• 1
    Conaghan PG, Green MJ, Emery P. Established rheumatoid arthritis [review]. Baillieres Best Pract Clin Rheumatol 1999; 13: 56175.
  • 2
    Tack BB. Fatigue in rheumatoid arthritis: conditions, strategies and consequences. Arthritis Care Res 1990; 3: 6570.
  • 3
    Wolfe F, Hawley DJ, Wilson K. The prevalence and meaning of fatigue in rheumatic disease. J Rheumatol 1996; 23: 140717.
  • 4
    Belza BL, Henke CJ, Yelin EH, Epstein WV, Gilliss CL. Correlates of fatigue in older adults with rheumatoid arthritis. Nurs Res 1993; 42: 939.
  • 5
    Hewlett S, Cockshot Z, Byron M, Kitchen K, Tipler S, Pope D, et al. Patients' perceptions of fatigue in rheumatoid arthritis: overwhelming, uncontrollable, ignored. Arthritis Rheum 2005; 53: 697702.
  • 6
    Katz P. The stresses of rheumatoid arthritis: appraisals of perceived impact and coping efficacy. Arthritis Care Res 1998; 11: 922.
  • 7
    Minnock P, Bresnihan B. Pain outcome and fatigue levels reported by women with established rheumatoid arthritis [abstract]. Arthritis Rheum 2004; 50 Suppl 9: S471.
  • 8
    Carr A, Hewlett S, Hughes R, Mitchell H, Ryan S, Carr M, et al. Rheumatology outcomes: the patient's perspective. J Rheumatol 2003; 30: 8803.
  • 9
    Felson DT, Anderson JJ, Boers M, Bombardier C, Chernoff M, Fried B, et al. The American College of Rheumatology preliminary core set of disease activity measures for rheumatoid arthritis clinical trials. Arthritis Rheum 1993; 36: 72940.
  • 10
    Kirwan JR, Hewlett SE, Heiberg T, Hughes RA, Carr M, Hehir M, et al. Incorporating the patient perspective into outcome assessment in rheumatoid arthritis: progress at OMERACT 7. J Rheumatol 2005; 32: 22506.
  • 11
    Pincus T, Callahan LF. Depression scales in rheumatoid arthritis: criterion contamination in interpretation of patient responses. Patient Educ Counsel 1993; 20: 13343.
  • 12
    Katz PP. Introduction to special patient outcomes in rheumatology issue of Arthritis Care & Research. Arthritis Rheum 2003; 49 Suppl 5: 514.
  • 13
    Tugwell P, Bombardier C. A methodologic framework for developing and selecting endpoints in clinical trials. J Rheumatol 1982; 9: 75862.
  • 14
    Boers M, Brooks P, Strand CV, Tugwell P. The OMERACT filter for Outcome Measures in Rheumatology [editorial]. J Rheumatol 1998; 25: 1989.
  • 15
    Egger M, Juni P, Bartlett C, Holstein F, Sterne J. How important are comprehensive literature searches and the assessment of trial quality in systematic reviews? Health Technol Assess 2003; 7: 176.
  • 16
    Hill J, Bird H, Thorpe R. Effects of rheumatoid arthritis on sexual activity and relationships. Rheumatology (Oxford) 2003; 42: 2: 2806.
  • 17
    Drewes AM, Jennum P, Andreasen A, Sjol A, Nielsen KD. Self-reported sleep disturbances and daytime complaints in women with fibromyalgia and rheumatoid arthritis. J Musculoskelet Pain 1994; 2: 1531.
  • 18
    Meinicke J, Danneskiold-Samsoe B. Diclofenac sodium (Voltaren) and ibuprofen in rheumatoid arthritis: a randomized double-blind study. Scand J Rheumatol 1980; 35 Suppl: 18.
  • 19
    Sinclair VG, Wallston KA, Dwyer KA, Blackburn DS, Fuchs H. Effects of a cognitive-behavioral intervention for women with rheumatoid arthritis. Res Nurs Health 1998; 21: 31526.
  • 20
    Choudhury AK, Yunus MB, Haq SA, Alam MN, Sebrina F, Adlag JC. Clinical features of fibromyalgia syndrome in a Bangladeshi population. J Musculoskelet Pain 2001; 9: 2533.
  • 21
    Katz PP, Pasch LA, Wong B. Development of an instrument to measure disability in parenting activity among women with rheumatoid arthritis. Arthritis Rheum 2003; 48: 93543.
