The authors are indebted to the twenty participants of this panel. Because anonymity for the survivors was desired, their names are not listed.
Health care for childhood cancer survivors
Insights and perspectives from a Delphi panel of young adult survivors of childhood cancer
Article first published online: 9 JAN 2004
Copyright © 2004 American Cancer Society
Volume 100, Issue 4, pages 843–850, 15 February 2004
How to Cite
Zebrack, B. J., Eshelman, D. A., Hudson, M. M., Mertens, A. C., Cotter, K. L., Foster, B. M., Loftis, L., Sozio, M. and Oeffinger, K. C. (2004), Health care for childhood cancer survivors. Cancer, 100: 843–850. doi: 10.1002/cncr.20033
- Issue published online: 3 FEB 2004
- Article first published online: 9 JAN 2004
- Manuscript Revised: 18 NOV 2003
- Manuscript Accepted: 18 NOV 2003
- Manuscript Received: 12 SEP 2003
- Robert Wood Johnson Foundation
- National Research Service Award through the National Institutes of Health. Grant Number: NCI F32 CA89875-02
- childhood cancer;
- Delphi panel;
- follow-up care;
- long-term studies
Most children diagnosed with cancer are surviving into adulthood but are not receiving adequate or appropriate follow-up health care. However, to the authors' knowledge, there is little literature published to date exploring potential barriers to long-term risk-based follow-up care for young adult survivors of childhood cancer.
In the current study, using a modified Delphi technique, young adult cancer survivors identified barriers to utilizing appropriate follow-up care and offered suggestions for ways to enhance health care in this young adult population.
Major barriers to health care were found to be a lack of knowledge on the part of both physicians and survivors regarding long-term health issues related to cancer. Suggestions to enhance care included self-advocacy training for survivors and advanced training for primary care physicians who may treat childhood cancer survivors as they transition into adulthood.
The results of the current study are consistent with reports that young adult survivors of childhood cancer need or desire information regarding their medical histories, psychosocial support, and social advocacy. Cancer 2004;100:843–50. © 2004 American Cancer Society.