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REFERENCES

  • 1
    Symmons D, Asten P, McNally R, Webb R. Health care need assessment for musculoskeletal diseases: the first step: estimating the number of incident and prevalent cases. Chesterfield (Derbyshire): Arthritis Research Campaign; 2002.
  • 2
    Shaw KL, Southwood TR, McDonagh JE, and the British Paediatric Rheumatology Group. User perspectives of transitional care for adolescents with juvenile idiopathic arthritis. Rheumatology (Oxford) 2004; 43: 7708.
  • 3
    Suris JC, Michaud PA, Viner R. The adolescent with a chronic condition. Part I: developmental issues. Arch Dis Child 2004; 89: 93842.
  • 4
    Leak AM. The management of arthritis in adolescence. Br J Rheumatol 1994; 33: 8828.
  • 5
    Eiser C, Morse R. Quality-of-life measures in chronic diseases of childhood. Health Technol Assess 2001; 5: 1157.
  • 6
    Sawyer MG, Whitham JN, Roberton DM, Taplin JE, Varni JW, Baghurst PA. The relationship between health-related quality of life, pain and coping strategies in juvenile idiopathic arthritis. Rheumatology (Oxford) 2004; 43: 32530.
  • 7
    Brunner HI, Giannini EH. Health-related quality of life in children with rheumatic diseases. Curr Opin Rheumatol 2003; 15: 60212.
  • 8
    Feldman BM, Grundland B, McCullough L, Wright V. Distinction of quality of life, health related quality of life, and health status in children referred for rheumatologic care. J Rheumatol 2000; 27: 22633.
  • 9
    World Health Organization. Final report: Regional Working Group on Health Needs of Adolescents. Manilla, Philippines: World Health Organisation; 1980.
  • 10
    Riley AW. Evidence that school-age children can self-report on their health. Ambul Pediatr 2004; 4 Suppl: 3716.
  • 11
    Department of Health. National service framework for children, young people and maternity services. URL: http://www.dh.gov.uk/PolicyAndGuidance/HealthAndSocialCareTopics/ChildrenServices/ChildrenServicesInformation/fs/en.
  • 12
    Children's Act. London: HMSO; 1989.
  • 13
    United Nations. Convention on the rights of the child. Geneva: United Nations; 1989.
  • 14
    Gill TM, Feinstein AR. A critical appraisal of the quality of quality-of-life measurements. JAMA 1994; 272: 61926.
  • 15
    Varni JW, Seid M, Knight TS, Burwinkle T, Brown J, Szer IS. The PedsQL™ in pediatric rheumatology: reliability, validity, and responsiveness of the Pediatric Quality of Life Inventory™ generic core scales and rheumatology module. Arthritis Rheum 2002; 46: 71425.
  • 16
    Duffy CM, Arsenault L, Duffy KN, Paquin JD, Strawczynski H. The Juvenile Arthritis Quality of Life Questionnaire: development of a new responsive index for juvenile rheumatoid arthritis and juvenile spondyloarthritides. J Rheumatol 1997; 24: 73846.
  • 17
    McDonagh JE, Southwood TR, Shaw KL, and the British Society of Paediatric and Adolescent Rheumatology. Growing up and moving on in rheumatology: development and preliminary evaluation of a transitional care programme for a multicentre cohort of adolescents with juvenile idiopathic arthritis. J Child Health Care. In press.
  • 18
    Petty RE, Southwood TR, Baum J, Bhettay E, Glass DN, Manners P, et al. Revision of the proposed classification criteria for juvenile idiopathic arthritis: Durban, 1997. J Rheumatol 1998; 25: 19914.
  • 19
    Shaw KL, Southwood TR, McDonagh JE, and the British Society of Paediatric and Adolescent Rheumatology. Growing up and moving on in rheumatology: a multicentre cohort of adolescents with juvenile idiopathic arthritis. Rheumatology (Oxford) 2005; 44: 80612.
  • 20
    The National Statistics Socio-Economic Classification User Manual. London: HMSO; 2004. URL: www.statistics.gov.uk.
  • 21
    Giannini EH, Ruperto N, Ravelli A, Lovell DJ, Felson DT, Martini A. Preliminary definition of improvement in juvenile arthritis. Arthritis Rheum 1997; 40: 12029.
  • 22
    Nugent J, Ruperto N, Grainger J, Machado C, Sawhney S, Baildam E, et al, and the Paediatric Rheumatology International Trials Organisation. The British version of the Childhood Health Assessment Questionnaire (CHAQ) and the Child Health questionnaire (CHQ). Clin Exp Rheumatol 2001; 19 Suppl 23: S1637.
