SEARCH

SEARCH BY CITATION

REFERENCES

  • 1
    Hutchins LF, Unger JM, Crowley JJ, Coltman CA Jr., Albain KS. Under-representation of patients 65 years of age or older in cancer-treatment trials. N Engl J Med. 1999; 341: 20612067.
  • 2
    Hodge FS, Weinmann S, Roubideaux Y. Recruitment of American Indians and Alaska Natives into clinical trials. Ann Epidemiol. 2000; 10: 4148.
  • 3
    Holcombe RF, Jacobson J, Li A, Moinpour CM. Inclusion of black Americans in oncology clinical trials. Am J Clin Oncol. 1998; 22: 1821.
  • 4
    Brown DR, Fouad MN, Basen-Enguist K, Tortolero-Luna G. Recruitment and retention of minority women in cancer screening, prevention, and treatment trials. Ann Epidemiol. 2000; 10: 1321.
  • 5
    Alexander GA, Chu KC, Ho RC. Representation of Asian Americans in clinical cancer trials. Ann Epidemiol. 2000; 10: S61S67.
  • 6
    Underwood SM. Minorities, women, and clinical cancer research: the charge, promise, and challenge. Ann Epidemiol. 2000; 10: S3S12.
  • 7
    Swanson GM, Ward AJ. Recruiting minorities into clinical trials: toward a participant-friendly system. J Natl Cancer Inst. 1995; 87: 17471759.
  • 8
    Mouton CP, Harris S, Rovi S, Solorzano P, Johnson MS. Barriers to black women's participation in cancer clinical trials. J Natl Med Assoc. 1997; 89: 721727.
  • 9
    U.S. Department of Health and Human Services. NIH guidelines on the inclusion of women and minorities as subjects in clinical research. Fed Regist. 1994; 59: 1450814513.
  • 10
    Lovato LC, Hill K, Hertert S, Hunninghake DB, Probstfield JL. Recruitment for controlled clinical trials: literature summary and annotated bibliography. Control Clin Trials. 1997; 18: 328352.
  • 11
    Green BL, Partridge EE, Fouad MN, Kohler C, Crayton EF, Alexander L. African-American attitudes regarding cancer clinical trials and research studies: results from focus group methodology. Ethn Dis. 2000; 10: 7686.
  • 12
    Advani AS, Atkeson B, Brown CL, et al. Barriers to the participation of African-American patients with cancer in clinical trials: a pilot study. Cancer. 2003; 97: 14991506.
  • 13
    Shavers VL, Lynch CF, Burmeister LF. Knowledge of the Tuskegee study and its impact on the willingness to participate in medical research studies. J Natl Med Assoc. 2000; 92: 563572.
  • 14
    Shavers VL, Lynch CF, Burmeister LF. Racial differences in factors that influence the willingness to participate in medical research studies. Ann Epidemiol. 2002; 12: 248256.
  • 15
    Kaluzny A, Brawley O, Garson-Angert D, et al. Assuring access to state-of-the-art care for U.S. minority populations: the first 2 years of the Minority-Based Community Clinical Oncology Program. J Natl Cancer Inst. 1993; 85: 19451950.
  • 16
    U.S. Department of Commerce. Statistical abstract of the United States. Washington, DC: U.S. Department of Commerce, 1995.
  • 17
    U.S. Census Bureau. Population estimates program. Washington, DC: U.S. Census Bureau, 2000.
  • 18
    Lin-Fu JS. Asian and Pacific Islanders: an overview of demographic characteristics and health care issues. Asian Am Pacific Isl J Health. 1993; 1: 2136.
  • 19
    U.S. Census Bureau. National population projections, vol 2004. Washington, DC: U.S. Census Bureau, 2001.
  • 20
    U.S. Census Bureau. 2000 Census of population and housing. Washington, DC: U.S. Department of Commerce Economics and Statistics Administration, 2000.
  • 21
    Strauss AC. Basics of qualitative research: grounded theory procedures and techniques. Thousand Oaks, CA: Sage Publications, 1990.
  • 22
    Lincoln YS, Guba EG. Naturalistic inquiry. Thousand Oaks, CA: Sage Publications, 1985.
  • 23
    Cox K, McGarry J. Why patients don't take part in cancer clinical trials: an overview of the literature. Eur J Cancer Care (Engl). 2003; 12: 114122.
  • 24
    Unson CG, Dunbar N, Curry L, Kenyon L, Prestwood K. The effects of knowledge, attitudes, and significant others on decisions to enroll in a clinical trial on osteoporosis: implications for recruitment of older African-American women. J Natl Med Assoc. 2001; 93: 392401.
  • 25
    Dworkin G. Autonomy and informed consent. In: AbramMB, BallantineHT, DunlopGR, et al., editors. Making health care decisions, the ethical and legal implications of informed consent in the patient-practitioner relationship. The President's Commission for the study of ethical problems in medicine and biomedical and behavioral research. Washington, DC: U.S. Government Printing Office; 1982: 6381.
  • 26
    Hahn RA. Culture and informed consent: an anthropological perspective. In: AbramMB, BallantineHT, DunlopGR, et al., editors. Making health care decisions, the ethical and legal implications of informed consent in the patient-practitioner relationship. The President's Commission for the study of ethical problems in medicine and biomedical and behavioral research. Washington, DC: U.S. Government Printing Office; 1982: 3762.
  • 27
    Meisel A, Kuczewski M. Legal and ethical myths about informed consent. Arch Intern Med. 1996; 156: 25212526.
  • 28
    Eyton J, Neuwirth G. Cross-cultural validity: ethnocentrism in health studies with special reference to the Vietnamese. Soc Sci Med. 1984; 18: 447453.
  • 29
    Pasick RJ, Stewart SL, Bird JA, D'Onofrio CN. Quality of data in multiethnic health surveys. Public Health Rep. 2001; 116(Suppl 1): 223243.
  • 30
    Association of Asian Pacific Islander Community Health Associations. Capacity building initiative for Asian Americans and Pacific Islanders to participate in clinical research studies: summary report of needs assessment. Oakland: Association of Asian Pacific Islander Community Health Organizations, 2000.