Patients' perceptions of fatigue in rheumatoid arthritis: Overwhelming, uncontrollable, ignored
Version of Record online: 5 OCT 2005
Copyright © 2005 by the American College of Rheumatology
Arthritis Care & Research
Volume 53, Issue 5, pages 697–702, 15 October 2005
How to Cite
Hewlett, S., Cockshott, Z., Byron, M., Kitchen, K., Tipler, S., Pope, D. and Hehir, M. (2005), Patients' perceptions of fatigue in rheumatoid arthritis: Overwhelming, uncontrollable, ignored. Arthritis & Rheumatism, 53: 697–702. doi: 10.1002/art.21450
- Issue online: 5 OCT 2005
- Version of Record online: 5 OCT 2005
- Manuscript Accepted: 4 MAY 2005
- Manuscript Received: 24 JAN 2005
- Non-Medical Research Committee United Bristol Healthcare Trust
- Arthritis Research Campaign
- Rheumatoid arthritis;
Fatigue is commonly reported by patients with rheumatoid arthritis (RA) but is rarely a treatment target. The aim of this study was to explore the concept of fatigue as experienced by patients with RA.
Fifteen patients with RA and fatigue (≥7 on a 10-cm visual analog scale) were individually interviewed and asked about the description, cause, consequence, and management of fatigue. Transcripts were systematically analyzed by 2 researchers independently, relevant phrases were coded, and earlier transcripts were checked for the emerging codes. A random sample of analyses were independently reviewed. A total of 191 codes arising from the data were grouped into 46 categories and overarching themes.
Vivid descriptions reflect 2 types of fatigue: severe weariness and dramatic overwhelming fatigue. RA fatigue is different from normal tiredness because it is extreme, often not earned, and unresolving. Participants described physical, cognitive, and emotional components and attributed fatigue to inflammation, working the joints harder, and unrefreshing sleep. Participants described far-reaching effects on physical activities, emotions, relationships, and social and family roles. Participants used self-management strategies but with limited success. Most did not discuss fatigue with clinicians but when they did, they felt it was dismissed. Participants held negative views on the management of fatigue.
The data show that RA fatigue is important, intrusive, and overwhelming, and patients struggle to manage it alone. These data on the complexity of fatigue experiences will help clinicians design measures, interventions, and self-managment guidance.