• 1
    Petty RE, Southwood TR, Baum J, Bhettay E, Glass DN, Manners P, et al. Revision of the proposed classification criteria for juvenile idiopathic arthritis: Durban, 1997. J Rheumatol 1998; 25: 19914.
  • 2
    Duffy CM. Patient centred-care and the team approach. In: SzerI, KimuraY, MallesonP, SouthwoodT, editors. Arthritis in children and adolescents: juvenile idiopathic arthritis. Oxford: Oxford University Press; 2006. p. 30314.
  • 3
    Sturge C, Garralda ME, Boissin M, Dore CJ, Woo P. School attendance and juvenile chronic arthritis. Br J Rheumatol 1997; 36: 121823.
  • 4
    Rapoff MA. Adherence to pediatric medical regimens. New York: Kluwer Academic/Plenum; 1999.
  • 5
    Matsui DM. Children's adherence to medication treatment. In: DrotarD, editor. Promoting adherence to medical treatment in chronic childhood illness: concepts, methods, and interventions. Mahwah (NJ): Lawrence Erlbaum Associates; 2000. p. 13552.
  • 6
    De Civita M, Dobkin PL. Pediatric adherence as a multidimensional and dynamic construct, involving a triadic partnership [published erratum appears in J Pediatr Psychol 2004;29:following 404]. J Pediatr Psychol 2004; 29: 15769.
  • 7
    De Civita M, Dobkin PL. Pediatric adherence: conceptual and methodological considerations. Child Health Care 2005; 34: 1934.
  • 8
    La Greca AM, Bearman KJ. If “an apple a day keeps the doctor away,” why is adherence so darn hard? J Pediatr Psychol 2001; 26: 27982.
  • 9
    Davis CL, Delamater AM, Shaw KH, La Greca AM, Eidson MS, Perez-Rodriguez JE, et al. Parenting styles, regimen adherence, and glycemic control in 4- to 10-year-old children with diabetes. J Pediatr Psychol 2001; 26: 1239.
  • 10
    De Civita M, Dobkin PL, Ehrmann-Feldman F, Karp I, Duffy CM. Development and preliminary reproducibility and validity of the Parent Adherence Report Questionnaire: a measure of adherence in juvenile idiopathic arthritis. J Clin Psychol Med Settings 2005; 12: 112.
  • 11
    Glasgow RE, McCaul KD, Schafer LC. Self-care behaviors and glycemic control in type 1 diabetes. J Chron Dis 1987; 40: 399412.
  • 12
    Law GU, Kelly TP, Huey D, Summerbell C. Self-management and well-being in adolescents with diabetes mellitus: do illness representations play a regulatory role? J Adolesc Health 2002; 31: 3815.
  • 13
    Ott J, Greening L, Palardy N, Holderby A, DeBell WK. Self-efficacy as a mediator variable for adolescents' adherence to treatment for insulin-dependent diabetes mellitus. Child Health Care 2000; 29: 4763.
  • 14
    Schafer LC, Glasgow RE, McCaul KD, Dreher M. Adherence to IDDM regimens: relationship to psychosocial variables and metabolic control. Diabetes Care 1983; 6: 4938.
  • 15
    Wysocki T, Greco P, Harris MA, Bubb J, White NH. Behavior therapy for families of adolescents with diabetes: maintenance of treatment effects. Diabetes Care 2001; 24: 4416.
  • 16
    Gudas LJ, Koocher GP, Wypij D. Perceptions of medical compliance in children and adolescents with cystic fibrosis. J Dev Behav Pediatr 1991; 12: 23642.
  • 17
    Page P, Verstraete DG, Robb JR, Etzwiler DD. Patient recall of self-care recommendations in diabetes. Diabetes Care 1981; 4: 968.
  • 18
    Rusakow LS, Miller T, McCarthy CA, Gershan WM, Splaingard ML. Unsuspected nonadherence with recommended pancreatic enzyme administration in patients with cystic fibrosis. Child Health Care 1998; 27: 25964.
  • 19
    Leickly FE, Wade SL, Crain E, Kruszon-Moran D, Wright EC, Evans R 3rd. Self-reported adherence, management behavior, and barriers to care after an emergency department visit by inner city children with asthma [article online]. Pediatrics 1998; 101: E8. URL:
  • 20
    Celano M, Geller RJ, Phillips KM, Ziman R. Treatment adherence among low-income children with asthma. J Pediatr Psychol 1998; 23: 3459.
  • 21
    Modi AC, Quittner AL. Barriers to treatment adherence for children with cystic fibrosis and asthma: what gets in the way [article online]. J Pediatr Psychol 2006; 31: 84658. URL:
  • 22
    Ottenbacher KJ. An examination of reliability in developmental research. J Dev Behav Pediatr 1995; 16: 17782.
  • 23
    Feinstein AR, Cicchetti DV. High agreement but low kappa. I. The problems of two paradoxes. J Clin Epidemiol 1990; 43: 5439.
  • 24
    Ehrmann Feldman D, Duffy C, De Civita M, Malleson P, Philibert L, Gibbon M, et al. Factors associated with use of complementary and alternative medicine in juvenile idiopathic arthritis. Arthritis Rheum 2004; 51: 52732.
  • 25
    Singh G, Athreya BH, Fries JF, Goldsmith DP. Measurement of health status in children with juvenile rheumatoid arthritis. Arthritis Rheum 1994; 37: 17619.
  • 26
    Landis JR, Koch GG. The measurement of observer agreement for categorical data. Biometrics 1977; 33: 15974.
  • 27
    Di Matteo MR. Practitioner-family-patient communication in pediatric adherence: implications for research and clinical practice. In: DrotarD, editor. Promoting adherence to medical treatment in chronic childhood illness: concepts, methods and interventions. Mahwah (NJ): Lawrence Erlbaum Associates; 2000. p. 23758.
  • 28
    Ievers CE, Brown RT, Drotar D, Caplan D, Pishevar BS, Lambert RG. Knowledge of physician prescriptions and adherence to treatment among children with cystic fibrosis and their mothers. J Dev Behav Pediatr 1999; 20: 33543.
  • 29
    Degotardi PJ, Revenson TA, Ilowite NT. Family-level coping in juvenile rheumatoid arthritis: assessing the utility of a quantitative family interview. Arthritis Care Res 1999; 12: 31424.
  • 30
    Hayford JR, Ross CK. Medical compliance in juvenile rheumatoid arthritis. Arthritis Care Res 1988; 1: 1907.