  • 23
    McDonagh JE, Southwood TR, Shaw KL, and the British Society of Paediatric and Adolescent Rheumatology. Growing up and moving on in Rheumatology: disease knowledge in a multicentre cohort of adolescents with juvenile idiopathic arthritis [abstract]. Arch Dis Child 2005; 90 Suppl II: G123.
  • 24
    Bryman A, Cramer D. Quantitative data analysis with SPSS for Windows: a guide for social scientists. London: Routledge; 1997.
  • 25
    Cohen L, Holliday M. Statistics for social scientists. London: Harper and Row; 1982.
  • 26
    Holman HR, Lorig K. Perceived self-efficacy in self-management of chronic disease. In: SchwarzerR, editor. Self-efficacy: thought control of action. London: Hemisphere Publishing Corporation; 1992.
  • 27
    Barlow JH, Turner AP, Wright CC. A randomized controlled study of the Arthritis Self-Management Programme in the UK. Health Educ Res 2000; 15: 66580.
  • 28
    Barlow JH, Turner AP, Wright CC. Long-term outcomes of an arthritis self-management programme. Br J Rheumatol 1998; 37: 13159.
  • 29
    Lorig K, Holman H. Arthritis self-management studies: a twelve-year review. Health Educ Q 1993; 20: 1728.
  • 30
    Adam V, St-Pierre Y, Fautrel B, Clarke AE, Duffy CM, Penrod JR. What is the impact of adolescent arthritis and rheumatism? Evidence from a national sample of Canadians. J Rheumatol 2005; 32: 35461.
  • 31
    Meltzer H, Gatward R, Goodman R, Ford T. The mental health of children and adolescents in Great Britain. 2nd ed. London: Office for National Statistics; 2000.
  • 32
    Fleming JE, Offord DR, Boyle MH. Prevalence of childhood and adolescent depression in the community: Ontario Child Health Study. Br J Psychiatry 1989; 155: 64754.
  • 33
    Packham JC, Hall MA, Pimm TJ. Long-term follow-up of 246 adults with juvenile idiopathic arthritis: predictive factors for mood and pain. Rheumatology (Oxford) 2002; 41: 14449.
  • 34
    Palermo TM, Kiska R. Subjective sleep disturbances in adolescents with chronic pain: relationship to daily functioning and quality of life. J Pain 2005; 6: 2017.
  • 35
    Schanberg LE, Sandstrom MJ, Starr K, Gil KM, Lefebvre JC, Keefe FJ, et al. The relationship of daily mood and stressful events to symptoms in juvenile rheumatic disease. Arthritis Care Res 2000; 13: 3341.
  • 36
    Carskadon MA. Sleep difficulties in young people. Arch Pediatr Adolesc Med 2004; 158: 5978.
  • 37
    McDonagh JE. Growing up and moving on: transition from pediatric to adult care. Pediatr Transplant 2005; 9: 36472.
  • 38
    Shaw KL, Southwood TR, McDonagh JE, and the British Society of Paediatric and Adolescent Rheumatology. Growing up and moving on in rheumatology: transitional care and quality of life in a multicentre cohort of adolescents with juvenile idiopathic arthritis (JIA) [abstract]. Rheumatology (Oxford) 2005; 44 Suppl 1: i92.
  • 39
    Sim J, Wright C. Research in health care: concepts, design and methods. Cheltenham: Nelson Thornes; 2000.
  • 40
    Dashiff C. Data collection with adolescents. J Adv Nurs 2001; 33: 3439.
  • 41
    Foster HE, Marshall N, Myers A, Dunkley P, Griffiths ID. Outcome in adults with juvenile idiopathic arthritis: a quality of life study. Arthritis Rheum 2003; 48: 76775.
  • 42
    Packham JC, Hall MA. Long-term follow-up of 246 adults with juvenile idiopathic arthritis: social function, relationships and sexual activity. Rheumatology (Oxford) 2002; 41: 14403.
  • 43
    Packham JC, Hall MA. Long-term follow-up of 246 adults with juvenile idiopathic arthritis: education and employment. Rheumatology (Oxford) 2002; 41: 14369.
  • 44
    Packham JC, Hall MA. Long-term follow-up of 246 adults with juvenile idiopathic arthritis: functional outcome. Rheumatology (Oxford) 2002; 41: 142835.
  • 45
    Blum RW, Garell D, Hodgman CH, Jorissen TW, Okinow NA, Orr DP, et al. Transition from child-centered to adult health-care systems for adolescents with chronic conditions: a position paper of the Society for Adolescent Medicine. J Adolesc Health 1993; 14: 5706.