  • 22
    Chalder T, Berelowitz G, Pawlikowska T, Watts L, Wessely S, Wright D, et al. Development of a fatigue scale. J Psychosom Res 1993; 37: 14753.
  • 23
    Lwin TT, Bishay M, Platts RG, Booth DA, Bowman SJ. The assessment of fatigue in primary Sjogren's syndrome. Scand J Rheumatol 2003; 32: 337.
  • 24
    Vercoulen JH, Swanink CM, Fennis JF, Galama JM, van der Meer JW, Bleijenberg G. Dimensional assessment of chronic fatigue syndrome. J Psychosom Res 1994; 38: 38392.
  • 25
    Vercoulen JH, Homes OR, Swanink CM, Jongen PJ, Fennis JF, Galama JM, et al. The measurement of fatigue in patients with multiple sclerosis: a multidimensional comparison with patients with chronic fatigue syndrome and healthy subjects. Arch Neurol 1996; 53: 6429.
  • 26
    Beurskens AJ, Bultmann U, Kant I, Vercoulen JH, Bleijenberg G, Swaen GM. Fatigue among working people: validity of a questionnaire measure. Occup Environ Med 2000; 57: 3537.
  • 27
    Evers AW, Kraaimaat FW, van Riel PL, de Jong AJ. Tailored cognitive-behavioral therapy in early rheumatoid arthritis for patients at risk: a randomized controlled trial. Pain 2002; 100: 14153.
  • 28
    McNamara A. Cognitive response to symptoms in women with rheumatoid arthritis [dissertation]. University of Arizona; 1992.
  • 29
    Waltz M. The disease process and utilization of health services in rheumatoid arthritis: the relative contributions of various markers of disease severity in explaining consumption patterns. Arthritis Care Res 2000; 13: 7488.
  • 30
    Gerber L, Furst G. Validation of the NIH activity record: a quantitative measure of life activities. Arthritis Care Res 1992; 5: 816.
  • 31
    Smets EM, Garssen B, Bonke B, De Haes JC. The Multidimensional Fatigue Inventory (MFI) psychometric qualities of an instrument to assess fatigue. J Psychom Res 1995; 39: 31525.
  • 32
    Chorus AM, Miedema HS, Boonen A, van der Linden S. Quality of life and work in patients with rheumatoid arthritis and ankylosing spondylitis of working age. Ann Rheum Dis 2003; 62: 117884.
  • 33
    Barendregt PJ, Visser MR, Smets EM, Tulen JH, van den Meiracker AH, Boomsma F, et al. Fatigue in primary Sjogren's syndrome. Ann Rheum Dis 1998; 57: 2915.
  • 34
    Hunt SM, McEwen J, McKenna SP. Measuring health status. London: Croom Helm; 1986.
  • 35
    Houssien D, McKenna S, Scott D. The Nottingham Health Profile as a measure of disease activity and outcome in rheumatoid arthritis. Br J Rheumatology 1997; 36: 6973.
  • 36
    Uutela T, Hakala M, Kautiainen H. Validity of the Nottingham Health Profile in a Finnish out-patient population with rheumatoid arthritis. Rheumatology (Oxford) 2003; 42: 8415.
  • 37
    Sivas F, Ercin O, Tanyolac O, Barca N, Aydog S, Ozoran K. The Nottingham Health Profile in rheumatoid arthritis: correlation with other health status measurements and clinical variables. Rheumatol Int 2004; 24: 2036.
  • 38
    Fitzpatrick R, Ziebland S, Jenkinson C, Mowat A, Mowat A. A generic health status instrument in the assessment of rheumatoid arthritis. Br J Rheumatol 1992; 31: 8790.
  • 39
    Smedstad LM, Moum T, Vaglum P, Kvien TK. The impact of early rheumatoid arthritis on psychological distress: a comparison between 238 patients with RA and 116 matched controls. Scand J Rheumatol 1996; 25: 37782.
  • 40
    Ekselius L, Bengtsson A, von Knorring L. Personality traits as determined by means of the Karolinska Scales of Personality in patients with fibromyalgia. J Musculoskelet Pain 1998; 6: 3549.
  • 41
    Furst GP, Gerber LH, Smith CC, Fisher S, Shulman B. A program for improving energy conservation behaviors in adults with rheumatoid arthritis. Am J Occup Ther 1987; 41: 10211.
