• 1
    Dorsey RR, Andresen EM, Moore TL. Health-related quality of life and support group attendance for patients with systemic lupus erythematosus. J Clin Rheumatol 2004; 10: 69.
  • 2
    McElhone K, Abbott J, Teh LS. A review of health related quality of life in systemic lupus erythematosus. Lupus 2006; 15: 63343.
  • 3
    Khanna S, Pal H, Pandey RM, Handa R. The relationship between disease activity and quality of life in systemic lupus erythematosus. Rheumatology (Oxford) 2004; 43: 153640.
  • 4
    Manzi SM, Stark VE, Ramsey-Goldman R. Epidemiology and classification of systemic lupus erythematosus. In: HochbergMC, SilmanA, SmolenJS, WeinblattM, WeismanMH, editors. Rheumatology. Edinburgh: Mosby; 2003. p. 12916.
  • 5
    Wandstrat AE, Carr-Johnson F, Branch V, Gray H, Fairhurst AM, Reimold A, et al. Autoantibody profiling to identify individuals at risk for systemic lupus erythematosus. J Autoimmun 2006; 27: 15360.
  • 6
    Grootscholten C, Ligtenberg G, Derksen RH, Schreurs KM, Glas-Vos JW, Hagen EC, et al. Health-related quality of life in patients with systemic lupus erythematosus: development and validation of a lupus specific symptom checklist. Qual Life Res 2003; 12: 63544.
  • 7
    Abu-Shakra M, Keren A, Livshitz I, Delbar V, Bolotin A, Sukenik S, et al. Sense of coherence and its impact on quality of life of patients with systemic lupus erythematosus. Lupus 2006; 15: 327.
  • 8
    Aringer M, Stamm TA, Pisetsky DS, Yarboro CH, Cieza A, Smolen JS, et al. ICF core sets: how to specify impairment and function in systemic lupus erythematosus. Lupus 2006; 15: 24853.
  • 9
    World Health Organization. ICF: International Classification of Functioning, Disability, and Health. Geneva: World Health Organization; 2001.
  • 10
    Zochling J, Grill E, Stucki G, Braun J. Identification of relevant functional issues for acute rheumatology patients by health professionals, using the ICF framework and a multi-disciplinary focus group approach [abstract]. Arthritis Rheum 2005; 52 Suppl 9: S676.
  • 11
    Boonen A, Van Echteld I, Cieza A, Stucki G, Zochling J, Braun J, et al. Construct validity of the preliminary selection of ICF health domains for ankylosing spondylitis [abstract]. Ann Rheum Dis 2005; 64: 3156.
  • 12
    Morita E, Weigl M, Schuh A, Stucki G. Identification of relevant ICF categories for indication, intervention planning and evaluation of health resort programs: a Delphi exercise. Int J Biometeorol 2006; 50: 18391.
  • 13
    Grill E, Ewert T, Stucki G. ICF core set development for the acute hospital and early post-acute rehabilitation facilities [review]. Disabil Rehabil 2005; 27: 3616.
  • 14
    Cieza A, Ewert T, Ustun B, Chatterji S, Kostanjsek N, Stucki G. Development of ICF core sets for patients with chronic conditions. J Rehabil Med 2004; 44 Suppl: 911.
  • 15
    Stamm TA, Cieza A, Coenen M, Machold KP, Nell VP, Smolen JS, et al. Validating the International Classification of Functioning, Disability and Health comprehensive core set for rheumatoid arthritis from the patient perspective: a qualitative study. Arthritis Rheum 2005; 53: 4319.
  • 16
    Finger ME, Cieza A, Stoll J, Stucki G, Huber EO. Identification of intervention categories for physical therapy, based on the International Classification of Functioning, Disability and Health: a Delphi exercise. Phys Ther 2006; 86: 120320.
  • 17
    Stucki G, Grimby G. Applying the ICF in medicine. J Rehabil Med 2004; 44 Suppl: 56.
  • 18
    Weigl M, Cieza A, Andersen C, Kollerits B, Amann E, Stucki G. Identification of relevant ICF categories in patients with chronic health conditions: a Delphi exercise. J Rehabil Med 2004; 44 Suppl: 1221.
  • 19
    Stucki G, Cieza A, Geyh S, Battistella L, Lloyd J, Symmons D, et al. ICF core sets for rheumatoid arthritis. J Rehabil Med 2004; 44: 8793.
