EUROCAT Working Group: Martin Haeusler (Styria, Austria); Vera Nelen (Antwerp, Belguim); Christine Verellen-Dumoulin (Hainaut-Namur, Belgium); Ingeborg Barisic (Zagreb, Croatia); Hanitra Randrianaivo (Ile de la Reunion, France); Babak Khoshnood (Paris, France); Berenice Doray (Strasbourg, France); Annette Queisser-Luft (Mainz, Germany); Anke Rissmann (Saxony Anhalt, Germany); Mary O'Mahony (Cork and Kerry, Ireland); Bob McDonnell (Dublin, Ireland); Carmel Mullaney (South East, Ireland); Elisa Calzolari, Emilia Romagna, Fabrizio Bianchi (Tuscany, Italy); Miriam Gatt (Malta); Marian Bakker (Northern Netherlands); Kari Klungsoyr (Melve, Norway); Anna Latos-Bielenska (Wielkopolska, Poland); Carlos Matias Dias (South Portugal); Joaquin Salvador (Barcelona, Spain); Larraitz Arriola (Basque Country, Spain); Marie-Claude Addor (Vaud, Switzerland); Wladimir Wertelecki (Ukraine); Elizabeth Draper (East Midlands and South Yorkshire, United Kingdom); Judith Rankin, Patricia Boyd, Thames Valley, David Tucker, Wales, Diana Wellesley (Wessex, United Kingdom).
Paper 3: EUROCAT data quality indicators for population-based registries of congenital anomalies†
Article first published online: 7 MAR 2011
Copyright © 2011 Wiley-Liss, Inc.
Birth Defects Research Part A: Clinical and Molecular Teratology
Special Issue: EUROCAT Supplement Issue
Volume 91, Issue S1, pages S23–S30, March 2011
How to Cite
Loane, M., Dolk, H., Garne, E., Greenlees, R. and a EUROCAT Working Group (2011), Paper 3: EUROCAT data quality indicators for population-based registries of congenital anomalies. Birth Defects Research Part A: Clinical and Molecular Teratology, 91: S23–S30. doi: 10.1002/bdra.20779
This is the 3rd of 6 papers of a supplement submitted to Birth Defects Research. Conflict of interest: none.
- Issue published online: 15 MAR 2011
- Article first published online: 7 MAR 2011
- Manuscript Accepted: 30 NOV 2010
- Manuscript Received: 17 NOV 2010
- The European Commission, under the framework of the European Union Health Programme. Grant Number: Agreement 2006103 (Executive Agency for Health and Consumers)
- congenital anomalies;
- data quality;
The European Surveillance of Congenital Anomalies (EUROCAT) network of population-based congenital anomaly registries is an important source of epidemiologic information on congenital anomalies in Europe covering live births, fetal deaths from 20 weeks gestation, and terminations of pregnancy for fetal anomaly. EUROCAT's policy is to strive for high-quality data, while ensuring consistency and transparency across all member registries. A set of 30 data quality indicators (DQIs) was developed to assess five key elements of data quality: completeness of case ascertainment, accuracy of diagnosis, completeness of information on EUROCAT variables, timeliness of data transmission, and availability of population denominator information. This article describes each of the individual DQIs and presents the output for each registry as well as the EUROCAT (unweighted) average, for 29 full member registries for 2004–2008. This information is also available on the EUROCAT website for previous years. The EUROCAT DQIs allow registries to evaluate their performance in relation to other registries and allows appropriate interpretations to be made of the data collected. The DQIs provide direction for improving data collection and ascertainment, and they allow annual assessment for monitoring continuous improvement. The DQI are constantly reviewed and refined to best document registry procedures and processes regarding data collection, to ensure appropriateness of DQI, and to ensure transparency so that the data collected can make a substantial and useful contribution to epidemiologic research on congenital anomalies. Birth Defects Research (Part A), 2011. © 2011 Wiley-Liss, Inc.