  • 42
    McGuire RJ, Wright V. Statistical approach to indices of disease activity in rheumatoid arthritis. Ann Rheum Dis 1971; 30: 57480.
  • 43
    Lansbury J, Baier H, McCracken S. Statistical study of variation in systemic and articular indexes. Arthritis Rheum 1962; 5: 44556.
  • 44
    Tack BB. Dimensions and correlates of fatigue in older adults with rheumatoid arthritis [dissertation]. San Francisco: University of California; 1991.
  • 45
    Neuberger GB, Press AN, Lindsley HB, Hinton R, Cagle PE, Carlson K, et al. Effects of exercise on fatigue, aerobic fitness, and disease activity measures in persons with rheumatoid arthritis. Res Nurs Health 1997; 20: 195204.
  • 46
    Belza BL, Henke CJ, Yelin EH, Epstein WV, Gilliss CL. Correlates of fatigue in older adults with rheumatoid arthritis. Nurs Res 1993; 42: 939.
  • 47
    Jump RL, Fifield J, Tennen H, Reisine S, Giuliano AJ. History of affective disorder and the experience of fatigue in rheumatoid arthritis. Arthritis Rheum 2004; 51: 23945.
  • 48
    Belza BL. Comparison of self-reported fatigue in rheumatoid arthritis and controls. J Rheumatol 1995; 22: 63943.
  • 49
    Gerber LH, Furst G, Yarboro C, el-Gabalawy H. Number of active joints, not diagnosis, is the primary determinant of function and performance in early synovitis. Clin Exp Rheumatol 2003; 21 Suppl 31: S6570.
  • 50
    Kaltwasser JP, Kessler U, Gottschalk R, Stucki G, Moller B. Effect of recombinant human erythropoietin and intravenous iron on anemia and disease activity in rheumatoid arthritis. J Rheumatol 2001; 28: 24306.
  • 51
    Weinblatt ME, Keystone EC, Furst DE, Moreland LW, Weisman MH, Birbara CA, et al. Adalimumab, a fully human anti-tumor necrosis factor α monoclonal antibody, for the treatment of rheumatoid arthritis in patients taking concomitant methotrexate: the ARMASA Trial. Arthritis Rheum 2003; 48: 3545.
  • 52
    Cella D, Yount S, Sorensen M, Chartash E, Sengupta N, Grober J. Validation of the Functional Assessment of Chronic Illness Therapy Fatigue Scale relative to other instrumentation in patients with rheumatoid arthritis. J Rheumatol 2005; 32: 8119.
  • 53
    Cella D, Webster K. Linking outcomes management to quality-of-life measurement. Oncology (Williston Park) 1997; 11: 2325.
  • 54
    Yellen SB, Cella DF, Webster K, Blendowski C, Kaplan E. Measuring fatigue and other anemia-related symptoms with the Functional Assessment of Cancer Therapy (FACT) measurement system. J Pain Symptom Manage 1997; 13: 6374.
  • 55
    Stone AA, Broderick JE, Porter LS, Kaell AT. The experience of rheumatoid arthritis pain and fatigue: examining momentary reports and correlates over one week. Arthritis Care Res 1997; 10: 18593.
  • 56
    Pinals RS, Masi AT, Larsen RA. Preliminary criteria for clinical remission in rheumatoid arthritis. Arthritis Rheum 1981; 24: 130815.
  • 57
    McNair D, Lorr M, Droppleman L. Profile of Mood States manual. New York: Multi-health Systems Inc; 1992.
  • 58
    Jamison M, Neuberger G, Miller P. Correlates of falls and fear of falling among adults with rheumatoid arthritis. Arthritis Rheum 2003; 49: 67380.
  • 59
    Noreau L, Martineau H, Roy L, Belzile M. Effects of a modified dance-based exercise on cardiorespiratory fitness, psychological state and health status of persons with rheumatoid arthritis. Am J Phys Med Rehabil 1995; 74: 1927.
  • 60
    Perlman SG, Connell KJ, Clark A, Robinson MS, Conlon P, Gecht M, et al. Dance-based aerobic exercise for rheumatoid arthritis. Arthritis Care Res 1990; 3: 2935.