  • 20
    Khan F, Pallant JF. Use of the International Classification of Functioning, Disability and Health (ICF) to identify preliminary comprehensive and brief core sets for multiple sclerosis. Disabil Rehabil 2007; 29: 20513.
  • 21
    Stamm TA, Bauernfeind B, Coenen M, Feierl E, Mathis M, Stucki G, et al. Concepts important to persons with systemic lupus erythematosus and their coverage by standard measures of disease activity and health status. Arthritis Rheum 2007; 57: 128795.
  • 22
    Carr A, Hewlett S, Hughes R, Mitchell H, Ryan S, Carr M, et al. Rheumatology outcomes: the patient's perspective. J Rheumatol 2003; 30: 8803.
  • 23
    Hewlett S, Smith AP, Kirwan J. Values for function in rheumatoid arthritis: patients, professionals and public. Ann Rheum Dis 2001; 60: 92833.
  • 24
    Hewlett S. Patients and clinicians have different perspectives on outcomes in arthritis. J Rheumatol 2003; 30: 8779.
  • 25
    Wiginton KL. Illness representations: mapping the experience of lupus. Health Educ Behav 1999; 26: 44353.
  • 26
    Goodman D, Morrissey S, Graham D, Bossingham D. Illness representations of systemic lupus erythematosus. Qual Health Res 2005; 15: 60619.
  • 27
    Strand V, Gladman D, Isenberg D, Petri M, Smolen J, Tugwell P. Endpoints: consensus recommendations from OMERACT IV. Outcome measures in rheumatology. Lupus 2000; 9: 3227.
  • 28
    Nowicka-Sauer K. Patients' perspective: lupus in patients' drawings. Assessing drawing as a diagnostic and therapeutic method. Clin Rheumatol 2007; 26: 15235.
  • 29
    Hasson F, Keeney S, McKenna H. Research guidelines for the Delphi survey technique. J Adv Nurs 2000; 32: 100815.
  • 30
    Goodman CM. The Delphi technique: a critique. J Adv Nurs 1987; 12: 72934.
  • 31
    Linstone HA, Turoff M. The Delphi technique: techniques and applications. London: Addison Wesley; 1975.
  • 32
    Karlsson G. Psychological qualitative research from a phenomenological perspective. Stockholm: Almquist & Wiskell International; 1995.
  • 33
    McKenna HP. The Delphi technique: a worthwhile research approach for nursing. J Adv Nurs 1994; 19: 12215.
  • 34
    Loughlin KG, Moore LF. Using Delphi to achieve congruent objectives and activities in a pediatrics department. J Med Educ 1979; 54: 1016.
  • 35
    Cieza A, Brockow T, Ewert T, Amman E, Kollerits B, Chatterji S, et al. Linking health-status measurements to the International Classification of Functioning, Disability and Health. J Rehabil Med 2002; 34: 20510.
  • 36
    Cieza A, Geyh S, Chatterji S, Kostanjsek N, Ustun B, Stucki G. ICF linking rules: an update based on lessons learned. J Rehabil Med 2005; 37: 2128.
  • 37
    Cervera R, Abarca-Costalago M, Abramovicz D, Allegri F, Annunziata P, Aydintug AO, et al. Systemic lupus erythematosus in Europe at the change of the millennium: lessons from the “Euro-Lupus Project.” Autoimmun Rev 2006; 5: 1806.
  • 38
    Moses N, Wiggers J, Nicholas C, Cockburn J. Prevalence and correlates of perceived unmet needs of people with systemic lupus erythematosus. Patient Educ Couns 2005; 57: 308.
  • 39
    Da Costa D, Dritsa M, Bernatsky S, Pineau C, Menard HA, Dasgupta K, et al. Dimensions of fatigue in systemic lupus erythematosus: relationship to disease status and behavioral and psychosocial factors. J Rheumatol 2006; 3: 12828.
  • 40
    Wang B, Gladman DD, Urowitz MB. Fatigue in lupus is not correlated with disease activity. J Rheumatol 1998; 25: 8925.
  • 41
    Ad Hoc Committee on Systemic Lupus Erythematosus Response Criteria for Fatigue. Measurement of fatigue in systemic lupus erythematosus: a systematic review. Arthritis Rheum 2007; 57: 134857.
  • 42
    Shortall E, Isenberg D, Newman SP. Factors associated with mood and mood disorders in SLE. Lupus 1995; 4: 2729.