan EM, Cohen AS, Fries JF, Masi AT, McShane DJ, Rothfield NF, et al. The 1982 revised criteria for the classification of systemic lupus erythematosus. Arthritis Rheum 1982; 25: 1271–7.
    Direct Link:
  • 7
    Ruperto N, Ravelli A, Pistorio A, Malattia C, Viola S, Cavuto S, et al. The Italian version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin Exp Rheumatol 2001; 19 Suppl 23; S91–3.
  • 8
    Pratsidou-Gertsi P, Vougiouka O, Tsitsami E, Ruperto N, Siamopoulou-Mavridou A, Dracou C, et al. The Greek version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin Exp Rheumatol 2001; 19 Suppl 23: S76–80.
  • 9
    Landgraf JM, Abetz L, Ware JEJ: The CHQ user's manual, 1st ed. Boston: The Health Institute, New England Medical Center; 1996.
  • 10
    Duarte C, Ruperto N, Goycochea MV, Maldonado R, Beristain R, De Inocencio J, et al. The Mexican version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health Questionnaire (CHQ). Clin Exp Rheumatol 2001; 19 Suppl 23: S106–10.
  • 11
    Bombardier C, Gladman DD, Urowitz MB, Charron D, Chang CH, The Committee on Prognosis Studies in SLE. Derivation of the SLEDAI: a disease activity index for lupus patients. Arthritis Rheum 1992; 35: 630–40.
    Direct Link:
  • 12
    Gladman DD, Ginzler E, Goldsmith CH, Fortin P, Liang M, Urowitz MB, et al. The development and initial validation of the Systemic Lupus International Collaborating Clinics/American College of Rheumatology damage index for systemic lupus erythematosus. Arthritis Rheum 1996; 39: 363–9.
    Direct Link:
  • 13
    Gladman DD, Urowitz MB, Goldsmith CH, Fortin P, Ginzler E, Gordon C, et al. The reliability of the Systemic Lupus International Collaborating Clinics/American College of Rheumatology Damage Index in patients with systemic lupus erythematosus. Arthritis Rheum 1997; 40: 809–13.
    Direct Link:
  • 14
    Tucker LB. Whose life is it anyway: understanding quality of life in children with rheumatic diseases. J Rheumatol 2000; 27: 8–11.
  • 15
    Burgos-Vargas R. Assessment of quality of life in children with rheumatic diseases. J Rheumatol 1999; 26: 1432–5.
  • 16
    Wang C, Mayo E, Fortin PR. The relationship between health related quality of life and disease activity and damage in systemic lupus erythematosus. J Rheumatol 2001; 28: 25–32.
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