  • 61
    Ware JE Jr, Sherbourne CD. The MOS 36-Item Short-Form Health Survey (SF-36). I. Conceptual framework and item selection. Med Care 1992; 30: 47383.
  • 62
    Kosinski M, Keller SD, Ware JE Jr, Hatoum HT, Kong SX. The SF-36 health survey as a generic outcome measure in clinical trials of patients with osteoarthritis and rheumatoid arthritis: relative validity of scales in relation to clinical measures of arthritis severity. Med Care 1999; 37 Suppl 5: MS2339.
  • 63
    Tuttleman M, Pillemer SR, Tilley BC, Fowler SE, Buckley LM, Alarcon SG, et al, and the Minocycline in Rheumatoid Arthritis Trial Group. A cross-sectional assessment of health status instruments in patients with rheumatoid arthritis participating in a clinical trial. J Rheumatol 1997; 24: 19105.
  • 64
    Kosinski M, Keller SD, Hatoum HT, Kong SX, Ware JE Jr. The SF-36 Health Survey as a generic outcome measure in clinical trials of patients with osteoarthritis and rheumatoid arthritis: tests of data quality, scaling assumptions and score reliability. Med Care 1999; 37 Suppl 5: MS1022.
  • 65
    Ruta DA, Hurst NP, Kind P, Hunter M, Stubbings A. Measuring health status in British patients with rheumatoid arthritis: reliability, validity and responsiveness of the short form 36-item health survey (SF-36). Br J Rheumatol 1998; 37: 42536.
  • 66
    Bowman SJ, Booth DA, Platts GR. Measurement of fatigue and discomfort in primary Sjögrens syndrome using a new questionnaire tool. Rheumatology (Oxford) 2004; 43: 75864.
  • 67
    Birrell FN, Hassell AB, Jones PW, Dawes PT. How does the short form 36 health questionnaire (SF-36) in rheumatoid arthritis (RA) relate to RA outcome measures and SF-36 population values? A cross-sectional study. Clin Rheumatol 2000; 19: 1959.
  • 68
    Russell AS, Conner-Spady B, Mintz A, Mallon C, Maksymowych WP. The responsiveness of generic health status measures assessed in patients with rheumatoid arthritis receiving infliximab. J Rheumatol 2003; 30: 9417.
  • 69
    Keller SD, Ware JE Jr, Hatoum HT, Kong SX. The SF-36 Arthritis-Specific Health Index (ASHI). II. Tests of validity in four clinical trials. Med Care 1999; 37 Suppl 5: MS5160.
  • 70
    Loge HJ, Kassa S, Hjermstad MJ, Kvien TK. Translation and performance of the Norwegian SF-36 Health Survey in patients with rheumatoid arthritis. I. Data quality, scaling assumptions, reliability, and construct validity. J Clin Epidemiol 1998; 51: 106976.
  • 71
    Talamo J, Frater A, Gallivan S, Young A. Use of the Short Form 36 (SF36) for health status measurement in rheumatoid arthritis. Br J Rheumatol 1997; 36: 4639.
  • 72
    Salaffi F, Stancati A, Carotti M. Responsiveness of health status measures and utility-based methods in patients with rheumatoid arthritis. Clin Rheumatol 2002; 21: 47887.
  • 73
    Moss-Morris R, Chalder T. Illness perceptions and levels of disability in patients with chronic fatigue syndrome and rheumatoid arthritis. J Psychosomatic Res 2003; 55: 3058.
  • 74
    Gilboe IM, Kvien TK, Husby G. Disease course in systemic lupus erythematosus: changes in health status, disease activity, and organ damage after 2 years. J Rheumatol 2001; 28: 26674.
  • 75
    Gilboe IM, Kvien TK, Husby G. Health status in systemic lupus erythematosus compared to rheumatoid arthritis and healthy controls. J Rheumatol 1999; 26: 1694700.
  • 76
    Currey SS, Rao JK, Winfield JB, Callahan LF. Performance of a generic health-related quality of life measure in a clinic population with rheumatic disease. Arthritis Rheum 2003; 49: 65864.
  • 77
    Tack BB. Self-reported fatigue in rheumatoid arthritis: a pilot study. Arthritis Care Res 1990; 3: 1547.
  • 78
    Scharloo M, Kaptein AA, Weinman JA, Hazes JM, Breedveld FC, Rooijmans HG. Predicting functional status in patients with rheumatoid arthritis. J Rheumatol 1999; 26: 168693.
