• 1
    Gijsen R, Poos MJJC, editors. Reumatoïde artritis samengevat. In: Volksgezondheid Toekomstverkenning, Nationaal Kompas Volksgezondheid. Bilthoven: RIVM; 2001. URL:
  • 2
    Wolleswinkel-van den Bosch JH, Hoeymans N. Wat is de kwaliteit van leven met reumatoïde artritis? In: Volksgezondheid Toekomstverkenning, Nationaal Kompas Volksgezondheid. Bilthoven: RIVM; 2002. URL:
  • 3
    Young A, Dixey J, Cox N, Davies P, Devlin J, Emery P, et al. How does functional disability in early rheumatoid arthritis (RA) affect patients and their lives: results of 5 years of follow-up in 732 patients from the Early RA Study (ERAS). Rheumatology 2000; 39: 60311.
  • 4
    Riemsma RP. Challenging arthritis: the role of self-management, formal and informal care [PhD Thesis]. Enschede, The Netherlands: University of Twente; 1998.
  • 5
    van Jaarsveld CHM, Jacobs JWG, Schrijvers AJP, van Albada-Kuijpers GA, Hofman DM, Bijlsma JWJ. Effects of rheumatoid arthritis on employment and social participation during the first years of disease in the Netherlands. Br J Rheumatol 1998; 37: 84853.
  • 6
    Albers JCM, Kuper HH, van Riel PLCM, Prevoo MLL, van 't Hof MA, van Gestel AM, et al. Socio-economic consequences of rheumatoid arthritis in the first years of the disease. Rheumatology 1999; 38: 42330.
  • 7
    Waltz M. The disease process and utilization of health services in rheumatoid arthritis: the relative contributions of various markers of disease severity in explaining consumption patterns. Arthritis Care Res 2000; 13: 7488.
  • 8
    Jacobi CE, Triemstra M, Rupp I, Dinant HJ, van den Bos GA. Health care utilization among rheumatoid arthritis patients referred to a rheumatology center: unequal needs, unequal care? Arthritis Rheum 2001; 45: 32430.
  • 9
    Montgomery RJV, Gonyea JG, Hooyman NR. Caregiving and the experience of subjective and objective burden. Fam Relations 1985; 43: 1926.
  • 10
    Nijboer C, Triemstra M, Tempelaar R, Sanderman R, van den Bos GAM. Determinants of caregiving experiences and mental health of partners of cancer patients. Cancer 1999; 86: 57788.
  • 11
    Schulz R, Beach SR. Caregiving as a risk factor for mortality: the caregiver health effects study. JAMA 1999; 282: 22159.
  • 12
    Given CW, Given B, Stommel M, Collins C, King S, Franklin S. The Caregiver Reaction Assessment (CRA) for caregivers to persons with chronic physical and mental impairment. Res Nurs Health 1992; 15: 27183.
  • 13
    Van Exel NJ, Scholte op Reimer WJ, Brouwer WB, van de Berg B, Koopmanschap MA, van den Bos GA. Instruments for assessing the burden of informal caregiving for stroke patients in clinical practice: a comparison of CSI, CRA, SCQ and self-rated burden. Clin Rehab 2004; 18: 20314.
  • 14
    EuroQol Group. EuroQol—a new facility for the measurement of health-related quality of life. Health Policy. 1999; 16: 199208.
  • 15
    Dolan P. Modelling valuations for EuroQol health states. Med Care 1997; 35: 1095108.
  • 16
    Kind P, Hardman G, Macran S. UK population norms for EQ-5D: discussion paper 172. York: The University of York, Centre for Health Economics; 1999.
  • 17
    Van den Berg B, Brouwer WBF, van Exel NJA, Koopmanschap MA, van den Bos GAM, Rutten FFH. Economic evaluation of informal care: lessons from the application of the opportunity cost and the proxy good method. In press.