• 1
    McDonagh JE. Young people first, juvenile idiopathic arthritis second: transitional care in rheumatology. Arthritis Rheum 2008; 59: 116270.
  • 2
    McPherson M, Arango P, Fox H, Lauver C, McManus M, Newacheck PW, et al. A new definition of children with special health care needs. Pediatrics 1998; 102: 13740.
  • 3
    McPherson M, Weissman G, Strickland BB, van Dyck PC, Blumberg SJ, Newacheck PW. Implementing community-based systems of services for children and youths with special health care needs: how are we doing? Pediatrics 2004; 113: 153844.
  • 4
    Baum J, Gutowska G. Death in juvenile rheumatoid arthritis. Arthritis Rheum 1977; 20 Suppl 2: 2535.
  • 5
    Miettunen PM, Ortiz-Alvarez O, Petty RE, Cimaz R, Malleson PN, Cabral DA, et al. Gender and ethnic origin have no effect on longterm outcome of childhood-onset systemic lupus erythematosus. J Rheumatol 2004; 31: 16504.
  • 6
    Hagelberg S, Lee Y, Bargman J, Mah G, Schneider R, Laskin C, et al. Longterm followup of childhood lupus nephritis. J Rheumatol 2002; 29: 263542.
  • 7
    Hartnett T. Who will treat arthritis in 2025? 2007. URL:
  • 8
    American Academy of Pediatrics Committee on Children With Disabilities. The role of the pediatrician in transitioning children and adolescents with developmental disabilities and chronic illnesses from school to work or college. Pediatrics 2000; 106: 8546.
  • 9
    Blum RW, Garell D, Hodgman CH, Jorissen TW, Okinow NA, Orr DP, et al. Transition from child-centered to adult health-care systems for adolescents with chronic conditions: a position paper of the Society for Adolescent Medicine. J Adolesc Health 1993; 14: 5706.
  • 10
    Hamburg DA, Nightingale EO, Takanishi R, for the Council on Adolescent Development. Facilitating the transitions of adolescence [abstract]. JAMA 1987; 257: 34056.
  • 11
    Ansell BM, Chamberlain MA. Children with chronic arthritis: the management of transition to adulthood. Baillieres Clin Rheumatol 1998; 12: 36373.
  • 12
    Van Dyck PC, McPherson M, Strickland BB, Nesseler K, Blumberg SJ, Cynamon ML, et al. The national survey of children with special health care needs. Ambul Pediatr 2002; 2: 2937.
  • 13
    American Academy of Pediatrics, American Academy of Family Physicians, American College of Physicians, and American Society of Internal Medicine. A consensus statement on health care transitions for young adults with special health care needs. Pediatrics 2002; 110: 13046.
  • 14
    American Academy of Pediatrics. Learning collaboratives: medical home. 2007. URL:
  • 15
    White PH, Turchi RM, Hackett P, Gatto M. Preparing children and youth with special health care needs for adult health care: progress of general pediatricians translating national transition policy into practice. Proceedings of the Pediatric Academic Society Meeting; 2006 April 29 to May 2; San Francisco, California.
  • 16
    ABIM Foundation. Stepping up to the plate (SUTTP). 2008. URL:
  • 17
    Kieckhefer GM, Trahms CM. Supporting development of children with chronic conditions: from compliance toward shared management. Pediatr Nurs 2000; 26: 35463.