  • 79
    Mengshoel AM, Forre O. Pain and fatigue in patients with rheumatic disorders. Clin Rheumatol 1993; 12: 51521.
  • 80
    Kvien TK, Kaasa S, Smedstad LM. Performance of the Norwegian SF-36 Health Survey in patients with rheumatoid arthritis. II. A comparison of the SF-36 with disease-specific measures. J Clin Epidemiol 1998; 51: 107786.
  • 81
    Crosby LJ. Factors which contribute to fatigue associated with rheumatoid arthritis. J Adv Nurs 1991; 16: 97481.
  • 82
    Wolfe F, Skevington S. Measuring the epidemiology of distress: the rheumatology distress index. J Rheumatol 2000; 27: 20009.
  • 83
    Wolfe F, Pincus T, O'Dell J. Evaluation and documentation of rheumatoid arthritis disease status in the clinic: which variables best predict change in therapy. J Rheumatol 2001; 28: 17127.
  • 84
    Riemsma RP, Rasker JJ, Taal E, Griep EN, Wouters JM, Wiegman O. Fatigue in rheumatoid arthritis: the role of self-efficacy and problematic social support. Br J Rheumatol 1998; 37: 10426.
  • 85
    Riemsma RP, Taal E, Rasker JJ, Houtman PM, van Paassen HC, Wiegman O. Evaluation of a Dutch version of the AIMS2 for patients with rheumatoid arthritis. Br J Rheumatol 1996; 35: 75560.
  • 86
    Barlow JH, Turner AP, Wright CC. Long-term outcomes of an arthritis self-management programme. Br J Rheumatol 1998; 37: 13159.
  • 87
    Hagen KB, Smedstad LM, Uhlig T, Kvien TK. The responsiveness of health status measures in patients with rheumatoid arthritis: comparison of disease-specific and generic instruments. J Rheumatol 1999; 26: 147480.
  • 88
    Borstlap M, Zant JL, van Soesbergen RM, van der Korst JK. Quality of life assessment: a comparison of four questionnaires for measuring improvements after total hip replacement. Clin Rheumatol 1995; 14: 1520.
  • 89
    Brekke M, Hjortdahl P, Kvien TK. Self-efficacy and health status in rheumatoid arthritis: a two-year longitudinal observational study. Rheumatology (Oxford) 2001; 40: 38792.
  • 90
    Brekke M, Hjortdahl P, Kvien TK. Changes in self-efficacy and health status over 5 years: a longitudinal observational study of 306 patients with rheumatoid arthritis. Arthritis Rheum 2003; 49: 3428.
  • 91
    Gudbjornsson B, Broman JE, Hetta J, Hallgren R. Sleep disturbances in patients with primary Sjogren's syndrome. Br J Rheumatol 1993; 32: 10726.
  • 92
    Heiberg T, Kvien TK. Preferences for improved health examined in 1,024 patients with rheumatoid arthritis: pain has highest priority. Arthritis Rheum 2002; 47: 3917.
  • 93
    Jensen JL, Uhlig T, Kvien TK, Axell T. Characteristics of rheumatoid arthritis patients with self-reported sicca symptoms: evaluation of medical, salivary and oral parameters. Oral Dis 1997; 3: 25461.
  • 94
    Uhlig T, Kvien TK, Glennas A, Smedstad LM, Forre O. The incidence and severity of rheumatoid arthritis: results from a county register in Oslo, Norway. J Rheumatol 1998; 25: 107884.
  • 95
    Chiang EP, Bagley P, Selhub J, Nadeau M, Roubenoff R. Abnormal vitamin B(6) status is associated with severity of symptoms in patients with rheumatoid arthritis. Am J Med 2003; 114: 2837.
  • 96
    Gerber L, Furst G, Shulman B, Smith C, Thornton B, Liang M, et al. Patient education program to teach energy conservation behaviors to patients with rheumatoid arthritis: a pilot study. Arch Phys Med Rehabil 1987; 68: 4425.
  • 97
    Huskisson EC. Visual analogue scales. In: MelzackR, editor. Pain measurement and assessment. New York: Raven Press; 1983.
  • 98
    Wolfe F. Fatigue assessments in rheumatoid arthritis: comparative performance of visual analog scales and longer fatigue questionnaires in 7760 patients. J Rheumatol 2004; 31: 1896902.